Let's Talk SADS Live

You wouldn't expect a 16 year old with Congenital Heart Defect (CHD) to say a roller coaster is one of her favorite stories, but here we are!Amelia was born with Double Outlet Right Ventricle and has had three open heart surgeries, but ask her if she'd trade her CHD for a "normal" life, and her answer might surprise you.In this uplifting conversation, Amelia opens up about finding her people at Campfire Circle, advocating for other cardiology patients through the Chameleon app, and why she actually sees her heart condition as something that made her life better, not worse.Amelia's story is proof that resilience looks a lot like joy.Watch the full episode and follow us on our socials!Facebook - https://tinyurl.com/CanadianSADSFacebookYouTube - https://tinyurl.com/CanadianSADSYouTubeInstagram - https://tinyurl.com/CanadianSADSInstagramSpotify - https://tinyurl.com/CanadianSADSSpotifyApple - https://tinyurl.com/CanadianSADSAppleAmazon - https://tinyurl.com/CanadianSADSAmazon#LetsTalkSADSLive #SADS #CHD #CongenitalHeartDefect #DoubleOutletRightVentricle #Fontan #HeartWarrior #CampfireCircle #PatientPartner #YouthAdvocacy #RareDisease #HeartCondition #TeenWithCHD #Cardiology #TransitionToAdultCare #SelfAdvocacy #LivingWithCHD #HeartPalpitations #RollerCoaster #AmazingPeople

Gene therapy. One injection. No going back.Brian O'Mahoney, the first person in Ireland to receive any gene therapy, has lived with severe hemophilia B his entire life. In this deeply personal conversation, Brian shares what it really means to make an irreversible medical decision, and how basing his choice on data from just three patients became the leap of faith that changed everything.Now, 44 years into leading patient advocacy across Ireland, Europe, and globally, Brian is helping others navigate the same impossible question: When do you take the one shot you'll ever get?This episode offers a rare look inside the mind of someone who chose to rewrite their own biology, and the resilience required to help an entire community do the same.Watch the full episode and follow us on our socials!Facebook - https://tinyurl.com/CanadianSADSFacebookYouTube - https://tinyurl.com/CanadianSADSYouTubeInstagram - https://tinyurl.com/CanadianSADSInstagramSpotify - https://tinyurl.com/CanadianSADSSpotifyApple - https://tinyurl.com/CanadianSADSAppleAmazon - https://tinyurl.com/CanadianSADSAmazon#LetsTalkSADSLive #SADS #GeneTherapy #Hemophilia #HemophiliaB #PatientAdvocacy #RareDisease #GeneticCondition #MedicalInnovation #PatientStory #ChronicIllness #LivingWithHemophilia #BleedingDisorders #GeneTherapyTrial #IrreversibleDecision #SharedDecisionMaking #PatientEmpowerment #MedicalBreakthrough #ClinicalTrial #HealthcareInnovation #PatientAdvocate #RareDiseaseCommunity #Resilience #MedicalDecisions

Wearable technology that can predict heart failure hospitalizations days in advance is just one of the groundbreaking innovations Dr. Heather Ross, a world-renowned cardiologist and heart failure specialist, is bringing to patients. In this powerful conversation, Dr. Ross shares how a near-death experience on a remote Antarctic mountain transformed her approach to care, the revolutionary digital tools that are changing how we monitor heart health, and her mission to bring equitable heart care to rural and Indigenous communities across Canada, all from a Pelican case.This episode offers a rare glimpse into the mind of a physician who has dedicated her life to meeting patients where they are, both physically and emotionally, and the digital tools making that possible.Watch the full episode and follow us on our socials!Facebook - https://tinyurl.com/CanadianSADSFacebookYouTube - https://tinyurl.com/CanadianSADSYouTubeInstagram - https://tinyurl.com/CanadianSADSInstagramSpotify - https://tinyurl.com/CanadianSADSSpotifyApple - https://tinyurl.com/CanadianSADSAppleAmazon - https://tinyurl.com/CanadianSADSAmazon#LetsTalkSADSLive #SADSCanada #HeartFailure #WearableTech #RemoteMonitoring #DigitalHealth #HealthEquity #Cardiology #HeartHealth #PatientCare #HeartDisease #HeartHealthMatters #Cardiologist #HeartFailureAwareness #MedTech #HealthTech #AIinHealthcare #Wearables #PreventiveCare #RuralHealth #IndigenousHealth #DigitalTransformation #TrueHF #AppleWatch #HeartMonitoring #CardiacCare #HealthcareInnovation #PatientEmpowerment #HeartBrainConnection #NearDeathExperience #TestYourLimits

