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All Episodes

The Rare Life — 310 episodes

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Title
1

New Launch: The NICU Survival Guide w/ Cindy Reinhard and Ashley Caywood (Summer Mini #10)

2

When You and Your Child are Both Medically Complex with Sarah (Summer Mini #9)

3

Single Medical Parenting w/ Danielle (Summer Mini #8)

4

Why Asking for Help Feels So Hard (Summer Mini #7)

5

Sexual Health for Disabled Youth w/ Jill Arneson & Amanda Griffith-Atkins (Summer Mini #6)

6

Clinical Trials | Should I Enroll my Disabled Child in One? (Summer Mini #5)

7

How Time in Nature Impacts Disability Parents (Summer Mini #4)

8

Traveling with Disabled Kids Tips and Tricks (Summer Mini #3)

9

The Forgotten Fathers | To The Dads Who Hold It All Together w/ Lizzie (Summer Mini #2)

10

Summertime Feels, Disability Ed. (Summer Mini #1)

11

228: Season 13 Finale | Biggest Impacts, Hardest Listens, + A Special Guest

12

227: Abuse and Neglect Safeguards | Who We Can Trust + How to Protect Our Disabled Children

13

226: Should I Be Raising Awareness About My Child’s Diagnosis?

14

225: Schooling Options for Disabled Kids | Advocacy, Access + Emotional Toll of Navigating Tough Choices w/ Rachel Redmond

15

224: Emergencies & ER Visits | Making the Call, Coping with “What Ifs” + Survival Tips

16

208: Season 13 Kickoff | A New Theme + Sneak Peeks

17

223: Noelle’s Story | A Terminal Diagnosis, Making Decisions Without a Roadmap, + Longterm Advocacy

18

222: Intellectual Disabilities | Complicated Grief, Stigma, and Shifting Perspectives w/ Amanda Griffith-Atkins, Madeline and Alyssa

19

221: Equipment for Our Medically Complex Children | Grief, Gratitude, and Everything In Between

20

220: Robin’s Story | Preparing for the Worst, Staying Present, + Embracing a Different Type of Fatherhood

21

219: How Do I Handle Questions from Strangers About My Disabled Child? w/ Disabled Author James Catchpole (UPDATED)

22

218: Moms vs. Dads in the Medical System | Dismissal, Assumptions + the Cost of Not Being Trusted w/ Kyrie Herman

23

217: The NICU Experience | The Shock, Fear, and Emotional Rollercoaster of Navigating the Unknown w/ Madeline

24

216: Cindy's Story | Survival Mode, Unexpected Grief + Navigating Inclusion and Accessibility

25

215: Behaviors | Isolation, Guilt + Why It’s Not About “Control” w/ Annie and Katie

26

214: Relocation for Better Support | All the Factors to Consider + Complicated Decision-Making w/ Madeline

27

213: Deonna’s Story | A Childhood Injury & Stroke + Healing After Sudden Life Changes

28

212: Surgeries | The Feelings We Have Before, During, and After + How Families Cope w/ Madeline

29

211: Trachs & Vents | Fear, Hypervigilance, & Finding a New Normal w/ Ashley Caywood

30

210: Receiving Judgement for Disability Parent Decisions w/ Madeline

31

209: Kenya’s Story | When Lightning Strikes Twice + Trusting Your Instincts

32

208: Season 13 Kickoff | A New Theme + Sneak Peeks

33

207: Season 12 Finale | Switching Hosts, Behind the Scenes + A Unanimous Favorite

34

206: When Family Rejects Your Disabled Child + the Hurt it Causes w/ Madeline

35

TRL + The Power of Feeling Less Alone

36

The Holidays + Why They Can Be Tough for Disability Parents w/ Amanda Griffith-Atkins

37

205: Our Relationship With Our Child’s Medical Team w/ Madeline

38

Bonus: 2025 Check-in with Disability Parents | Anxiety, Heaviness, + Navigating Relationships in a Polarizing Climate w/ Madeline

39

204: Abbey's Story | An Ultra-rare Diagnosis, Shifting perspectives + Holding onto Faith

