All Episodes

Testing: Impact and Supports

Life After Testing with Jules

Genetic Testing: Time to Test and Process

Katrina and Jamie - Help 4 HD Toolkit Part 2

Katrina & Jamie talk about the Help 4 HD - HD Tool Kit - PT 1

"My Life, My Science" Part 1 with Dr. Nancy and Dr. Alice Wexler

Symposium 2026 ~ Des Moines, Iowa with Katie & Katrina

Traveling Tips & Tricks

HD Reach Crafting Corner

Patient Clinic Survey Update with HD-PACE

Response to Roche Update with HDBuzz

On the Other Side of Approval with Jeremy Renz

All About Advocacy, Everywhere - USA

All About Advocacy, Everywhere!

Movement Symptoms in Huntington's with Cheryl Turner

Cognitive Symptoms in HD with Todd Knaack

Mood Symptoms in HD with Dr. Karen Anderson

HD Awareness Month Help 4 HD Style with Katrina and Katie

"I Am The Swamp" with Rachel Reising

Steps of Courage: Facing Chorea Head-On

HD Uncut with Sarina Smith

Love in HD with Heather & Nathan Wilmoth

Genetic Frontiers with Susanna Smith

HD Uncut with Jeremy R.

Help 4 HD Happenings in 2026

November Update with Katie Jackson

JHD Uncut, Halloween Edition

A Glimmer of Light in the Shadows with Jennifer Goddard

HD Uncut wiith Erin Paterson

UniQure Update with Dr. Ed Wild

Sunday Sit-down with Terina Martinez

Important Update with HD-PACE

HDCONNECT with Jenna Heilman

Attending Events with H, Erika and Melissa

PPEM Roundtable with Jamie Holloway

The Power of a Moment

MEND-HD with Dr. Lori Quinn and Dr. Jamie Adams

Prime Day in HD

Liv's Legacy with Esme & Gemma

Ingrezza with Dwight Tapp of Neurocrine

This is Me Smiling with Sarah & Randy Foster

Being United with Gracey

Spared with Lori Jones

POWERHD with Karmen T.

HDYO Congress 2025 - Keynote: Empowerment Through Gratitude

HD Uncut with Lance K.

Rare Disease Warriors at WODC USA 2025

HD Uncut with Corrie Harris

Resources Review: Apps Edition

Badass Women of HD with Erika B.

HD in Costa Rica with Juan Carlos

HDYO Congress in Prague!

HD-PACE with Christy Dearien

Show Your Stripes with Lauren Holder

HD Gratitude Day with Jimmy Pollard

H4HD audio panel discussion - increasing patient engagement

HD Uncut with Josh Holder

HDYO Ambassadors: Hannah

HD Uncut with Amy Ogilvie

HD Resources Review - Relationships

Help 4 HD Updates for 2025 with Katie Jackson

Bloopy the Alien Learns about HD with Emma & Erin

HD Resources Review: Grief & Loss

Hospice For End Of Life Care Explained

HD Uncut: Days of Our Lives

HD Resources Review: Help 4 the Holidays with Anna & Jamie

Update about Sage Therapeutics with Lauren Holder

HD Uncut: Right to Choose with Lauren Holder

Rare Patient Voice with Wes Michael

Breaking Down Barriers: A Conversation Around Access with HDYO

Our Lived Experience (Panel from Help 4 HD Symposium)

Are You Prepared for a Disaster?

HD Uncut: Thoughts from Strasbourg

End of Life: The Caregiver Perspective, Part 2

UF Fixel Institute for HD Patients with Dr. Nick McFarland

HDYO Ambassador: Molly

We are at War with HD

HDYO Ambassador: Gemma

HD Uncut: Being Gene-Positive & a Scientist

End of Life: The Caregiver Perspective

Stronger Together

HDYO Ambassadors Series: Carly

HD Genetics & Clinical Trials with BJ Viau

HD Uncut with Gina

HD Awareness Month Wrap-up with Judy Bradley

My Visit with UniQure

Act for ALS (and HD) with Thom Hart

HDYO Ambassadors: Ashley

What I learned at the World Orphan Drug Congress

HD Uncut with Meredith Patterson

Using Optical Tweezers in HD with Dr. Piere Rodriguez-Aliaga

Cognitive Symptoms & Patient-Reported Outcomes with Dr. Jennifer Petrillo Billet

HDYO Ambassador Series: Rhiannon

HD Gratitude Day

Samantha Decker

HDYO Ambassadors Series: Ep 1. with Robyn

HD Uncut, Ep. 12, with John Howard

Layers of Love with Dave, Susie and Erika

"We Exist" with Tanita Allen

DNA Repair in HD with Dr. Joseph Hamilton