Your story matters. And telling it might just help you heal.After surviving sudden cardiac arrest and a heart failure diagnosis herself, Dr. Sharon Bray discovered that writing wasn't just a creative outlet. It was a lifeline.In this week's Let's Talk SADS Live, Dr. Bray shares how expressive writing can help process trauma, build community, and remind us that we are not alone. Whether you write for five minutes or fifty years, putting words to your experience can change everything.Hear her full story. Links below.YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠#ExpressiveWriting #TherapeuticWriting #HealingThroughWriting #WriteYourStory #StorytellingHeals #CreativeWriting #MentalHealthMatters #TraumaHealing #EmotionalWellness #CopingWithIllness #GriefAndLoss #HealingJourney #YouAreNotAlone #PatientSupport #HeartHealth #HeartFailure #SuddenCardiacArrest #SADS #SADSAwareness #CardiacArrest #LivingWithHeartFailure #HeartDiseaseAwareness #PatientAdvocacy

What if a single treatment could change the future of your heart?This #HeartMonth, we are bringing you a conversation filled with hope, science, and the power of persistence.We sit down with Dr. Sheikh, a Canadian-born scientist, who walks us through her groundbreaking gene therapy research targeting ARVC PKP2 mutations, what "potential reversibility" could mean for patients living with heart failure, and why she is now working toward mutation agnostic treatments that could help even more families.If you have ever wondered how close we really are to treatments that address the root cause of genetic heart disease, this episode is for you.Listen now to learn how science, determination, and a personal connection are driving real progress:YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠#SADS #HeartMonth #ARVC #GeneTherapy #GeneticHeartCondition #PKP2 #CardiacResearch #SuddenCardiacArrest #SCAPrevention #HeartHealth #MedicalBreakthrough #PatientHope #CanadianResearch #WomenInScience

This #HeartMonth, we are honoured to share a deeply moving conversation with a very special friend of The Canadian SADS Foundation, Walker Frahm, CEO of The US SADS (Sudden Arrhythmia Death Syndromes) Foundation .Walker opens up with raw honesty about the sudden loss of his daughter, Lavinia, and how this tragedy reshaped his life’s path. He speaks to the unique experience of a father’s grief: the instinct to hold everything together, the delayed wave of emotion, and the choice to lean in and lead.This episode is a powerful exploration of finding purpose in pain, the critical need for specific community after loss, and how a father’s love fuels the relentless work to protect other families. Walker’s story is a testament to turning heartbreak into hope and action.To hear his full story of love, loss, and leadership, listen now on all platforms:YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠#SADS #HeartMonth #GeneticHeartCondition #SuddenCardiacArrest #SCAPrevention #Grief #Fatherhood #PatientAdvocacy #HeartHealth #MentalHealth #TurningPainIntoPurpose

From unexpected heart failure at 23 to founding a national patient community. Today we are speaking with Marc Bains, co-founder of HeartLife Foundation. He shares his powerful journey from diagnosis to transplant and into advocacy. This episode explores how community, research, and patient partnership can transform life after a devastating cardiac diagnosis and why building support is critical for anyone living with heart disease.To hear the full story of resilience and how Heart Life was born, listen now on all platforms:Facebook - https://tinyurl.com/CanadianSADSFacebookYouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠#SADS #HeartFailure #Cardiomyopathy #HeartTransplant #GeneticHeartCondition #Cardiology #InheritedArrhythmia #PatientAdvocacy #HeartHealth #HeartLife #SurvivorStory #LivingWithHeartDisease #PatientPartner #HeartResearch #CanadianHealth