40

203: How to Strengthen Your Marriage When You’re Always in Survival Mode w/ Amanda Griffith-Atkins

41

202: All the Ways Our Marriages are Impacted by Disability Parenting

42

201: Roya's Story | A Diagnosis Without a Map, Learning to Advocate + the Journey Back to Herself

43

200: Facing End of Life Choices + The Way Life Changes After Child Loss w/ Stephanie Stanley

44

199: Adopting a Medically Complex Child w/ Kristen Henry

45

198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy

46

197: When Meaningful Friendship with Other Disability Parents Feels Elusive w/ Madeline Cheney

47

196: One & Done | Deciding Not to Have More Children After Disability

48

195: Ali’s Story | An Invisible Disability, Living in Survival Mode + Giving Up Her Dream Career

49

194: Kicking Off Season 12 | Episode Sneak Peeks + a BIG Announcement

50

When Therapists Leave | Feelings That Come Up + Knowing When It’s Time to Cut Ties

51

How To Talk To Kids About Disabilities

52

Inspired By Disabled Kids? What Feels Ok + What Feels Ick

53

Mixed Feelings When Your Child’s Health Stabilizes w/ Jessica Loey

54

Medicaid Cuts | Implications for Families Like Ours + What We Can Do About It

55

Groundhog Days, Gradual Changes, & Deep Family Ties | Marci’s Catch-Up

56

Dreams That Stir Up Grief

57

How Your Monthly Cycling Might Be Impacting Your Caregiving Experience w/ Suzi Boubion

58

Everything You’ve Ever Wanted to Know About Alyssa

59

Book Review: “How to Handle More Than You Can Handle” by Amanda Griffith-Atkins

60

Mindfulness for Medical Parents w/ Chrissy McGuire

61

192: Season 11 Finale | Poolside Chats with Texas ECI, Production Chaos, + Summer Mini Eps w/ Alyssa Nutile

62

191: Abortion + Parents of Disabled Kids w/ Alyssa Nutile

63

190: Colleen’s Story | Epilepsy, Brain Surgery, + Rage Hiking

64

189: Grief in Disability Parenting | What it is, Why It’s There, + How to Process It w/ Amanda Griffith-Atkins

65

Mini-episode: Why We Are Delaying Our Next Few Episodes w/ Alyssa Nutile

66

188: Belief Systems + Ways They’re Affected by Disability Parenting w/ Ali, Bethany, Melissa, and Rachel

67

187: Do You Miss Who You Used to Be Prior To Disability Parenting? w/ Alyssa Nutile

68

186: Leah’s Story | Faith, Nurturing Sibling Relationships, + NICU Boxes

69

BONUS: The Current Political Climate + How Disability Parents Feel About It w/ Alyssa Nutile

70

185: Medical Parent Trauma | Dealing with Triggers + Ongoing Trauma w/ Rosey Schaefermeyer, LCSW

71

184: Rachel’s Story | Widowed During Pregnancy, Misdiagnoses, + Sibling Dynamics

72

183: Epilepsy | Unpredictability + Emotional Toll it Takes on Parents w/ Hailey Adkisson

73

182: Hobbies for Disability Parents | Why We Need Them + How to Squeeze Them In w/ Amanda Griffith-Atkins

74

181: Kait’s Story | Fertility Struggles, A Surviving Twin, + “What Could Have Been”

75

180: Does Disability Parenting Ever Get Easier? Survival Mode, Burnout Mode, and Beyond w/ Erica Stearns and Alyssa Nutile

76

179: The Exhaustion of Being a Disability Parent w/ Alyssa Nutile

77

178: Jessica Fein’s Story |Adoption, a Progressive Disease, + The Illusion of Control

78

177: Kicking Off Season 11 | Episode + Fundraiser Sneak Peeks w/ Alyssa Nutile

79

Holiday Mini 6: Find Your Community in TRL Discussion Groups

80

Holiday Mini 5: The New Year for Disability Parents

81

Holiday Mini 4: 2024 for Medical Parents | Highs and Lows

82

Holiday Mini 3: The Silent Suffering | A Poem Reading + Discussion w/ Kara Berasi

