All Episodes
The Rare Life — 315 episodes · page 1 of 4
230: Amanda’s Story | Medical-Parent Anxiety, Fear of the Future + 17 Years of Perspective
229: Season 14 Kickoff | Our Board Retreat, Summer Recaps + Sneak Peeks
New Launch: The NICU Survival Guide w/ Cindy Reinhard and Ashley Caywood (Summer Mini #10)
When You and Your Child are Both Medically Complex with Sarah (Summer Mini #9)
Single Medical Parenting w/ Danielle (Summer Mini #8)
Why Asking for Help Feels So Hard (Summer Mini #7)
Sexual Health for Disabled Youth w/ Jill Arneson & Amanda Griffith-Atkins (Summer Mini #6)
Clinical Trials | Should I Enroll my Disabled Child in One? (Summer Mini #5)
How Time in Nature Impacts Disability Parents (Summer Mini #4)
Traveling with Disabled Kids Tips and Tricks (Summer Mini #3)
The Forgotten Fathers | To The Dads Who Hold It All Together w/ Lizzie (Summer Mini #2)
Summertime Feels, Disability Ed. (Summer Mini #1)
228: Season 13 Finale | Biggest Impacts, Hardest Listens, + A Special Guest
227: Abuse and Neglect Safeguards | Who We Can Trust + How to Protect Our Disabled Children
226: Should I Be Raising Awareness About My Child’s Diagnosis?
225: Schooling Options for Disabled Kids | Advocacy, Access + Emotional Toll of Navigating Tough Choices w/ Rachel Redmond
224: Emergencies & ER Visits | Making the Call, Coping with “What Ifs” + Survival Tips
208: Season 13 Kickoff | A New Theme + Sneak Peeks
223: Noelle’s Story | A Terminal Diagnosis, Making Decisions Without a Roadmap, + Longterm Advocacy
222: Intellectual Disabilities | Complicated Grief, Stigma, and Shifting Perspectives w/ Amanda Griffith-Atkins, Madeline and Alyssa
221: Equipment for Our Medically Complex Children | Grief, Gratitude, and Everything In Between
220: Robin’s Story | Preparing for the Worst, Staying Present, + Embracing a Different Type of Fatherhood
219: How Do I Handle Questions from Strangers About My Disabled Child? w/ Disabled Author James Catchpole (UPDATED)
218: Moms vs. Dads in the Medical System | Dismissal, Assumptions + the Cost of Not Being Trusted w/ Kyrie Herman
217: The NICU Experience | The Shock, Fear, and Emotional Rollercoaster of Navigating the Unknown w/ Madeline
216: Cindy's Story | Survival Mode, Unexpected Grief + Navigating Inclusion and Accessibility
215: Behaviors | Isolation, Guilt + Why It’s Not About “Control” w/ Annie and Katie
214: Relocation for Better Support | All the Factors to Consider + Complicated Decision-Making w/ Madeline
213: Deonna’s Story | A Childhood Injury & Stroke + Healing After Sudden Life Changes
212: Surgeries | The Feelings We Have Before, During, and After + How Families Cope w/ Madeline
211: Trachs & Vents | Fear, Hypervigilance, & Finding a New Normal w/ Ashley Caywood
210: Receiving Judgement for Disability Parent Decisions w/ Madeline
209: Kenya’s Story | When Lightning Strikes Twice + Trusting Your Instincts
208: Season 13 Kickoff | A New Theme + Sneak Peeks
207: Season 12 Finale | Switching Hosts, Behind the Scenes + A Unanimous Favorite
206: When Family Rejects Your Disabled Child + the Hurt it Causes w/ Madeline
TRL + The Power of Feeling Less Alone
The Holidays + Why They Can Be Tough for Disability Parents w/ Amanda Griffith-Atkins
205: Our Relationship With Our Child’s Medical Team w/ Madeline
Bonus: 2025 Check-in with Disability Parents | Anxiety, Heaviness, + Navigating Relationships in a Polarizing Climate w/ Madeline
204: Abbey's Story | An Ultra-rare Diagnosis, Shifting perspectives + Holding onto Faith
203: How to Strengthen Your Marriage When You’re Always in Survival Mode w/ Amanda Griffith-Atkins
202: All the Ways Our Marriages are Impacted by Disability Parenting
201: Roya's Story | A Diagnosis Without a Map, Learning to Advocate + the Journey Back to Herself
200: Facing End of Life Choices + The Way Life Changes After Child Loss w/ Stephanie Stanley
199: Adopting a Medically Complex Child w/ Kristen Henry
198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy
197: When Meaningful Friendship with Other Disability Parents Feels Elusive w/ Madeline Cheney
