AWOL Zebra : Fascia and living with hEDS

Took my one and only to college and now trying to see the direction my life is going.

Just because it feels like it’s over doesn’t mean it is. Every movement can be therapy.

The Sound Of A Bucket List. Meet Ella Coonen. The subject of a documentary directed by David Kaye. I was honored to get the opportunity to meet this incredible young woman. See how she is managing her life after receiving one of several diagnoses last year. EDS being one of them. A rare genetic variation that will cause her to lose her hearing entirely.

Every minute I have to work on my body. If I had to do my hair like I did in the 80s today, I would never be out in public.

This is not what I expected to be doing at the age of 56. I’m not breaking records or anything, but I’m making it and managing.

Catching up on the support groups, while managing proper posture. Some individual welcomes just could not get done.

Trying to re-pattern, my fascia and do my exercises all while handling daily activities that I turn in to my physical therapy. Join me???

I have turned every movement and every activity into some form of PT for my body. I am re-patterning my fascia. Even in my sleep. Join me??? please follow us on Spotify.

Every minute of the day is PT for me. Overwhelmed but not done.

It could be menopausal or the hEDS my mood is not at it’s premium.

This is not exactly what I signed up for, but I’m trying to go with the flow and shocked that I’m still functioning.

Learning how my body works now. This is turning out to be an adventure I was not prepared for. Join me???

Breathing. Working. Could I have over tightened my pelvic floor?

My biggest interference is me. I can’t get out of my own way.

Goodbye to those close to me. Learning how to regroup after a seizure.

Non invasive fascia modalities. If it’s out there. I will find it. Fascia Flo and more with Dreena Burton. She has an incredible program and it’s something you might be interested in. Join us.

The Fascia Guide is coming in English. Learn about Fascia from the creator of the Fascia Guide.

Been a busy few days. My body is working. Big changes. I have glutes! Life always interrupts a good chronic illness situation.

Just working on another day up and still less pain? Every movement is carefully thought out.

My tune hasn’t changed. AWOL Zebra has always focused on fascia, posture and breath. Fascia is now being talked about on every day people! Come on and join the group you didn’t ask to be a part of!!!

I am not pacing myself. I refuse to accept certain limitations. But will this set me back?

Please follow us on Spotify. We are sponsorable😉 I just experienced the most incredible feeling. The Nexcia by Ashley Black is a game changer. Follow the podcast and our groups for Updates and giveaways. Thank you

5 years of constant fascia work. Always searching for noninvasive fascia modalities. Open posture is confusing but it’s got me. I do stupid so you don’t have to.😉🫶

There is so much out there now on fascia. Learning and relearning is not my forté. Don’t give up!

Trying to manage a body that has a mind, if any, working at all. Am I making progress?

Big changes. It’s odd to feel your body “waking up” AWOL Zebra is here to connect and let you know that you are not alone. Everybody needs a buddy. Please follow us on Spotify. Sponsors welcomed 🤑 🤗

A day after fascial counterstrain. New modalities are coming. As hard as it is for me. I am allowing my body to adjust to the changes.

Learning new modalities that may work for you. It’s amazing, the difference in my body, when used properly.

Trying to navigate a body that is ready to work from out of nowhere and keep going, with a twist. There are so many programs out there when do you stop?

Years of working on my fascia. Numerous breathing programs. Figuring out what to do with my middle toes. How to breathe using my ribs thanks to upper posture. The past five days have been the most incredible of my entire life since having this illness. And I was thinking about quitting?

My favorite AWOL Zebra college graduate. Meghana Venkatasha discusses her new career. Be sure to watch her interview last year around the same time. There is hope for us and the EDS community for our future because of individuals like the young woman.

Discovering every movement I am in training. I am THE conductor of my body!! You? Join us to work on your Fascia. Follow us to make a difference. A way of life or a wacky old lady . You decide. Cool shirts if you want one.