83

Holiday Mini 2: Gift Giving Grief for Disability Parents w/ Amanda Griffith-Atkins

84

Holiday Mini 1: Boredom, G-Tubes, + Chatterboxes | What We’re Deeply Grateful For Because of Disability Parenting

85

176: Season 10 Finale | A Spicy Season, Sticker Club Tallies, + What’s Coming Next w/ Alyssa Nutile

86

SC Mini #3 | The Last Day of Sticker Club & What It Takes to Make One Episode of The Rare Life with Alyssa Nutile

87

175: Our Children’s Medical Trauma w/ Katie Taylor, CCLS

88

SC Mini #2 | Behind the Heart of a Listener and Supporter

89

174: A Case Against Silencing Disability Parents on Social Media w/ Alyssa Nutile

90

SC Mini #1 | Disability Parenting Book Recommendations w/ Amanda Griffith-Atkins

91

173: Everything You Need to Know About Sticker Club

92

172: Nikole’s Story | Diagnosis Misinformation + Never Giving Up

93

171: The Financial Strain of Medical Parenting w/ Amanda Griffith-Atkins + Alyssa Nutile

94

170: Hospitalizations | Triggers, Shoddy Sleep and Food, + Discharge Hangover w/ Alyssa Nutile and Larisa Bothma

95

169: Crunchy Medical Parenthood w/ Suzi Boubion and Julianna Morasse

96

168: Stephanie T.’s Story | Undiagnosed Son, a Ballroom + Fully Accepting the Now

97

167: What We Want New Medical Parents to Know w/ Chandra Bloomfield

98

166: Nonspeaking Child | Longing to Access Their Inner World + Give Them Medical Autonomy w/ Suzi Boubion

99

165: What We Want Our Child’s Therapists to Know, But Don’t Tell Them w/ Alex Farha

100

164: Jillian’s Story | Medical Mom x 2 and the Saying “Someone Always Has It Worse”

101

Season 10 Kickoff | Episode Sneak Peaks, Newsletters + ISO a Final Board Member w/ Alyssa Nutile

102

Summer Mini #12: Adjusting to Disability Parenting as a Single Mom | Maddison’s Catch-Up

103

Summer Mini #11: Family Planning Decisions + Changing Sibling Relationships | Madeline’s Catch-Up

104

Summer Mini #10: Finding a New Home + Starting Over | Tiffany’s Catch-Up

105

Summer Mini #9: Our Complicated Relationship with Medically Complex Facebook Groups

106

Summer Mini #8: Rebuilding After Life-Changing Loss | Kari’s Catch-Up

107

Summer Mini #7: Everything You’ve Ever Wanted to Know About Madeline

108

Summer Mini #6: The Oddly Specific Things We Grieve as Parents of Medically Complex Kids

109

Summer Mini #5: Childhood Cancer + Changing Perspectives | Vanessa’s Catch-Up

110

Summer Mini #4: Birthdays for Our Medically Complex Kids and the Many Emotions They Can Bring Up

111

Summer Mini #3: A Close Call, Feelings of Regret + Embracing Second Chances | Suzi’s Catch-Up

112

Summer Mini #2: 10 Must-Haves for Traveling with Your Medically Complex Child This Summer

113

Summer Mini #1: What We Wish We Could Go Back and Tell Ourselves

114

162: Season 9 Finale | A Season of Growth, Listener Thoughts + Summer Mini-Episodes w/ Alyssa Nutile

115

161: Having a Nondisabled Child After Your Disabled Child + Conflicting Feelings That Brings w/ Brianna Alcox

116

160: Ashley Smith’s Story | Sibling Dynamics, Nontraditional Gender Roles, + Not Knowing What to Grieve

117

159: Sharing the Mental Load with Your Partner in Disability Parenting w/ Amanda Griffith-Atkins + Will Atkins

118

158: Serena’s Story | Disability Advocate Turned Disability Parent, a Degenerative Diagnosis, + the Power of Now

