Two Disabled Dudes cover art

All Episodes

Two Disabled Dudes — 307 episodes

#
Title
1

300 - Season Finale: 300 Episodes Rooted in Connection

2

299 - Building Hope From Broken Systems

3

298 - Invisible Illness, Unbreakable Bond: Part 2

4

297 - Invisible Illness, Unbreakable Bond: Part 1

5

296 - Support That Meets You Where You Are

6

295 - Pushing Harder Isn’t Always the Answer

7

294 - Finding Your People Without Losing Yourself

8

293 - Rare Disease Day: This is What Advocacy Looks Like

9

292 - The Hidden System Behind Rare Disease Treatments

10

291 - Taking on the World’s Longest Stairway

11

290 - Don’t Suffer Twice

12

289 - Re-release: From Dad to Advocate to CEO

13

288 - Choosing to Smile Even When it's Hard

14

287 - The Fine Line Between Hope and Denial

15

286 - Grateful. Angry. Both.

16

285 - Knowing When to Stop: Disability, Limits, and Letting Go

17

284 - What Achievement Asks Of Us

18

283 - Disability Advocacy in Work and Travel

19

282 - Adapt the Plan, Not the Dream

20

281 - Pixels With Purpose - Ben Forred

21

280 - Is Accessibility Really About Access… or Attitude?

22

279 - 2DD LIVE: The Power of Owning Your Disability

23

278 - Mic Trouble, a Gift Card, and Streaking on a Cruise Ship

24

277 - Season Finale - Gratitude, Growth, and Dog Poop DNA

25

276 - World Domination…With a Twist of Kindness

26

275 - A Soft Blanket and a Bold Mission

27

274 - When Compassion Leads the Play: Inside Uplifting Athletes

28

273 - Letting Go of One Dream to Discover a Thousand More

29

272 - Bridging Worlds: Empowering Patients and Transforming Trials

30

271 - Rae of Hope: The Power of Inclusion

31

270 - RDD 2025 with Jett Foundation: "Disability Doesn’t Define Us!"

32

269 - Red Pandas, Wheelchairs, and the Courage to Say “This Sucks”

33

268 - Energy Management: How Not to Become a Pile of Poop by 6 PM

34

267 - Life After Diagnosis: The Power of Humor, Resilience, and Letting Go

35

266 - Spreading the Word, Saving Lives: Key Insights from ACD

36

265 - Holding Onto Hope Without Letting Go of Today

37

264 - A Mother's Journey with CTNNB1 Syndrome and her Family's Path to Inclusivity

38

263 - The Surprising Truth About Independence

39

262 - Do Our Resolutions Reveal Our Age?

40

261 - Season 13 Begins: Travel, Community, & Vacation Prep

41

260 - Our Perceptions of Disability Were Wrong

42

259 - If Sean & Kyle Won The Election

43

258 - Navigating Setbacks: 4 Tips for Gaining Momentum

44

257 - Journey to the World's Highest Road, Part 2

45

256 - Journey to the World’s Highest Road, Part 1

46

255 - Season Finale - We’re Riding the World’s Highest Road

47

254 - From Dad to Advocate to CEO: John Crowley's Continued Commitment

48

253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases

49

252 - NFL Plans Crushed, His Response Changes Lives

50

251 - From Canes to Canines: Linda's Path to Mobility

51

250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation

52

249 - 20 Years in the Making: REATA's Story of Skyclarys

53

248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer

54

247 - Tenacity and the Power of Persistence

55

246 - Empowering Accessibility, One Review at a Time

56

245 - Settle or Soar? Embracing Uncertainty

57

244 - Change & Consistency with Progressive Disease

58

243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum

59

242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment

60

241 - Feeling Helpless? Here Are 4 Ways To Help

61

240 - Adapting to Life's Curveballs

62

239 - Season Premier - Are You a Doer or a Talker?

63

238 - Season Finale - The Dynamics of Friendship

64

237 - The Vital Role of Caregivers in Rare Disease Advocacy

65

236 - A Mom's Perspective on Devastation and Gratitude

66

235 - Addressing the Epidemic of Wheelchair Damage by Airlines

67

234 - World Duchenne Awareness Day - Jett Foundation

68

233 - Should Disability Heighten Our Sense of Responsibility?

69

232 - Can Rare Disease Create Heroes?

