All Episodes
Sarc Fighter: Living with Sarcoidosis and other rare diseases — 170 episodes
Episode 162 | Veteran Dan Frank talks about service in the Navy and Sarcoidosis
Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis!
Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing
Episode 159 | With Sarcoidosis half the battle is just getting to the doctor
Episode 158 | For Sarah Bishop it's an uphill battle with Sarcoidosis
Episode 157 | The Foundation for Sarcoidosis Research rises to the top
Episode 156 | Janet Mockovciak has tried everything to get her sarcoidosis under control
Episode 155 | Dr. Mark Mallozzi is researching a potential cause of Sarcoidosis
Episode 154 | 2025 Was a great year in the fight against Sarcoidosis
Episode 153 | A possible connection between Pulmonary Sarcoidosis and Lung Cancer
Episode 152 Basim Karim is fighting sarcoidosis while being HIV positive
Episode 151 | Dr. Thomas Leung is using skin research to unravel the mysteries of sarcoidosis
Episode 150 | Chris Cermak has hypercalcemia caused by sarcoidosis
Episode 149 | A look at Sarcoidosis from 20,000 feet and when to fire your doctor
Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
Episode 147 | The FMLA Clarification -- Part 1 Allowing patients to use FMLA to participate in clinical trials
Episode 146 | A solid dose of perspective and are sarcoidosis patients more likely to get kidney stones?
Episode 145 | Scarlett is the youngest sarc patient yet
Episode 144 | Cathleen Terrano dances on despite Sarcoidisis
Episode 143 | Why Sarc patients MUST exercise and the New FSR Patient Registry explained
Episode 142 | Dr. Courtney Montgomery is looking for the cause of Sarcoidosis.
Episode141| A tough patch for me and Royce Roberston rides for all of us.
Episode 140 | Getting your questions answered at the 2025 FSR Global Virtual Sarcoidosis Summit
Episode 139 | Dr. Sotonye Imadojemu talks about Sarcoidosis of the Skin.
Episode 138 | Katie Pantea had a hard time even remembering her neuro sarcoidosis
Episode 137 | Dr. Brandon Moss of the Cleveland Clinic talks neuro sarcoidosis
Episode 136 | A big Announcement for John and Sarah Bishop joins from halfway around the world to share her Sarcoidosis story.
Bonus Episode | Leaning in on equity in Clinical Trials
Episode 135 | April is Sarcoidosis Awareness Month!
Episode 134 | Dr. Ravi Karra of Duke University discusses his research on Cardiac Sarcoidosis and its causes.
Episode 133 | FSR funds new research and an email from New Zealand
Episode 132 | Dr. Arthur Yee on the history of sarcoidosis and a call out to rheumatologists everywhere
Episode 131| A well-designed and successfully conducted clinical trial with very clear negative results is the second-best outcome in drug development
Episode 130 | New Year, New Life.
Episode 129 | Karen Coleman is a dancer who had to slow her feet thanks to sarcoidosis
Episode 128 | A year of major accomplishments - and how you can help the Foundation for Sarcoidosis Research
Episode 127 | Mariza Löb Talks about her life with Cardiac Sarcoidosis
Episode 126 | When is Cardiac Sarcoisosis at its worst and FMLA clearance for clinical trials
Episode 125 | All about our session with the FDA as the Sarc community makes its case.
Episode 124 | FSR CEO Mary McGowan on how we are taking the sarcoidosis message to the FDA
Episode 123 | Stephanie Mizell is helping you beat Sarcoidosis while she struggles with her own sarc symptoms
Episode 122 | Lindsay Lawrence was a surfer until sarcoidosis pulled her under
Episode 121 | Wade Tomlinson needed a lung transplant
Episode 120 | Dr. Kamal Bharucha is a researcher who found himself a heartbeat away from real trouble
Episode 119 | Jessica Soules deals with Neurosarcoidosis
Episode 118 | Mark Steier -- Who wrote the Sarc Fighter theme song has an unpdate, and his wife Caeleigh goes long for FSR
Episode 117 | Renwick Brutus tried to write his own insurance policy. But sarcoidosis intervened.
Episode 116 | Xentria has a drug - XTMAB-16 that shows promise in fighting Sarcoidosis
Episode 115 | Sarc Fighter Andrea Maione has both sarcoidosis and long COVID. It's no party.
Episode 114 | Influencer Jonathan Carlin uses YouTube and other social media for an FSR Fundraiser
Episode 113 | Kinevant Sciences makes progress with its drug Namilumab
Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
Episode 110 | Walgreens is helping to fight Sarcoidosis
Episode 109 | Sarcoidosis has not been kind to Laura Runge-Gordon
Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
Episode 107 | Mark Simbrowsky has a racing heart. Even when he's sitting still.
Episode 106 | Rachelle DeMaria just wants to launch her life
Episode 104 | John Martin thought it was time to get his affairs in order.