119

157: Friendships with People Who Don’t Have Disabled Kids w/ Jillian Arnold

120

156: Should I Get a Divorce? Insight + Solidarity from Divorced Medically Complex Parents w/ Amanda Griffith-Atkins

121

155: Aneesa’s Story | A Terminal Diagnosis + Dark Clouds and Silver Linings

122

154: Deaths in the Community | How it Affects Us + Our Relationship with the Parents w/ Rose Watson

123

153: Hurtful Things Loved Ones Say and Do | How it Affects Us + What to Do About It w/ Amanda Griffith-Atkins

124

152: Stephanie’s Story | A Stroke in Utero, Recurring Medical Trauma + No Space To Process It

125

151: Fostering Friendships with Other Disability Parents w/ Kate Livingstone and Kari Harbath

126

150: Siblings | Listening + Learning from Glass Children w/ Megan Schneider

127

Mini Episode: A Sprint to the Finish for Our Family and Friends Fundraiser!

128

149: Annie’s Story | Physician Mom, Infertility, + Comparison Between Twins

129

Mini Episode: An Exciting Update for Our Family and Friends Fundraiser!

130

148: The Family + Friends Perspective | What it’s Like to Watch us Navigate Life with Our Medically-Complex Children w/ Kassie Harbath

131

147: Sex + Disability Parenting | All the Ways It Takes a Hit + Ways to Reclaim It w/ Amanda Griffith-Atkins

132

146: The Dad Perspective w/ Derek Dizney, Zach Schneider, + Juston Cheney

133

145: Ashley’s Story | Childhood Dementia, An Ended Marriage, + Learning to Live in The Present

134

144: Season 9 Kickoff | This Season’s Theme, Our Friends + Family fundraiser, & a Sneak Peek of Upcoming Episodes w/ Alyssa Nutile

135

When Your Child is Inpatient at Hospital During Holidays or Special Events w/ Amanda Griffith-Atkins [REPLAY]

136

Isolating at Home During Holiday Events to Avoid Illness w/ Amanda Griffith-Atkins [REPLAY]

137

The Holidays + Why They Can Be Tough for Disability Parents w/ Amanda Griffith-Atkins [REPLAY]

138

143: Season 8 Finale | International Listeners, Frantic Behind-the-Scenes Work, and Surprising Popular Episodes w/ Alyssa Nutile

139

142: What If My Disabled Child Outlives Me? w/ Amanda Griffith-Atkins

140

141: How Our Faith + Spirituality Can Be Impacted by Our Experiences with Our Medically Complex Children (+ Visa Versa) w/ Ali, Bethany, Melissa, and Rachel

141

140: Alyssa’s Story | A Mistaken Brain Surgery, Rebuilding Trust in The Medical System, + A Life-Limiting Prognosis

142

139: In-Home Nursing | The Good, the Bad, + the Ugly w/ Caitlin Castro, Nicole Dennis + Brooke Teremi

143

138: Therapy 101 | Barriers Disability Parents Face + How to Receive This Much-Needed Care w/ Liz Spitzer, PhD

144

137: Life After Child Loss | What is Grief, How Does It Show Up, and What Can We Do About It? w/ Cole Imperi + Leah Deason

145

136: Bethany’s Story | Trach Life, Calloused to Trauma, + Making Space for Anger

146

135: Careers + Family Roles | The Ways They’ve Been Impacted by Disability Parenting + The Resentment We Feel w/ Amanda Griffith-Atkins, LCSW

147

134: Child Loss 101 | What to Expect, Decisions You Can (and should) Make Now + How to Make The End Of Your Child’s Life As Beautiful As They Are

148

133: Bek’s Story | Solo Medical Parenting, 13 Years of Living in Survival Mode + Grieving the Children She Dreamed of Having

149

132: When “Self-Care” Gives Us the Swears | the Inaccessibility of Self-Care + How to Redefine It w/ Amanda Griffith-Atkins, LMFT

150

131: Chronic Stress + Our Bodies | Ways Our Physical Health Takes the Hit w/ Amanda Griffith-Atkins, LMFT

151

130: Fearful of Child Loss | Anticipatory Grief + the Ways it Guts Us w/ Amanda Griffith-Atkins, LMFT

