The Galactosemia Podcast cover art

All Episodes

The Galactosemia Podcast — 24 episodes

#
Title
1

Why BridgeBio Stopped Galactosemia Gene Therapy

2

Gene Therapy for Galactosemia: Feat. Mandy and Clayton from BridgeBio

3

Maureen Bell's Story of Living with Galactosemia

4

Exploring Bone Marrow Transplant in Galactosemia

5

Navigating State Services and First Foods: Elliot's One Year Update

6

Recapping Our Tour of a Gene Therapy Lab - with Jamie Hiegel

7

Reading Test Results: Feat. Dr. Michael Gambello & Dr. Tricia Hall

8

Speech Therapist & Galactosemia Parent: Feat. Zara & Fin Betts

9

The Voice of the Patient Report: PFDD Meeting

10

The Science Behind Babbling with Dr. Beate Peter

11

Primary Ovarian Insufficiency & Purple Sweet Potatoes with Dr. Synneva Hagen Lillevik

12

Understanding the Galactosemia Diet with Dr. Sandy Van Calcar

13

GLOW for Galactosemia 2025 feat. Jamie Heigel

14

When Every Day is Advocacy feat. Gillian Sapia

15

Navigating Life and Fundraising for Galactosemia – Feat. Brittany Cudzilo

16

A Delayed Diagnosis & A Rare Complication - Feat. Becca Jones

17

New Treatments, Big Questions: What’s next for Galactosemia? Feat. Dr. Estela Rubio Gozalbo

18

Babble Bootcamp: Speech Support & Early Intervention feat. Dr. Nancy Potter

19

The Battle for NIH Funding: Impact on Galactosemia Research

20

IEPs and 504s: Understanding Educational Support ft. Dr. Karolyn Maurer

21

The Road to a Cure ft. Dr. Gerard Berry

22

Red Stickers, Green Stickers: A Life with Galactosemia ft. Keith Topper

23

Inside a Galactosemia Research Lab - ft. Dr. Judith Fridovich-Keil

24

Welcome to The Galactosemia Podcast