What if we rebranded exercise with a SADS condition as play?Join us as health coach Janet Omstead shares her joyful approach to building a sustainable movement and exercise routine. This episode dives into practical strategies to overcome fear, find motivation, and rediscover the pleasure of moving within your limits.To build a complete and safe foundation, we recommend listening to part 1 of this 2 part exercise series featuring pediatric cardiologist Dr. Robert Hamilton.Listen to this episode now:YouTube - https://tinyurl.com/CanadianSADSYouTubeInstagram - https://tinyurl.com/CanadianSADSInstagramSpotify - https://tinyurl.com/CanadianSADSSpotifyApple - https://tinyurl.com/CanadianSADSAppleAmazon - https://tinyurl.com/CanadianSADSAmazon#SADS #BrugadaSyndrome #CPVT #LongQT #ARVC #HypertrophicCardiomyopathy #Cardiology #InheritedArrhythmia #ExerciseWithHeart #HeartHealth #HealthCoach #BehaviorChange #Play #JoyfulMovement #LivingWithSADS

What if your diagnosis didn't mean you had to give up the sports and activities you love? Pediatric cardiologist Dr. Robert Hamilton challenges decades of fear with a new, empowering message for the SADS community: "Complete restriction is just not healthy."Drawing from the latest patient data and his extensive clinical practice, Dr. Hamilton explains how exercise recommendations for inherited arrhythmia conditions have evolved. He provides clear, practical guidance on safely staying active, from recreational sports to high-intensity training, and tackles the tough questions about ICD shocks, overheating, and finding your personal limits.This is Part 1 of a two-part series on Exercise & SADS. Dr. Hamilton provides the essential medical framework and permission to move. To turn this knowledge into action, don't miss Part 2 with health coach and behavior change expert Janet Omstead, who shares practical and inspirational strategies to build motivation, overcome mental hurdles, and create a sustainable, joyful exercise routine.Listen and follow on our socials!YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠#SADS #Cardiology #InheritedArrhythmia #ExerciseWithHeart #HeartHealth #CPVT #LongQT #ARVC #HypertrophicCardiomyopathy #BrugadaSyndrome #AthleteHeart #ICD #LivingWithSADS #CardiacRehab #HeartPodcast #ExerciseMotivation #BehaviorChange

What if the greatest gift for your family wasn't something you could wrap? Yvonne Heath, author of "Live Your Life to Death", explains why preparing for the end of life is an essential act of love. She shares powerful stories from the bedside, revealing the profound peace that comes with planning and the heartbreaking conflict that arises without it.This conversation is a powerful call to normalize end-of-life planning, to "just show up" for ourselves and our loved ones, and to embrace proactive living over reactive crisis. To learn more about Yvonne’s transformative practices or to purchase her books, visit her website at https://yvonneheath.com/shop. As a generous supporter of our community, Yvonne has offered to donate 25% of each sale to the Canadian SADS Foundation when you leave the message "SADS" in the contact section on her website after your purchase.Listen and follow on our socials!Facebook - https://tinyurl.com/CanadianSADSFacebookYouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠#EndOfLifePlanning #DifficultConversations #Legacy #GriefAndJoy #ProactiveLiving #FamilyFirst #JustShowUp #SADSCanada #LifeAndDeath

Having your life's dream taken away in an instant is a reality Brett MacLean faced at 23. A professional hockey player who had just scored in the NHL, Brett's career ended with a sudden cardiac arrest on the ice. In this powerful conversation, he shares his story of survival, from waking up with no memory of his hockey career to grappling with the profound loss of his identity. This conversation is a powerful testament to the importance of CPR/AED training and the human capacity for resilience. Brett’s story is not just about an ending, but about a new beginning.#CardiacArrest #SuddenCardiacArrest #HeartHealth #CPRSavesLives #AED #LifeAfterSports #AthleteMentalHealth #NewBeginnings #NHL

For Lia Olmsted, the discovery that her children had Brugada Syndrome came after the devastating loss of her 21-month-old daughter, Reese. In this heartfelt conversation, Lia shares the realities of parenting a child with a life-altering condition, the critical importance of CPR awareness, and how she channels her love for Reese into a foundation that supports and brings smiles to children in her community.This episode is a powerful testament to a family's strength and a mother's determination to create light from profound darkness.