152

129: Maddison’s Story | A Delayed Diagnosis + Painful Comparisons

153

128: Season 8 Kickoff | a New Theme, Sneak Peeks of Brand-new Episodes + a 9-Month Secret Revealed w/ Brittany Steitz

154

Health Anxiety w/ Amanda Griffith-Atkins, LMFT (Rebroadcast)

155

To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way.” (Rebroadcast)

156

The Sibling Perspective w/ Katherine Acton (Rebroadcast)

157

Should A Child’s Disability be Part of Their Parent’s Identity? w/ Author Emily Ladau and Amanda Griffith-Atkins, LMFT (Rebroadcast)

158

The Parable of the Pain Scale | The Ways Bearing Witness to Our Children’s Suffering Calibrates Our Pain Scales to an Entirely Different Level w/ Libby Holley (Rebroadcast)

159

The Story of Claire (Rebroadcast)

160

Family Planning When You Have a Medically-Complex Child w/ Amanda Griffith-Atkins LMFT + 13 Special Guests (Rebroadcast)

161

It’s All My Fault (Rebroadcast)

162

Living with Sleep Deprivation w/ Jill Arneson (Rebroadcast)

163

Confessions of a NICU Nurse w/ Sam Keirsey, RN BSN (Rebroadcast)

164

127: Season 7 Finale + 3 Year Anniversary | How This Podcast Has Changed My Life w/ Juston Cheney

165

126: Therapies | When to Scale Back and How to Do So w/ Andrea Loveday-Brown and Larkin O’Leary

166

125: Tips and Tricks for Traveling with Disabled Kids w/ Alyssa Nutile

167

124: Suzy’s Story | Brain Injury, the Exhaustion of Living in Survival Mode, + Wondering If This Is the End

168

123: “Special Needs” + Why Parents Need to Drop the Term w/ Kari Harbath and Disability Activist Hannah Setzer (VOICEOVER)

169

123: “Special Needs” + Why Parents Need to Drop the Term w/ Kari Harbath and Disability Activist Hannah Setzer

170

122: 5 (Surprising) Things Parents Want Special Ed. Professionals to Know w/ Tiffany Goodchild

171

121: When Strangers “Just Ask” + How to Handle That w/ Disabled Author James Catchpole

172

120: Alexis’ Story | Epilepsy, Holland, + Suicidal Ideation

173

119: Your Child’s Medical Team | How to Push Back, Ask Questions, and Build Your Dream Team w/ Dr. Kelly Fradin, MD

174

118: Medical Organization Hacks | Supplies + Info + Appointment Scheduling

175

117: Trauma-versaries + Other Triggers to Our Medical Trauma w/ Hailey Adkisson and Madhura Katre

176

116: Kinda Obsessed | Celebrating Our Relationships with Our Children With Rare Conditions w/ 24 Parent-Contributors

177

115: Melanie Dimmitt’s Story | a Diagnosis Delivered in Bite Sizes + How It Started Vs. How It’s Going

178

114: Grieving Our Children’s Intellectual Disabilities + Facing Our Internalized Ableism w/ Marci Dunning

179

113: Blenderized Diets for Tubies | The Life-changing Health Benefits and How to Get Started w/ Cassie Krings and Hilarie Dreyer, RD

180

112: Abby’s Story | Skeletal Dysplasia, a Prenatal Diagnosis with Grim Hopes of Survival, + Ditching the Bubble Wrap

181

111: Season 7 Kickoff

182

110: When Your Child is Inpatient at the Hospital During Holidays w/ Amanda Griffith-Atkins

183

109: Isolating at Home During Holiday Events to Avoid Illness w/ Amanda Griffith-Atkins

184

108: The Holidays + The Ways They Can be Tough for Disability Parents w/ Amanda Griffith-Atkins

185

107: Season 6 Finale episode w/ Brittany

186

106: Respecting and Honoring Our Nonspeaking Children w/ Brianna Christian

187

105: Brianna’s Story | Regression, Finding Purpose, and a Nurse-Turned-Medical-Mom