196: One & Done | Deciding Not to Have More Children After Disability
195: Ali’s Story | An Invisible Disability, Living in Survival Mode + Giving Up Her Dream Career
194: Kicking Off Season 12 | Episode Sneak Peeks + a BIG Announcement
When Therapists Leave | Feelings That Come Up + Knowing When It’s Time to Cut Ties
How To Talk To Kids About Disabilities
Inspired By Disabled Kids? What Feels Ok + What Feels Ick
Mixed Feelings When Your Child’s Health Stabilizes w/ Jessica Loey
Medicaid Cuts | Implications for Families Like Ours + What We Can Do About It
Groundhog Days, Gradual Changes, & Deep Family Ties | Marci’s Catch-Up
Dreams That Stir Up Grief
How Your Monthly Cycling Might Be Impacting Your Caregiving Experience w/ Suzi Boubion
Everything You’ve Ever Wanted to Know About Alyssa
Book Review: “How to Handle More Than You Can Handle” by Amanda Griffith-Atkins
Mindfulness for Medical Parents w/ Chrissy McGuire
192: Season 11 Finale | Poolside Chats with Texas ECI, Production Chaos, + Summer Mini Eps w/ Alyssa Nutile
191: Abortion + Parents of Disabled Kids w/ Alyssa Nutile
190: Colleen’s Story | Epilepsy, Brain Surgery, + Rage Hiking
189: Grief in Disability Parenting | What it is, Why It’s There, + How to Process It w/ Amanda Griffith-Atkins
Mini-episode: Why We Are Delaying Our Next Few Episodes w/ Alyssa Nutile
188: Belief Systems + Ways They’re Affected by Disability Parenting w/ Ali, Bethany, Melissa, and Rachel
187: Do You Miss Who You Used to Be Prior To Disability Parenting? w/ Alyssa Nutile
186: Leah’s Story | Faith, Nurturing Sibling Relationships, + NICU Boxes
BONUS: The Current Political Climate + How Disability Parents Feel About It w/ Alyssa Nutile
185: Medical Parent Trauma | Dealing with Triggers + Ongoing Trauma w/ Rosey Schaefermeyer, LCSW
184: Rachel’s Story | Widowed During Pregnancy, Misdiagnoses, + Sibling Dynamics
183: Epilepsy | Unpredictability + Emotional Toll it Takes on Parents w/ Hailey Adkisson
182: Hobbies for Disability Parents | Why We Need Them + How to Squeeze Them In w/ Amanda Griffith-Atkins
181: Kait’s Story | Fertility Struggles, A Surviving Twin, + “What Could Have Been”
180: Does Disability Parenting Ever Get Easier? Survival Mode, Burnout Mode, and Beyond w/ Erica Stearns and Alyssa Nutile
179: The Exhaustion of Being a Disability Parent w/ Alyssa Nutile
178: Jessica Fein’s Story |Adoption, a Progressive Disease, + The Illusion of Control
177: Kicking Off Season 11 | Episode + Fundraiser Sneak Peeks w/ Alyssa Nutile
Holiday Mini 6: Find Your Community in TRL Discussion Groups
Holiday Mini 5: The New Year for Disability Parents
Holiday Mini 4: 2024 for Medical Parents | Highs and Lows
Holiday Mini 3: The Silent Suffering | A Poem Reading + Discussion w/ Kara Berasi
Holiday Mini 2: Gift Giving Grief for Disability Parents w/ Amanda Griffith-Atkins
Holiday Mini 1: Boredom, G-Tubes, + Chatterboxes | What We’re Deeply Grateful For Because of Disability Parenting
176: Season 10 Finale | A Spicy Season, Sticker Club Tallies, + What’s Coming Next w/ Alyssa Nutile
SC Mini #3 | The Last Day of Sticker Club & What It Takes to Make One Episode of The Rare Life with Alyssa Nutile
175: Our Children’s Medical Trauma w/ Katie Taylor, CCLS
SC Mini #2 | Behind the Heart of a Listener and Supporter
174: A Case Against Silencing Disability Parents on Social Media w/ Alyssa Nutile
SC Mini #1 | Disability Parenting Book Recommendations w/ Amanda Griffith-Atkins
173: Everything You Need to Know About Sticker Club
172: Nikole’s Story | Diagnosis Misinformation + Never Giving Up
171: The Financial Strain of Medical Parenting w/ Amanda Griffith-Atkins + Alyssa Nutile
170: Hospitalizations | Triggers, Shoddy Sleep and Food, + Discharge Hangover w/ Alyssa Nutile and Larisa Bothma
169: Crunchy Medical Parenthood w/ Suzi Boubion and Julianna Morasse
168: Stephanie T.’s Story | Undiagnosed Son, a Ballroom + Fully Accepting the Now
167: What We Want New Medical Parents to Know w/ Chandra Bloomfield
166: Nonspeaking Child | Longing to Access Their Inner World + Give Them Medical Autonomy w/ Suzi Boubion