Our bodies are not supposed to stack. We need to have some natural curves. I did my posture three different ways and realized by focusing on my intercostals and my middle toes has given me the most pain free days I’ve had in five years. Follow us!!!!

My goal is to raise awareness. I search for every non-invasive fascia modality that could help us. There are so many programs out there. You just need to choose the right one for you. Natalie Pendergrass tells us how she manages her body and discusses her new program. If you’d like this program from Natalie when you sign up, use the code AWOL Zebra and you’ll get 20% off her program. https://www.facebook.com/share/1C9oCkvTg2/?mibextid=wwXIfr

Jessi Davison stops by AWOL Zebra today to share her newest creation. She crochets to decorate your wheelchair. Unfortunately, something happened with the video. We will have to do another one so you can see her creations in the meantime. Please. Follow her Jubilance Designs. Follow AWOL Zebra on Spotify and everywhere! New tee shirts!!! Let’s help each other. We are creating a community! Join me…

I have found my foundation! For my purpose and this illness. Why was I never told about these intercostals and toes? I am up past midnight and my body is working.Follow us on Spotify. Shirts now on sale!!!

Learning how to breathe with 360 degree support. Nobody ever mentioned opening up the upper rib cage. Pain in my shoulder, knee, toe and pelvic floor all eased up once I changed my breathing and figured out what to do with my toes.

Another day of focusing on using my intercostal muscles to work on my deep core and keeping my middle toes on the floor. I am noticing a major decrease in pain and our brand new shirts are here! Get yours now!!!

The position of these three toes makes all the difference in the world. Mindful movements. AWOL is a way of life. My third day and it’s the breakthrough I needed.

Desperately trying to earn money. Can’t believe my body is working by focusing on the middle toes that nobody seemed to care about. My big toe my baby toe were important, but nobody cared about those middle toes. Whilst thinking about them makes a big difference!

Battling an invisible illness. Becomes almost impossible when your toes become invisible as well. Nobody tells you what to do with piggies two, three and four. How rare is this illness? I think it’s rarely diagnosed. This illness can’t be cured, but it can be managed. This is definitely a game changer. Join me. We need all the followers we can get on Spotify and Facebook and if you can promote us and we find out. You can get your choice of a shirt or window decal. Etc. I sincerely appreciate the follow and the shares. Thanks for helping me raise awareness. With your help we can only get better. And we can help manage and get better together by changing the way our body functions.

Warning: I scream loudly I think. Nothing is scripted. I don’t edit. I don’t listen after I record. I think it’s the first 4 minutes in. One small step for EDS. A giant leap for me! I had a play date. Business meeting. Drove. I am eating and breathing!

Join me for today! In real time. I have been up for 6 hours. In the truck. Working on my fascia. What are you doing? Every hour I want you to Go AWOL for 10 minutes. Please follow us on Spotify!!!

I feel like a failure. And then. I realized you’re standing up straight, not in that much pain and YOU FEEL your body getting out of proper alignment. You have an appetite. Your ability to comprehend is coming back. Wow!!! Are you supposed to poop every day? Who would’ve thought absorbing nutrients was that important? Is that what a diaphragmatic breath is supposed to feel like?

I am trying something new. Will it work? My body is functioning. I am not always prepared.

I got up at 6am. I was a multitasking beast before this illness won temporarily;) Times have changed. It’s 9:30pm and I need to take a shower and do a podcast. I cleaned my mother in laws place. I ate. Twice! Now let’s shower and work on our fascia! Join me???

Every day is a challenge. How do you keep going? Join me. Follow us on Spotify. AWOL Zebra is A Way Of Life or A Wacky Old Lady. You decide.

Now that I understand what’s happening to my body. I am exercise intolerant at the moment and that’s okay. My PT is every day activities. Laundry. Dishes. Standing.

Not sure what I expected. My pain is manageable? Will I improve more?

I am up! Just living is constant movement therapy for us. I am always in training. Movement therapy. Dishes. Ball therapy etc.Please follow us on Spotify.