All Episodes
The Rare Life — 315 episodes · page 3 of 4
93: Chelsea’s Story | Airway Issues, a Dirty Baby, and Making Scary Medical Decisions
92: Season 6 Kickoff
Jess’ Story | A Twinless Twin and Something to Prove (Rebroadcast)
The NICU Experience | An Initiation into Medically-Complex Parenting (rebroadcast)
Effie’s Story | Siblings, Italy, and a Next-Level Laugh (rebroadcast)
What Your Child’s Doctors Want You to Know, But Don’t Tell You w/ Dr. Dominic Moore, MD (Rebroadcast)
Confessions of a Medical Mama w/ Anna Brown (Rebroadcast)
Medical Equipment| The Ultimate Hate/Love Relationship + How to Vacation With It All w/ Falesha Johnson (Rebroadcast)
It’s All My Fault (Rebroadcast)
It’s OK to be Angry w/ Orley Bills, LCSW (Rebroadcast)
When Your Mommy-Gut Is Alarming and The Doctors Won’t Listen w/ Tameka Diaz (Rebroadcast)
91: Season 5 Finale w/ Special Guest Brittany Steitz
90: Living with Sleep Deprivation w/ Jill Arneson
89: Gaslit by Others and Ourselves
88: Numbing Out When Things Are Tough w/ Anna Smyth, MS, RYT
87: Depression, Anxiety, + PTSD in Medically-Complex Parenting w/ Karley Henderson
86: Karley’s Story | Two Rare Syndromes, Playing the What-If Game, and Appointments on The Daily
85: Should A Child’s Disability be Part of Their Parent’s Identity? w/ Author Emily Ladau and Amanda Griffith-Atkins, LMFT
84: Grieving Our Child’s Medical Complexity w/ Carrie M. Holt
83: An Evolution of Faith w/ Kimberly Arnold, Part 2
83: An Evolution of Faith w/ Kim Arnold, Part 1
82: Kim's Story | Hard-Earned Awe, Mothering a Glass Doll, and a Brand-New Marriage Put to the Test
81: Health Anxiety w/ Amanda Griffith-Atkins, LMFT
80: Celebrating Our Children + Our Growth w/ Lexie Emory, Roya Malaekeh, Analy Navarro, Heather Cox, and Rayel Lockhart
79: Debilitating Guilt + the ‘You Break It, You Fix It’ Mentality w/ Wendy Hair
78: Wendy’s Story
77: To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way.”
76: Medical Mom Soul-Searching w/ Moira Cleary, CPC
75: My Journey as an Adoptive and Foster Medical-Mama w/ Sarah Yates
74: Sarah’s Story
73: Season 5 Kickoff
Announcement and Recommended Episode #7
Announcement and Recommended Episode #6
Announcement and Recommended Episode #5
Announcement and Recommended Episode #4
Announcement and Recommended Episode #3
Announcement and Recommended Episode #2
Announcement and Recommended Episode #1
72: Season 4 Finale
71: Confessions of a NICU Nurse w/ Sam Keirsey, RN BSN
70: Accessibility and Ableism w/ Vanessa McLeod
69: Vanessa’s Story
68: Dipping My Toes into Educational Advocacy
67: What Your Child’s Doctors Want You to Know, But Don’t Tell You w/ Dr. Dominic Moore, MD
66: Machine Dependency w/ Falesha Johnson
65: The Story of Cali
64: Improvement-triggered Grief
63: Medical Bills and Expenses w/ Gina Pola-Money
62: Hospitalizations w/ Erica Ryan
61: The Story of Westley
60: Blindness
59: Educational Advocacy + IEPs w/ Catherine Whitcher, M.Ed
58: Medical Advocacy w/ Tameka Diaz
57: The Story of Evely
56: Season 4 Kickoff
55: Season 3 Finale
54: Disabled Adult Perspective w/Erica Stearns
53: Diagnosis Jealousy w/ Kara Ryska
52: The Story of Levi
51: Isolation vs. Connection
50: The Sibling Perspective w/ Katherine Acton
49: The Story of Anna
48: Lifting the Curtain
47: Siblings w/ Katie Taylor, CCLS
46: Confessions of a Special-Needs Mama w/ Anna Brown
45: The Story of Emery
44: Inclusion in the Hearing Loss World
43: Emotional Safety in Marriage w/ Dr. Matt Townsend
42: Friendship + Inclusion w/ Effie Parks
41: The Story of Ford
40: Wendy + the Sibling Experience
39: Inclusive Children’s Books w/ Macy Gilson, Megan DeJarnett, and Jessica Parham
38: Social Media + SN Community w/ Jess Wolff
37: The Story of Lily
36: Rare Disease Day 2021, The Parent-Perspective
35: Season 3 Kickoff
34: Season 2 Finale
33: It’s OK to be Angry, w/ Orley Bills, LCSW
32: Self-Care w/ Jessica Patay
31: The Story of Ryan
30: You Are Exactly What Your Child Needs
29: Resilient Mindset w/ Claudia Taboada
28: Living with Grief w/ Anna Stanfield
27: The Story of Gilbert
26: The NICU Experience | An Initiation into Medically-Complex Parenting
25: EMDR Trauma Therapy w/ Rosey Schaefermeyer, LCSW
24: Disability Advocacy w/ Jenny McLelland
23: The Story of James
22: It’s All My Fault
21: Giving Back w/ Tara Docekal
20: Anticipatory Grief w/ Katie
19: The Story of Claire
18: Season 2 Kickoff
17: Season 1 Finale
16: Strategies to Support Selective Eaters w/ Kimberly Hirte, SLP
15: Communicating w/ a Nonverbal Child
14: The Story of Miller
13: Feeding Tube Adventures
12: 3 Fun Ways to Facilitate Language Development w/ Hearing Specialist Angie
11: Embracing Your Therapy and Medical Tribe w/ Kari Harbath