All episodes
RARE - A Brand With A Purpose With Theresa Thomas and Kristine Hoestermann
Living With Chronic Pain - International Pain Foundation President Barby Ingle
Effisode - Making Friends and Talking About Differences
Adam Johnson - Rare Disease Dad on Mitochondrial Myopathy and Owning Your Story
Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice
Effisode - Merch, Napa Center, and Beach Adventures
Reflecting on 50 Episodes with Effie and Casey
Thanatophoric Skeletal Dysplasia with Ashequka Lacey
Fake It Til You Make It - Public Speaking, Road Trips and Intensive Therapy
What is Chronically Surviving with Marcelle Longlade
Ciitizen - Take Control of Your Own Medical Records and Advance Research with Nasha Fitter
School Busses, Road Trips and Friendship
A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane
Two Disabled Dudes - Kyle Bryant and Sean Baumstark
Rare Together, Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes
Effisode - Let Me Tell You About My Big Brother
A Mother's Crusade to Find a Cure for Her Son - Amber Freed, Founder and CEO, SLC6A1 Connect
David Fajgenbaum - Chasing My Cure - A Doctor's Race to Turn Hope into Action
Effisode 001
WSU ROAR - Responsibility, Opportunities, Advocacy and Respect with Lisa Henniger
Time is Brain - SynGap Research Fund with Mike Graglia
Bonus Episode - Usher Syndrome Type III with Eleanor Griffith from Grey Genetics
Physical and Emotional Well-Being for the Caregiver with Tyra Skibington
Next Steps - A Journey Through CRPS to an Above the Knee Amputee with Whitney Lavender
Rare Like Us with Taylor Kane
Founder of LakiKid - Sensory Tools for Home and Classroom with Jason Hsieh
Anna Laurent on Alagille Syndrome and Her Road to Advocacy
Sage Graves - Estate Planning, Guardianship, Special Needs Trusts
The Ladies Behind the Edits
Loving Large: A Mother's Rare Disease Memoir With Patti Hall
In Loving Memory of Lucas DeFabio
Beyond Quarantine: Acceptance, Empathy, and a Better Normal
Quarantine - What We're Missing, What We're Not, and What We Hope Sticks Around
Trust Your Instincts; An Early Intervention Can Save Your Life
Put Your Own Oxygen Mask On First
Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival
Therapy Check-In With Rose Reif
How Our Rare Kids Can Shape Us
A Grandfather's Story of Guardianship, Caregiving and Advocacy
Choosing Hope
Mental Health and Coping During Covid-19
School Closures and FAPE
A Healthier Healthcare For All
Morgan's Wonderland
Neena Nizar and the Jansen's Foundation
Distressed Genes Aren't Just A Fashion Statement
The Value of Genetic Counselors
The Lucky Few
Films and Fatherhood
A Fellow CTNNB1 Mama
Sibling Support
My Favorite Pair of Genes
Rollin' With Spina Bifida
My Pfeiffer Pfamily
The Fathers Network
Heartism
A Little Love
The Dadurday Chronicles
It's Your Party, and I'll Cry If I Want To
Telomere More About It
Hospital Hair Don't Care
Effie
Effie and Synthiea
Trailer