Meet Hannah Keime from HeartCharged. Diagnosed with a genetic heart condition at just 14, Hannah gets real about the challenges of an invisible illness and explains why she started HeartCharged. She opens up about showing her scars and sharing the raw, unfiltered truth of her patient journey to build a supportive global community for young people.Her story is a powerful blend of vulnerability, resilience, and life-saving advocacy. Find Hannah and Bethany's work ⁠ @heartcharged ⁠ on Instagram. Tune now.#LetsTalkSADSLive #SADSCanada #HeartCharged #Cardiomyopathy #ICD #InvisibleIllness #PatientAdvocacy #HeartHealth

The Road to Recovery after a Cardiac StormIn this powerful first episode of the new patient-driven Let’s Talk SADS Live, Sally Gilbert shares her journey of living with exercise-induced ARVC and the emotional aftermath of surviving multiple ICD shocks during a cardiac event earlier this year.Sally opens up about the fear and uncertainty that followed, and how she’s learned to cope, rebuild her confidence, and move forward one day at a time. Her story is one of strength, resilience, and the importance of community support for those living with inherited heart rhythm conditions.Listen as Sally brings honesty and hope to the conversation on recovery after sudden cardiac events.

Join the Canadian SADS Foundation for the 35th episode of Let’s Talk SADS Live with Dr. Andrew Krahn, as we take a closer look at Long QT Syndrome and what it means for patients and families.This episode will explore the latest understanding of Long QT Syndrome, from diagnosis and risk assessment to management and family screening. Dr. Krahn will share insights from his clinical and research experience on how we can better identify individuals at risk, prevent sudden cardiac events, and support those living with this inherited arrhythmia.Dr. Andrew Krahn is a Professor in the Division of Cardiology at the University of British Columbia. He specializes in inherited arrhythmia syndromes, with a particular focus on Long QT Syndrome and other genetic heart rhythm disorders. Through his leadership in research and clinical care and the Hearts in Rhythm Organization (HiRO, pronounced hero), Dr. Krahn has been at the forefront of improving outcomes for individuals and families affected by inherited cardiac conditions.This episode of Let’s Talk SADS Live takes an in-depth look at Long QT Syndrome and provides valuable knowledge for patients, families, and healthcare providers working together to reduce the risks of SADS.

Join us for our first pre-recorded episode! In episode 34 of Let’s Talk SADS Live, we sit down with Dr. Andrew Landstrom to explore the promise and progress of gene therapy for inherited arrhythmia syndromes. This episode dives into how gene therapies are being developed to treat conditions such as Long QT Syndrome, CPVT, and Brugada Syndrome, and what this means for families affected by SADS. From understanding how these therapies work to what’s on the horizon in clinical research, Dr. Landstrom will help break down the science and share insights into what the future may hold.

Join the Canadian SADS Foundation for the 33rd episode of Let’s Talk SADS Live, where we’ll be joined by Dr. Danna Spears to explore Managing Pregnancy with a SADS Condition. This episode will focus on the unique challenges and important considerations for individuals with inherited arrhythmia syndromes as they plan for and go through pregnancy. From risk assessment to delivery planning, we’ll take a closer look at how to support safe and informed decision-making throughout the process.Dr. Danna Spears is a cardiac electrophysiologist at the University Health Network and Associate Professor of Medicine at the University of Toronto. With a clinical and research focus on inherited heart rhythm disorders, Dr. Spears works closely with individuals and families affected by Long QT Syndrome, CPVT, Brugada Syndrome, and related conditions. She has been instrumental in developing care models that bring together cardiology, genetics, and reproductive health to support women navigating pregnancy with a SADS condition.This episode of Let’s Talk SADS Live explores pregnancy with SADS conditions and what it means to plan for a family while living with a genetic heart rhythm condition.