70

231 - Speak Up, Stand Out: Silence is Not Advocacy

71

230 - Navigating Mental Illness: Parent Stories

72

229 - Exercise and Motivation: Challenges of Disability

73

228 - Podcasting Insights and Reflections

74

227 - Pushing Boundaries: A Blind Athlete's Story

75

226 - Navigating Disability & Long-term Relationships

76

225 - From Preterm to Pediatrician: Tyler's Triumph with CP

77

224 - The Power of the Patient Voice - BIO International

78

223 - Attitudes Can Change - Let's Talk Debra

79

222 - Is Technology Good or Bad? Yes.

80

221 -Disability & Fun Can Coexist

81

220 - Season Finale - How Much is Too Much?

82

219 - Physical Therapy Goals with Dr. Gretchen Hawley

83

218 - Accessibility: Inconvenient or Impossible?

84

217 - Are Disabled Students Forgotten On University Campuses?

85

216 - The Emotional Response To Research

86

215 - Birthday Parties Can Be Tough with Guest Host: Effie Parks

87

214 - Inspiration Porn - Are We Part of the Problem?

88

213 - Why is Government so HARD?

89

212 - Wheelchairs: If You Help, This is For You

90

211 - Thriving with Duchenne, RDD 2023

91

210 - Death and Sex - Buckle Up!

92

209 - How A Mom Launched The First Drug Approval in FA

93

208 - Is There a Wrong Way?

94

207 - Asking For Help: Pride vs. Practicality

95

206 - Why Authenticity Matters at Home & Work

96

205 - Finally, A Dating App For People With Disability

97

204 - What If Kindness Isn't The Answer?

98

203 - Reason vs Excuse: It's Up To You

99

202 - Addressing Independence and Accessibility with Rare Disease

100

201 - How Does Positivity Become Toxic?

101

200 - State of the Podcast and A Few Favorite Moments

102

199 - RAVE: A Principle Everyone Ought to Consider

103

198 - What's Your CanDo Story?

104

197 - Looking for the Pause Button on Friedreich's Ataxia

105

196 - Two Disabled Slackers

106

195 - Leveraging Crypto for Rare Disease - Vibe Bio CEO, Alok Tayi

107

194 - Taking It Personally May Hold You Back

108

193 - Accessibility Matters, Air Travel Is Not Exempt

109

192 - Life's Short, Live With Intention

110

191 - A Mother Who Never Stops

111

190 - Our Reactions Determine Our Outcomes

112

189 - LIVE at Chan Zuckerberg Initiative Rare As One

113

188 - Dealing With Disability Among Friends

114

187 - Life Lessons From the Bike Trail

115

S8 - Catching Up with The Dudes

116

185 - Season Finale - Nothing Stays the Same

117

184 - Thriving With Duchenne - Jett Foundation

118

183 - Doing The Right Thing with James Mackay, CEO Aristea Tx

119

182 - Comparing Ted Lasso to Reality with Heidi Behr, LCSW

120

181 - Every Person Matters with Tom Hamilton

121

180 - The Not So Dark Side with Amy Grover

122

179 - Keep Your Eye On The Ball

123

178 - Man Turning Into Stone - Joe Sooch

124

177 - The only thing to fear is...

125

176 - Rare Disease Symptoms - The Devil You Know

126

175 - Making Noise About Hemophilia

127

174 - The Dudes with Squirmy and Grubs

128

173 - Don't be Weird - Ennis Rook Bashe

129

172 - Rare Disease is Complicated but There's Reason for Hope

130

171 - What if Everyone Is Disabled?

131

170 - What's Your Strategy?

132

169 - Season Finale - NO REGERTS!

133

168 - 2DD Forum: CureDuchenne FUTURES Conference 2021

134

167 - Peace of Mind with Mobility Roadside Assistance

135

166 - Ultra Rare Drugs at No Cost to the Patient - Stan Crooke

136

165 - Coaching for Rare and Chronic Conditions - Denise Archilla

137

164 - Mental Health: Why Talking About the Tough Stuff Takes the Weight off

138

163 - Actor, Producer, Person - Patrick James Lynch

139

162 - Superheroes With Once Upon a Gene

140

161 - Men's Mental Health in Rare Disease With David Ross

141

160 - Money Talks With the Dudes

142

159 - Patient Pioneers in Gene Therapy with AVROBIO

143

158 - 2DD Forum With The Marfan Foundation

144

157 - Letters to the Younger 2DDs

145

156 - Using Technology to Improve Accessibility

146

155 - How We Describe the Challenges of Disability

147

154 - SMA Awareness with Nick Sinagra

148

153 - NTSAD Annual Family Conference

149

152 - How Do You Use Your Influence?