Episode 103 | Closure. Why we need it and why sarcoidosis won’t give it to us.
Episode 102a | Sherron Fantauzzi Is fighting the good fight.
Episode 102 | Sherron Fantauzzi Is fighting the good fight.
Episode 101 | Andy Lacher has sarcoidosis in his lungs and his heart. Put he’s pushing on.
Episode 100 | John Mockovciak is a caregiver and philospher when it comes to Sarcoidosis
Episode 99 | How to meet NY Yankees great Bernie Williams, and FSR’s Manny Lozano on the power of the sarcoidosis community
Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
Episode 97 | Joel Rosen is fighting sarcoidosis and fighting for you at the same time.
Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cause!
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoidosis in perspective.
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc patients get a fair shake at transplant time?
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Guard.
Episode 92 | Researcher Dr. Stephen Tilley on where we got sarcoidosis
Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.
Episode 90 | Mathew Campbell ’s Sarc went from his lungs to his heart. And FSR Crystal Gala highlights
Episode 89 | What does your DNA have to do with Sarcoidosis? An FSR Town Hall.
Episode 88 | MaryKay Reidenbach has been fighting the fight for 28 years.
Episode 87 | Writer Rebeccca Stanfel on the Pain from Sarcoidosis and Legitimate Need for Opioids.
Episode 86 | Betsy Bennett beat breast cancer - but Sarcoidosis arrived shortly after.
Episode 85 | An FSR Town Hall - Getting closer to the first ever drug designed to fight Sarcoidosis
Episode 84 | A patient story to go along with Sarcoidosis Awareness month and how FSR is leading the fight.
Episode 83 | Tony Haskel thought his heart was healthy. Then came Sarcoidosis.
Episode 82 | Sam Wassel’s unexplained abdominal pain was sarcoidosis - plus Cycle4Sarc goes public
Bonus Episode | FSR Town Hall - Uncovering the Future of Sarcoidosis Treatment and Clinical Trials
Episode 81 | Wade Tomlinson tries to walk away from sarcoidosis.
Episode 80 | John riffs on sarcoidosis clinical trial opportunities and ... Disney
Episode 79a | Royce Robertson is Fighting Sarcoidosis from the seat of his bike!
Episode 79 | Sarc Fighter Royce Robertson bares his sole while looking for a way to help fight Sarcoidosis
Episode 78 | Dr. John Belperio at UCLA has done a deep dive into the state of Sarcoidosis.
Episode 77 | Covid Vaccines and Sarcoidosis: Surprising new research from the University of Illinois Chicago
Episode 76 | Leeanne West is a scientist who discovered Sarcoidosis in her own life.
Episode 75 | FSR Leaders Dr. Louise Perkins and CEO Mary McGowan on all the current progress.
Episode 74 | A Doctor and Two Sarc Fighters Urge Black Americans to Join Clinical Trials
Episode 73 | FSR is looking for a few good volunteers. Maybe you.
Episode 72 | Sarc Fighter Regina Gordon shares her battle.
Episode 71 | Andrew Brandt is fighting back - for all of us.
Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.
Episode 69 | Kinevant Sciences is researching namilumab – a potential new drug for sarcoidosis
Episode 68 | Profound thoughts from a dying man.
Episode 67 | Kristi Hedge begins her sarcoidosis journey.
Episode 66 | Unveiling Possibilities - All about the upcoming Sarcoidosis Summit from the Foundation for Sarcoidosis Research
Episode 65 | aTyr Pharma is getting closer to a potential breakthrough in treating Sarcoidosis
Episode 64 | The Leadership Team at the Foundation for Sarcoidosis Research with an exciting announcement!
Episode 63 | The birds and finding contentedness
Episode 62 | Garrie Farrow had troubles wearing her cute shoes. The problem was in her lungs.
Episode 61 | Expectations and Happiness with Sarcoidosis
Episode 60 | Jack Boepple’s cardiac sarcoidosis hit him like a linebacker. And he would know.
Episode 59 | Angelica wants to know how her grandmother died.
Episode 58 | Time to get ready for Sarcoidosis Awareness Month!
Episode 57 | Sarc Patient Robin Goble has lost her balance, but she’s fighting to keep her life upright.
Episode 56 | Dr. Shu-Yi Liao wants to know how sarcoidosis moves in the body.
Episode 55 | Erica Courtenay-Mann Has Sarcoidosis on her Vocal Cords. But she is speaking out!
Bonus Episode | Universal Barriers in Dealing with a Chronic Disease: A Sarcoidosis Perspective
Episode 52 | Dr Divya Patel and Novartis are looking for a few good Sarc patients
Episode 54 | Calvin Harris’ lungs are clogged with Sarcoidosis -- but he wants to run a marathon.
Episode 53 | Reasons for hope in the fight against Sarcoidosis in 2022
Episode 51 | Amy Whaley fights on through a life that was different than she imagined.