Join the Canadian SADS Foundation for the 32nd episode of Let’s Talk SADS Live, where we’ll be joined by Dr. Lauren Schneider to explore the Impact of SADS Conditions on Mental Health and Wellbeing. This episode will highlight how anxiety, trauma, and uncertainty can affect overall wellbeing, and why integrating mental health support into cardiac care is so critical.Dr. Lauren Mikula Schneider is a Clinical Professor of Psychiatry and Behavioral Sciences and Pediatrics at Stanford University, and a pediatric psychologist at Lucile Packard Children’s Hospital Stanford. She works closely with children and families affected by congenital heart disease, arrhythmias, and transplant needs, offering specialized support through the Medical Coping and Wellness Clinic. Dr. Schneider’s work focuses on how chronic illness intersects with psychological development, and she is a leading voice in developing strategies to promote resilience and emotional wellbeing in pediatric cardiac care.This episode of Let’s Talk SADS Live is an excellent opportunity for patients and families to better understand the impact of mental health on living with a SADS condition, and to explore strategies for emotional wellbeing, resilience, and support.

Join the Canadian SADS Foundation Live for the 31st episode of Let’s Talk SADS Live, hosted by Dr. Shubhayan Sanatani. In this episode, we’ll be speaking with Dr. Dominic Abrams about Arrhythmogenic Right Ventricular Cardiomyopathy, exploring how genetics, exercise, and evolving diagnostic strategies play a role in identifying and managing this complex inherited heart condition.Dr. Dominic Abrams is a pediatric electrophysiologist at Boston Children’s Hospital and an Associate Professor of Pediatrics at Harvard Medical School. With specialized expertise in inherited arrhythmia syndromes and cardiomyopathies, Dr. Abrams leads multidisciplinary efforts focused on the diagnosis, risk assessment, and management of genetic heart rhythm conditions in children and young adults. He is actively involved in clinical research and international collaborations that aim to advance our understanding of sudden cardiac arrest and inherited cardiovascular disease. Widely respected for his clinical insight and patient-centered approach, Dr. Abrams is committed to improving outcomes and supporting families impacted by conditions under the SADS spectrum.This episode of Let’s Talk SADS Live is an excellent opportunity for patients and families to become more informed on how this vital system influences heart rhythms and its role in SADS conditions.

In this episode, we will be speaking with Dr. Victoria Claydon on the Autonomic Nervous System and fainting spells (or syncopal episodes) and whether, in rare cases, it can contribute to irregular heart beats associated with a phenomenon known as “autonomic conflict”.Dr. Victoria Claydon is a professor in the Department of Biomedical Physiology and Kinesiology at Simon Fraser University (SFU). She earned her B.Sc. (Hons) in Physiology in 1998 and completed her Ph.D. in Cardiovascular Physiology in 2001. Dr. Claydon leads the Cardiovascular Physiology Laboratory at SFU, where her research focuses on cardiovascular physiology and pathophysiology, with particular interests in cerebrovascular control, the autonomic nervous system, spinal cord injury, and syncope.

Join us for the 29th episode of Let's Talk SADS Live, hosted by Dr. Shubhayan Sanatani. In this episode, we will be speaking with Dr. Robert Avram on the uses of AI in healthcare, and how this will affect the future of SADS conditions. Dr. Avram has completed an AI fellowship at UCSF and an Interventional Cardiology fellowship in Ottawa. He is currently a clinician and researcher at the Montreal Heart Institute affiliated with the University of Montreal where he leads the Heartwise.ai laboratory to develop, validate and deploy AI Algorithms in healthcare and cardiology.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us on Episode 28 of Let's Talk SADS Live with guest Dr. Georgia Brugada of SJD Barcelona Children’s Hospital. Dr Georgia Brugada is a specialist in pediatric arrhythmias, family cardiology, and sudden death at the Cardiology Department of the SJD Barcelona Children's Hospital. For a number of years, she was an attending physician in congenital heart diseases at the Hôpital Necker Enfants Malades and at the Hospital Européen George Pompidou, in Paris.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