188

104: Tangible Ways to Support Parents of Disabled Children | A Message for Our Loved Ones

189

103: Instilling Body Image Resilience in Children with Disabilities w/ Dr. Lexie Kite

190

102: Becoming a Single Medical Mom w/ Tiffany Pasillas

191

101: Tiffany’s Story | T18/Edward Syndrome + Advocating for Her Daughter’s Right to Live

192

100: Raising Awareness | Disabled People (and Their Parents) Do Not Owe Society Anything

193

99: Family Planning When You Have a Medically-Complex Child w/ Amanda Griffith-Atkins LMFT + 13 Special Guests

194

98: Siblings | Ways We Can Protect Our Glass Children w/ Melissa Schlemmer

195

97: Melissa Schlemmer’s Story | A Rare Disorder Affecting the Brain + Radical Acceptance

196

96: “All We Want Is a Healthy Baby” | How This Feels to Parents of Unhealthy Babies

197

95: The Parable of the Pain Scale | How Bearing Witness to Our Children’s Suffering Calibrates Our Pain Scales to an Entirely Different Level w/ Libby Holley

198

94: Family + Friends | How to Stay Close When You Feel Worlds Apart w/ Chelsea Denham

199

93: Chelsea’s Story | Airway Issues, a Dirty Baby, and Making Scary Medical Decisions

200

92: Season 6 Kickoff

201

Jess’ Story | A Twinless Twin and Something to Prove (Rebroadcast)

202

The NICU Experience | An Initiation into Medically-Complex Parenting (rebroadcast)

203

Effie’s Story | Siblings, Italy, and a Next-Level Laugh (rebroadcast)

204

What Your Child’s Doctors Want You to Know, But Don’t Tell You w/ Dr. Dominic Moore, MD (Rebroadcast)

205

Confessions of a Medical Mama w/ Anna Brown (Rebroadcast)

206

Medical Equipment| The Ultimate Hate/Love Relationship + How to Vacation With It All w/ Falesha Johnson (Rebroadcast)

207

It’s All My Fault (Rebroadcast)

208

It’s OK to be Angry w/ Orley Bills, LCSW (Rebroadcast)

209

When Your Mommy-Gut Is Alarming and The Doctors Won’t Listen w/ Tameka Diaz (Rebroadcast)

210

91: Season 5 Finale w/ Special Guest Brittany Steitz

211

90: Living with Sleep Deprivation w/ Jill Arneson

212

89: Gaslit by Others and Ourselves

213

88: Numbing Out When Things Are Tough w/ Anna Smyth, MS, RYT

214

87: Depression, Anxiety, + PTSD in Medically-Complex Parenting w/ Karley Henderson

215

86: Karley’s Story | Two Rare Syndromes, Playing the What-If Game, and Appointments on The Daily

216

85: Should A Child’s Disability be Part of Their Parent’s Identity? w/ Author Emily Ladau and Amanda Griffith-Atkins, LMFT

217

84: Grieving Our Child’s Medical Complexity w/ Carrie M. Holt

218

83: An Evolution of Faith w/ Kimberly Arnold, Part 2

219

83: An Evolution of Faith w/ Kim Arnold, Part 1

220

82: Kim's Story | Hard-Earned Awe, Mothering a Glass Doll, and a Brand-New Marriage Put to the Test

221

81: Health Anxiety w/ Amanda Griffith-Atkins, LMFT

222

80: Celebrating Our Children + Our Growth w/ Lexie Emory, Roya Malaekeh, Analy Navarro, Heather Cox, and Rayel Lockhart

223

79: Debilitating Guilt + the ‘You Break It, You Fix It’ Mentality w/ Wendy Hair

224

78: Wendy’s Story

225

77: To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way.”