150

151 - Season Premier: Pandemic Observations

151

150 - Drugs, Turning 40 & The Future

152

149 - An Elvis Presley Tribute Artist with Autism

153

148 - Why Sean Hates His Gym

154

147 - DD pt5: My view: Patients Get Medicine at Lowest Cost Possible - Tim Walbert

155

146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials

156

145 - DD pt3: Pre-clinical & Tacos

157

144 - DD pt2: Do Good and...with John Crowley

158

143 - DD pt1: Half a BILLION Dollars!?

159

142 - Rare Disease in India

160

141 - Rude or Cooperative?

161

140 - A Sister's Perspective on Bullying

162

139 - Where The Hell Are The Instructions?

163

138 - We Only Have One Life to Live

164

137 - Rare Disease Day Special with Psychologist Dr. Al Freedman

165

136 - When It Hits The Fan - Part 1

166

136 - When it Hits The Fan - Part 2

167

135 - Goals Don't Accomplish Themselves

168

134 - Our Wants vs. Our Don't Wants

169

133 - Season 5 Premiere - What do You Want out of Life?

170

132 - 2DD Forum with the XLH Network

171

131 - 2DD Forum at Ultragenyx Rare Family Day

172

130 - Season 4 Finale - More 2DD Grievances

173

129 - She Created What She Needed - Effie Parks

174

128 - Addressing Rare Disease Mental Health - Psychologist Al Freedman

175

127 - Does Disability Force Premature Decisions?

176

126 - I'm Fine, Thanks - Chris Doveton

177

125 - "I know you're drunk, buddy"

178

124 - Walk in My Shoes - A Journey With Cystinosis

179

123 - Why Do We Keep Our True Selves Hidden?

180

122 - Red Tape is Easier With Help

181

121 - How to Join the rideATAXIA Global Challenge

182

120 - What is Alport Syndrome? - Kevin Schnurr

183

119 - Are You Messy Like Kyle or Neat Like Sean?

184

118 - How We Can Serve the Community Through Google's Project Euphonia - Bob MacDonald

185

117 - What does Team Gleason have in Common with Google?

186

Bonus Conversation With Friends!

187

116 - What would you change about yourself if you could?

188

115 - Leading the VEDS Movement - Katie Wright

189

114 - Don't Judge a Dude by his Wheelchair

190

113 - How do we Define Each Other?

191

112 - Season Finale - Different Reactions to Coronavirus

192

111 - Copiing in Times of Uncertainty with Team Amicus

193

110 - How Rare Diseases Impact Carriers - Taylor Kane

194

109 - Hawk's Eye View on Duchenne MD - Hawken Miller

195

108 - #QuarantineLife

196

107 - Patient focused Drug Development - James Valentine

197

106 - No Arms, no Legs, no Problem - Gabe Adams

198

105 - The Dudes Vent

199

104 - His Brain Injury Created a New Mindset

200

103 - Giving Back After Spinal Cord Injury

201

102 - Four Tips for Making Decisions

202

101 - Funding Research One Cookie at a Time

203

100 - Jeremy Cowart

204

099 - The Scarcity Mindset

205

098 - The Pharma/Patient Relationship - Opportunities to Improve - Andra Stratton

206

097 - A life of Ehlers Danlos Advocacy - Lara Bloom

207

096 - Owning up to your shortcomings

208

095 - Season 2 Finale - Are you Determined or Stubborn?

209

094 - 2DD Update on 2019 Goals

210

093 - Online Dating for People With a Disability

211

092 - Why Humor is Essential with Dr. David Fajgenbaum

212

091 - Chasing Our Cure with Dr. David Fajgenbaum

213

090 - LIVE at the 2019 Global Genes RARE Patient Advocacy Summit

214

089 - Creating Community for Young Adults with Our Odyssey

215

088

216

087 - Conquering White Mountain

217

086 - How to Gain Control Over Life - Kipp Wesslen

218

085 - Beyond the Finish With the Pease Brothers

219

084 - How to Stop Limiting Yourself

220

083 - Reasons to Push Your Limits

221

082 - What are you proud of? - Muffy Ritz

222

081 - Be Yourself - LIVE at Amicus Therapeutics

223

080 - Accountability is the key to getting stuff done (GSD)