This Let's Talk SADS Live guest, Dr. Jason Roberts, discusses the evolution of treatment strategies, provide an overview about findings in recent pre-clinical research data, and shed light on novel therapeutic approaches under study for arrhythmogenic cardiomyopathies. He will also provide an overview of an exciting upcoming clinical trial available here in Canada as well as offer insights for patients who want to enroll in a clinical trial.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us on Episode 26 of Let's Talk SADS Live as Melanie Care discusses the ABC’s of Genetics in SADS conditions. Melanie Care is a Genetic Counsellor for the University Health Network, specifically working in the molecular diagnostic laboratory as well as the inherited arrhythmia clinic.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us as Dr. Michael Fridman teaches us about the importance of research and how it can be a source of hope for patients. Dr. Michael Fridman is an attending Pediatric Cardiologist and Electrophysiologist at the Alberta Children’s Hospital in Calgary, Alberta.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for Let's Talk SADS Live Episode 24 SADS conditions and Medications. Our special guest is Dr. Roxane Carr she is a pharmacist at the BC Children’s Hospital and a Clinical Professor with the Faculty of Pharmaceutical Science at the University of British Columbia in Vancouver BC.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for Episode 23 of Let's Talk SADS Live where we will converse on the updates of contemporary management of patients with HCM. Our special guest today will be Dr. Rafik Tadros. Dr. Tadros is a cardiologist and cardiac electrophysiologist at the Cardiovascular Genetics Centre of the Montreal Heart Institute. Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us on our latest Let's Talk SADS Live Episode 22 where Dr.Nathanial Moulson will be speaking to us about navigating sports and exercise with SADS conditions. Dr. Moulson is a Preventative and Sports Cardiologist at the University of British Columbia where he is a Clinical Assistant Professor in the Division of Cardiology. Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for Episode 21 of Let's Talk SADS Live where our special guest, Dr. Joseph Atallah, will guide us through the use of Cardiac Denervation as a treatment option for SADS conditions. Dr. Joseph Atallah is a Cardiologist and serves as the Medical Director for the sections of Electrophysiology and Outpatient Services at the Stollery Children's Hospital in Edmonton, AB. Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our 20th episode of Let's Talk SADS Live featuring Dr. Gabriel Brooks and guest Annie Ganot.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our 19th edition of Let's Talk SADS Live with Dr. Elizabeth Stephenson from The Hospital for Sick Children!Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Professor Behr is a leading figure in cardiovascular medicine at St. George’s, University of London, and a renowned Consultant at both St. George’s University Hospitals NHS Foundation Trust and Mayo Clinic Healthcare, London. His groundbreaking work in arrhythmias and genetic risks for cardiac conditions has positioned him at the forefront of cardiovascular genetics research.We'll explore the fascinating journey of Brugada Syndrome from its early discovery to the latest in genetic research and clinical management strategies. Professor Behr's extensive research into sudden death risk, drug-induced arrhythmia, and channelopathies, including long QT and Brugada syndromes, has led to over 300 peer-reviewed publications, making him an expert voice in the field.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