226

76: Medical Mom Soul-Searching w/ Moira Cleary, CPC

227

75: My Journey as an Adoptive and Foster Medical-Mama w/ Sarah Yates

228

74: Sarah’s Story

229

73: Season 5 Kickoff

230

Announcement and Recommended Episode #7

231

Announcement and Recommended Episode #6

232

Announcement and Recommended Episode #5

233

Announcement and Recommended Episode #4

234

Announcement and Recommended Episode #3

235

Announcement and Recommended Episode #2

236

Announcement and Recommended Episode #1

237

72: Season 4 Finale

238

71: Confessions of a NICU Nurse w/ Sam Keirsey, RN BSN

239

70: Accessibility and Ableism w/ Vanessa McLeod

240

69: Vanessa’s Story

241

68: Dipping My Toes into Educational Advocacy

242

67: What Your Child’s Doctors Want You to Know, But Don’t Tell You w/ Dr. Dominic Moore, MD

243

66: Machine Dependency w/ Falesha Johnson

244

65: The Story of Cali

245

64: Improvement-triggered Grief

246

63: Medical Bills and Expenses w/ Gina Pola-Money

247

62: Hospitalizations w/ Erica Ryan

248

61: The Story of Westley

249

60: Blindness

250

59: Educational Advocacy + IEPs w/ Catherine Whitcher, M.Ed

251

58: Medical Advocacy w/ Tameka Diaz

252

57: The Story of Evely

253

56: Season 4 Kickoff

254

55: Season 3 Finale

255

54: Disabled Adult Perspective w/Erica Stearns

256

53: Diagnosis Jealousy w/ Kara Ryska

257

52: The Story of Levi

258

51: Isolation vs. Connection

259

50: The Sibling Perspective w/ Katherine Acton

260

49: The Story of Anna

261

48: Lifting the Curtain

262

47: Siblings w/ Katie Taylor, CCLS

263

46: Confessions of a Special-Needs Mama w/ Anna Brown

264

45: The Story of Emery

265

44: Inclusion in the Hearing Loss World

266

43: Emotional Safety in Marriage w/ Dr. Matt Townsend

267

42: Friendship + Inclusion w/ Effie Parks

268

41: The Story of Ford

269

40: Wendy + the Sibling Experience

270

39: Inclusive Children’s Books w/ Macy Gilson, Megan DeJarnett, and Jessica Parham

271

38: Social Media + SN Community w/ Jess Wolff

272

37: The Story of Lily

273

36: Rare Disease Day 2021, The Parent-Perspective

274

35: Season 3 Kickoff

275

34: Season 2 Finale

276

33: It’s OK to be Angry, w/ Orley Bills, LCSW

277

32: Self-Care w/ Jessica Patay

278

31: The Story of Ryan

279

30: You Are Exactly What Your Child Needs

280

29: Resilient Mindset w/ Claudia Taboada

281

28: Living with Grief w/ Anna Stanfield

282

27: The Story of Gilbert

283

26: The NICU Experience | An Initiation into Medically-Complex Parenting

284

25: EMDR Trauma Therapy w/ Rosey Schaefermeyer, LCSW

285

24: Disability Advocacy w/ Jenny McLelland

286

23: The Story of James

287

22: It’s All My Fault

288

21: Giving Back w/ Tara Docekal

289

20: Anticipatory Grief w/ Katie

290

19: The Story of Claire

291

18: Season 2 Kickoff

292

17: Season 1 Finale

293

16: Strategies to Support Selective Eaters w/ Kimberly Hirte, SLP

294

15: Communicating w/ a Nonverbal Child

295

14: The Story of Miller

296

13: Feeding Tube Adventures

297

12: 3 Fun Ways to Facilitate Language Development w/ Hearing Specialist Angie

298

11: Embracing Your Therapy and Medical Tribe w/ Kari Harbath

299

10: The Story of Sloan

300

9: 3 Tips for Taking Charge of Your Therapy and Medical Team

301

8: Advocating Using the FIG Method w/ Dr. Saperstein

302

7: Educating Others About Your Child’s Differences w/ Emily Young

303

6: The Story of Nora

304

5: A List of Diagnoses

305

4: You Are Not Your Child’s Therapist w/ Developmental Specialist Lisa Rawley

306

3: Quality of Life w/ Alyssa Reidhead

307

2: The Story of William

308

1: Season 1 Kick-Off

309

Preface: Kimball’s Origin Story and a Little More About TRL

310

Trailer: Sneak Peek into The Rare Life