All Episodes
PWS United — 93 episodes
Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues
Ep 91 PWS Awareness Month is Here: How to Get Involved
Ep90 Staying Curious: Continuing the Equity Conversation
Ep89 Pulse 145: PWS Awareness Month, DC Fly-In, Voices on VYKAT 4, Autism Blog
Ep88: What is a Rare Pharmacy? How PWS Families Receive Care Through PANTHERx
Ep87: Pulse 144: Conference Scholarships, Sibling Blog, VYKAT Approval Anniversary
Ep86: Homeschooling, The Ins and Outs of Educational Choice
Ep85: Pulse 143 Hot Stove, Disordered Sleep, Voices on Vykat 3
Ep84: Welcoming PWSA | USA's Equity Committee
Ep83 Pulse 142: Nutrition, Rare Disease Week, Research and Study Opportunities
Ep82: Kady Sweeney: See the Potential, Savor Typical Moments
Ep81 Pulse 141: Caregivers Day, Voices on Vykat, Board Member Spotlights
Ep80: What's in Store for PWSA | USA in 2026?
Ep79 Pulse 140: Residential Providers, Plunge for PWS, PRV Win, Feeding Tubes
Ep78: Miriam Chernick: Educating the Community
Ep77: Limits, Perspective, and Mental Wellness
Ep76 Pulse 139: Art Share Launch, Social Media Use, Voices on VYKAT Testimonial
Ep75: Global PWS Registry 2.0
Ep74 Pulse138: DC Fly In Applications, Mental Wellness, Save the Dates for 2026
Ep73: Stacy's End of Year Message
Ep72 Pulse 137: End of Year Reflection, Holiday Traditions and Tips, Clinical Trial Wrap-Up
Ep71: Christian Garzia: Humor, Fairness, and Protection
Ep70 Pulse 136: In Memory of Fausta, Give Kids a Chance Act, HERO Study Expansion, PWS Relationships Study
Ep69: Joe Gill: Inclusion, Purpose, and the Little Things
Ep68 Pulse 135: Holiday Preparation, Prader Silly Recap, 2026 D.C. Fly-In, PWS and Diabetes, Research Spotlight
Ep67: Broken Systems, Enduring Love, Single Caregivers Series
Ep66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude
Ep65: Grit, Grace, and Family, Single Caregivers Series
Ep64: Henry McDonald: Dynamic Duo, Superhero
Ep63: Nile Hope Workshop and Camp, Department of Education Layoffs, Prader Silly Live Auction
Ep62: Teaching Emotional Regulation in Individuals with PWS: ABA Strategies for Lasting Success
Ep61 Pulse 132: Gala Recap, DUR Boards, TREND Journey Prompts, Bullying Prevention Month
Ep60: Rockie Penta: Caregiver, Roommate, Best Friend
Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns
EP58: Recognizing the Unsung Heroes of PWS
Ep57 Pulse 130: Direct Support Professionals Week, DUR Written Testimony, Recursos en Español
EP56: Celebrating One Year of Podcasting
EP55: Hope, Perseverance, and Soleno's Path to an FDA-Approval for Prader-Willi Syndrome
Ep55 (Bonus Episode!): Leave a Lasting Legacy with PWSA | USA
EP54: Pulse 129: Nonprofit Day, Gala Emcee, Rare Across America, Parent Training for IEPs
Ep53: Empowering Families with Dr. Destiny Pacha, Parent Submissions
Ep52 Pulse 128: Make-A-Will Month, Big Advocacy Win, Dance Silly for Prader-Willi, BOSS Program Update, Harmony Biosciences Webinar
Ep51 ADA History and Advocacy
Ep50 Pulse 127: 50th Gala, Sunshine Act, BOSS Program, Golf Gimmes
Ep 49: Endocrine in Teens and Adults: Conference Session
Ep48 Pulse 126: Conference Wrap Up, PWS Comic Book, Interactive Map, Law Enforcement Letter
Ep 47: Nutrition Recommendations for PWS: Conference Session
Ep46: Pioneers in PWS Series - The Parent Mentoring Program
Ep45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream
Ep 44: PWSA, IPWSO, FPWR: United in Hope
Ep43: All Things Conference
Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner
Ep41: PWS Origin Stories, Success, and Awareness
Ep40 Pulse 122: PWS Awareness Month, Family Conference Registration Closed, Interview with Destiny Pacha, VYKAT XR Townhall Summary
Ep39 Unlocking a New Path to Treat Hyperphagia in PWS: A Conversation with Aardvark Therapeutics
Ep38 Pulse 121: Occupational Therapy Month, Conference Cap, Awareness Month Proclamation, Financial Security Webinar
Ep37 Ask Nurse Lynn: Growth Hormone, Skin-Picking, GLP-1s
Ep36 Pulse 120: Annual Report, VYKAT XR Webinar, Awareness Proclamation Toolkit, Sibling Guide
Ep35: PWS and Sibling Support
Ep34 Pulse 119: Awareness, Staying Cool at Conference, Sibling Stories, Clinical Trial with Tirzepatide
Ep33: Special Education and the Department of Ed.
Ep32Pulse 118: Harmony Webinar, Hot Stove Dinner, State Advocacy, TREND GI Report, Community Publications
Ep31 PWS Awareness Starts Here: Fundraising with Hope United & United We Brunch
Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action
Ep 29: Pioneers in PWS - Residential Care and the Professional Providers Advisory Board
Ep28 Pulse 116: Growth Hormone Pioneer, Advocacy Wins, TREND Report on Behavior, Job Announcement
Ep27: Advocacy with Terry Wilcox from Patients Rising
Ep26: Clinical Trial Perspectives Part 1
Ep25 Pulse 115: Countdown to Conference, Hot Stove Dinner, Changes at FDA, Volunteer Spotlight, Sertraline
Ep24 TREND & PWS Connect
Ep 23 Pulse 114: Celebrating 50 Years of Hope, Advocacy Class, PWSA Egypt, Journeys Project on Discord, Community Stories
Ep22 Pulse 113: Marathon Runner, Inclusive Advocacy, Art Share Extension, PWS in Adulthood, The Holidays
Ep21 Meet the PWSA | USA Staff
Ep20 Pulse 112: Angel Drive, Georgia Advocacy, Growth Hormone, Clinical Trial Journey
Ep19 Caring for the Caregiver
Ep18 National Adoption Month, Adopting a Loved One with PWS
Ep17 Pulse 111: 15Q Day, Hope in Action, Trend Pain Report, Hyperphagia Study
Ep16 Self-Care, Self-Advocacy, and Gratitude
Ep15 Pulse 110: Angel Drive Kick-Off, NORD Summit, Family Caregiver Month, Clinical Trial Journey
Ep14: Adults with PWS Advisory Board
Ep13 Pulse109: Physical Therapy Month, Dominique Valenti, FDA Meeting, PWS Book Review
Ep12 PWS Parent Clint Hurdle Shares Advice for Dads, Personal Stories
Pulse 108: Prepare for Holidays, New Staff, Operation Holiday Cheer, & More
Ep10 Clinical Trials
Pulse 107: Service Dogs, Podcast Update, Narcolepsy Spotlight, & More
Ep8 Direct Support Professionals Week Panel Discussion
Ep7 Edition 106: PWSA | USA Pulse
Ep6 What's the Big Deal About Exercise?
PWS BIPOC Affinity Group
Edition 104: PWSA | USA Pulse
Advocating for Change: A Conversation with Dorothea Lantz
Back to School: PWSA | USA Special Edition Pulse
PWS Connect Teaser