224

079 - Cindy Kolbe Interview

225

078 - South Dakota

226

077 - Thriving Blind with Kristin Smedley

227

076 - Our Moms

228

075 - The Relationship Between the Patient and the Scientist

229

074 - Jeff Bell Part 2 - Adversity to Advocacy

230

073 - Jeff Bell Part 1 - Adversity 2 Advocacy

231

072 - Reasons Versus Excuses

232

071 - Photos from the first part of 2019

233

070 - Rob Long

234

069 - Things We Like

235

James Miller | Lifeology

236

067 - He's an Athlete No Matter the Circumstance - Glenn Hartrick

237

066 - Death March for Ataxia with Mike De Rosa

238

064 Official - Hasan Banks

239

065 - Can of Worms

240

Grievances with the Dudes

241

062 - Only You Have the Power to Destroy Your Life - Gabriel Cordell

242

061 - Just Do It!

243

060 - Mind Games and Disability

244

Two Dudes' Goals for 2019

245

058 - 2018 Year Review

246

057 - The Nomadic Dreamer

247

056b - Australia Researcher Q&A

248

056a - AUS Intro Story

249

Exploring Life Transitions with Kyle and Sean

250

054 - Travis Flores

251

053 - Nutrition with Shana and Donna

252

052 - Surviving Sepsis Unshattered with Carol Decker

253

051 - PR with Heather Burgett

254

050.Kyle - Sean Interviews Kyle

255

050.Sean - Kyle Interviews Sean

256

049 - Little Levi & Miracle Flights

257

048 - Rare Disease Advocate Luke Rosen, KIF1A.org

258

047 - Barry Rice, Cycle Ataxia

259

046 - A conversation With the Dudes

260

045 - sick Chick Shira Strongin

261

044 - Francisco Sanchez - A Doctor With SCI Paying it Forward

262

043 - Nic Noviki - Easterseals Disability Film Challenge

263

042 - On Being Savage with Les Ballard

264

041 - Spring Cleaning of the Mind

265

040 - Breaking the Paralyzed Paradigm, with Arash Bayatmakou

266

How to Ward Off Decrepitude

267

038 - Ilana Jacqueline

268

037 - RDW Panel For The Ataxian

269

036 Patient engagement live at Reata

270

LIVE at Reata Pharmaceuticals

271

Katie Stevens President, Dyskeratosis Congenita Outreach (DCO)

272

033 - Steps to Bust Your Funk

273

032 Behind The Scenes

274

031 - Anniversary Episode! Listener Appreciation

275

030 - 000 Rerun

276

029 - Wonderful and Different with Paul Avery

277

028 2DD Challenge Check-in

278

Episode 027

279

026 - Self Discipline

280

025 - Leadership with Drew Dudley

281

024 - The Parent Perspective with Tom Hamilton

282

023 Patrick Lawrence & CAF

283

023 - Challenged Athletes Foundation

284

023 - The Psychology of Disability with Dr. Dan Gotlieb

285

021 - rideATAXIA Europe, Le Peloton de l'Espoir

286

020 - LIVE at Horizon Pharma

287

019 - Dr. David Fajgenbaum - Conquering Castleman Disease

288

018 - Breaking Your Chains w/ Rudy Garcia-Tolson

289

017 -Roger Crawford

290

KHTK Interview

291

016 - Nutrition with Dr. Liz Applegate

292

Race Across America - Team FARA

293

RAAM Crew Chief Mike Bryant (Kyle's Dad)

294

013 - Kyle & Sean's #1 Advice

295

012 - Matt Fritsch - The Spinal Cord Injury (SCI) Community

296

011 - Ron Bartek Part 2 - Collaboration: We're All In This Together

297

010 - Adaptive Equipment Grants - The Ataxian Athlete Initiative

298

009 - Ron Bartek, Co-Founder and President, FARA

299

008 - Paul Melmeyer of the National Organization for Rare Disorders

300

007 - Max Bronstein

301

006 - Nicole Boice

302

005 - Focus on Rare Disease Day with Special Guests: Nicole Boice, Max Bronstein, and Paul Melmeyer

303

004 – Travel Gone Wild – How to conquer apprehension during travel with a disability.

304

003 - Travel and Mobility

305

002 - Self Image

306

001 - Life Is About How We React

307

000 - Welcome to the Two Disabled Dudes Podcast