This session, we're honored to host Dr. Kathleen Hodgkinson, an acclaimed professor of clinical epidemiology and genetics at Memorial University. With a remarkable career starting from the University of Manchester to groundbreaking research in Newfoundland, Dr. Hodgkinson has made significant strides in understanding inherited cardiac diseases, particularly arrhythmogenic right ventricular cardiomyopathy (ARVC) and it's genetic underpinnings in Newfoundland.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Following the overwhelming response to our previous session, we're thrilled to announce that Let's Talk SADS Live Q&A is back for its second edition! We are honored to welcome back Dr. Ciorsti MacIntyre, who has accepted our invitation to share her expertise as our guest speaker again.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for a special Q&A episode of Let's Talk SADS Live, hosted by Dr. Shubhayan Sanatani with guest expert Dr. Ciorsti MacIntyre. It's your opportunity to ask the experts about LQTS, Brugada Syndrome, HCM, ARVC, CPVT, and more.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for the first Let’s Talk SADS Live episode of 2024! We are excited to have Dr. Arthur Wilde as our guest as we dive into the world of CPVT. Dr. Wilde is a world renowned cardiac electrophysiologist at the Amsterdam University Medical Center. The Amsterdam UMC was one of the first worldwide to start an outpatient cardiogenetic clinic. Over the years thousands of patients and families with inherited arrhythmia syndromes have been seen. They are at the basis of Dr. Wilde’s academic research which is focused on inherited cardiac diseases which are associated with sudden cardiac death. Different aspects, including gene discovery, genotype-phenotype relationships and new treatment modalities have been and are being covered.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our 13th episode of Let's Talk SADS Live as we discuss Long QT Syndrome with special guest, Dr. Susan Etheridge!Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for a special episode of Let's Talk SADS Live featuring a patient perspective! Our guest, Kristina Bangma, Kristina is a personal trainer, cycling coach, and former competitive endurance athlete whose entire life was turned upside down when, at the age of 40, she was diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC). Kristina has shared her journey through her memoir, Athlete at Heart, which describes her experience of perseverance, self-discovery, and growth, as well as the fears, misconceptions, and false starts she encountered along the way. You can purchase your copy at kristinabangma.com.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for episode 11 of Let's Talk SADS Live with our guest Dr. Julia Cadrin-Tourigny! She will be talking about some of the latest approaches on risk stratification for ARVC and emerging therapies with our host, Dr. Shubhayan Sanatani!Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our special Sudden Cardiac Awareness Month episode of Let's Talk SADS Live with Chief Coroner of Ontario, Dr. Dirk Huyer. Our host, Dr. Sanatani will be discussing how the Coroner plays a role in the diagnosis of an inherited cardiac condition and it's implications.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our this episode of Let's Talk SADS Live with special guest Dr. Katherine Allan, PhD. With September being back to school, we will be discussing some of Dr. Allan's recent work in creating sudden cardiac arrest safe communities through CPR and AED education in schools.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our 8th episode of Let's Talk SADS Live with our host Dr. Shubhayan Sanatani and special guest Dr. Robert Hamilton from The Hospital for Sick Children. We will be discussing the use of biomarkers in Brugada and Brugada Syndrome in children. Be sure to join us to have a chance to have your questions addressed by the experts! See you there!Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

We're back again with our host Dr. Shubhayan Sanatani and guest speaker Dr. Glen Tibbits! In this episode they discuss some of the latest research regarding stem cells in the context of SADS conditions.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us on Tuesday, June 20th, at 12PM ET to learn more about some of the new frontiers in hypertrophic cardiomyopathy care in Canada with Dr. Thomas Roston.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for part II of our Let's Talk SADS episodes for another discussion on genes and their implications in SADS conditions. In this episode, we will be talking about navigating some of the challenges that are faced with the genetic testing and counseling of SADS conditions.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our 4th episode of Let's Talk SADS Live for an exciting introduction to DNA with our guest, genetic counsellor, Melanie Care. Learn how DNA works and it's implications in a variety of different SADS conditions!Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our third episode of Let's Talk SADS Live featuring our Dr. Michael Ackerman. Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our second episode of Let's Talk SADS Live featuring Dr. Andrew Krahn.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/

Join us for our first episode of Let's Talk SADS Live featuring our Executive Director, Pam Husband. Pam Husband talks the history of the Canadian SADS Foundation, as well as the present and the future of our organization.Our Let's Talk SADS Live Series is provided at no cost to the viewer, striving to make information on SADS conditions universally accessible for Canadians. As a charitable organization, we rely on your support to produce these informative episodes. A donation ensures the continuity of these vital programs for patients and families. Please contribute by visiting www.sads.ca/donate/