Episode 50 | Warren Robinson‘s father died suddenly. And the family struggled to find out why.
Episode 49 | Adam Bernardi has sarc in all the wrong places.
Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis specialist with a unique approach to fighting the disease
Episode 47 | Women of Color Fight Back!
Episode 46 | Lisa Pflug is early in her journey with neurosarcoidosis, but already suffering the effects.
Episode 45 | Fantastic results from trial of new sarcoidosis drug from aTyr Pharma
Episode 44 | Brandi Cleaver faces down what may be a terminal case of sarcoidosis.
Episode 43 | Joe McCorry has been fighting Sarcoidosis for a long, long time.
Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
Episode 41| Dr. Matt Baker is researching a promising new drug to fight sarc at Stanford University.
Episode 40 | Writer Rebecca Stanfel is bringing the sarcoidosis message to the masses. And, man, does she know the story.
Episode 39 | Dr. William Damsky may be on the verge of a sarcoidosis breakthrough.
Episode 38 | Sarcoidosis is world wide. How they fight it in the UK
Episode 37 | Sarc Fighter Charlton Harris is having a hard time breathing. A REALLY hard time.
Bonus Episode | Sarcoidosis and COVID-19 Presented by the Foundation for Sarcoidosis Research
Episode 36 | Sarc Fighter Janet Mockovciak is giving it her all.
Episode 35 | Nadia Silvera may need a double lung transplant. Thanks sarcoidosis.
Bonus Episode | Sarcoidosis Town Hall: Is Prednisone "Poison?" presented by the Foundation for Sarcoidosis Research
Episode 34 Lindsey Norenberg on how to eat to beat inflammation.
Episode 33 | John Riffs on an encounter with a Doc who is not Sarc Aware!
Episode 32 | April is Sarcoidosis Awareness month! Tricha Shivas tells us how to fight back!
Episode 31 | Susan Bassi's Life slowed to a crawl when Sarcoidosis made its appearance.
Episode 30 Kevin McDevitt's sarcoidosis spread from his finger ... to his heart!
Episode 29 Susie Torres fights for diagnosis as she battles Sarc and other illnessess. And - I explore the anti-inflammatory Elimination Diet
Episode 28 Sarc Fighter Andrena Johnson is making a Sacroidosis Documentary
Episode 27 Diet and CBD - Can they be effective? Ryan Norenberg offers proof.
Episode 26 Amy Cobb is a Nurse Practitioner treating COVID Patients - And Fighting Sarcoidosis in Her Own Body.
Episode 25 Tracy Bawtinheimer was a world traveling executive until...
Episode 24 Sarc Fighter Frank Rivera fights long Covid-19
Episode 23 Even doctors can get sarcoidosis. Taufiq Ahmad shares the story of his decline.
Episode 22 Meet Mary McGowan the new CEO of the Foundation for Sarcoidosis Research
Episode 21 Why Sarc is more prevalent in women with Ozioma Chioma PhD
Episode 20 Mark Landiak was hiking the Grand Canyon, when ...
Episode 19 Desiree was a cover girl for health ... until.
Episode 18 Want to Feel Better? Mindy Buchanan talks today about the November FSR Summit and how it will help.
Episode 17 aTyr Pharma CEO Sanjay Shukla talks about how a new drug could be the answer for many sarc fighters!
Episode 16 Mary Morlino Fights Back After Sarc Knocks Her Down!
Episode 15 Reg Alexander Needed a New Heart
Episode 14 Barbara Mouradian Fights a two front battle with Sarc and still swims with sharks!
Episode 13 Angela Frelander talks about how you can help fight Sarcoidosis
Episode 12: Mark Steier sings the song of Sarcoidosis and tells his own sarc story.
Episode 11 Andrea and Reading Wilson -- Founders of the Foundation for Sarcoidosis Research
Episode 10 Kerry Wong Talks about how sarc stole her life
Bonus Podcast: Roundtable discussion on Sarcoidosis Associated Pulmonary Hypertension from Madrid, Spain
Episode 9 COVID-19 & Sarcoidosis: What are the real risks? First data with Dr. Robert Baughman
Episode 8 Patient Bob Gross tells his sarcoidosis story and more on sarc & COVID-19
Episode 7 My Methotrexate issues and Cheryl Bradford tells her sarcoidosis story
Episode 6 The Threat from COVID-19 with Jim Kuhn and Mindy Buchanan
Episode 5 Chasta Posey tells her Sarcoidosis story from blindness to finding a path to positivity
Episode 4 Maggie Hudson of FSR on how we are fighting sarcoidosis
Episode 3 Patient Frank Rivera bares his soul.
Episode 2 All About Sarcoidois with Dr. Simon Hart
Episode 1 My Sarcoidosis Story
Sarc Fighter Trailer