Autism Family Resource

Have you ever wondered if the world will truly understand your child for who they are? In this powerful and deeply reflective conversation, Brian sits down with father, educator, and Autism Dads Social Club founder Jonathan Chism to explore the intersection of race and disability. Together, they unpack what it means to raise an autistic child while navigating cultural expectations, systemic challenges, and the pressure of being seen and understood in public spaces. Jonathan shares how his perspective as a Black father has shaped his parenting journey, including unlearning traditional expectations, embracing patience, and learning to truly meet his child where he is. This episode dives into advocacy, acceptance, and the importance of seeing your child as a whole human being, not just a diagnosis. If you've ever felt the weight of judgment in public or questioned your approach as a parent, this conversation will remind you that connection, not correction, is where growth begins. Topics Covered • The intersection of race and disability in parenting • How cultural expectations can shape parenting approaches • Understanding processing time and routines in autism • Letting go of societal judgment in public settings • The importance of joining your child's world • Seeing your child as "different, not less" Memorable Quote "Your child is not a problem to fix. They are a person to know, connect with, and celebrate." About the Guest Jonathan Chism is a father, educator, and historian specializing in African-American religious history. He is also the founder of the Autism Dads Social Club, a community focused on supporting fathers raising autistic children through connection, advocacy, and shared experience. Resources Mentioned • Uniquely Human by Barry Prizant • Autism Dads Social Club About the Host Brian Keene is an occupational therapist and founder of Pure Hearts Therapy, a pediatric therapy practice based in Arizona that provides neurodiversity-affirming, play-based services for children and families. He is passionate about helping parents feel confident, supported, and empowered in their journey. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com  

Parenting an autistic child can bring moments of joy, uncertainty, growth, and deep reflection. In this episode of the Autism Family Resource Podcast, Brian Keene sits down with Dr. Jonathan Chism, also known as Dr. Chiz, a father, professor, minister, and co-founder of the Autism Dad Social Club. Dr. Chism shares the honest story of his family's journey raising his non-speaking autistic son. He opens up about the early shock and denial after diagnosis, the hope that therapy might "fix" autism, and the powerful shift that happened when he began listening to autistic voices and embracing a different perspective. Instead of focusing on changing his son, Dr. Chism learned to focus on connection, acceptance, and supporting his son's communication and independence. In this conversation, he reflects on the lessons autism has taught him about empathy, patience, inclusion, and what it really means to show up as a father. This episode is especially meaningful for parents who may feel overwhelmed early in their journey. It's a reminder that growth happens not only for children, but for parents too. Topics Covered • Processing an autism diagnosis as a parent • Moving from denial toward acceptance in the autism journey • Parenting a non-speaking autistic child • Listening to autistic voices and lived experiences • Supporting communication through AAC devices • Building strong father-child relationships • Encouraging independence and life skills • Finding community as an autism parent Timestamps 00:00 Introduction to Dr. Jonathan Chism 01:21 Dr. Chism's background and family 03:08 Receiving an autism diagnosis at age two and a half 07:57 Moving from denial toward understanding autism 10:40 Learning from autistic voices and shifting perspective 24:26 Advice for parents feeling overwhelmed Memorable Quote "Be patient with yourself. Your child is a gift, and this journey will create a new normal." — Dr. Jonathan Chism About the Guest Dr. Jonathan Chism, also known as Dr. Chiz, is an associate professor of history at the University of Houston Downtown, an ordained minister, and the co-founder of the Autism Dad Social Club. As a father raising a non-speaking autistic son, he is passionate about supporting fathers, promoting autism acceptance, and helping families build meaningful connections with their children. Resources Mentioned • Autism Dad Social Club • Uniquely Human by Dr. Barry Prizant • AAC communication tools such as TouchChat About the Host Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona. Through the Autism Family Resource Podcast, Brian shares practical tools, expert conversations, and supportive insights to help parents navigate the journey of raising neurodivergent children. Learn more at: https://pureheartstherapy.com Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Have you ever wondered if something deeper might be affecting your child's regulation, behavior, or sleep? In this episode of the Autism Family Resource Podcast, Brian sits down with Dr. Jeffrey Knight, chiropractor and founder of the Autism Wellness Center, to explore how factors like inflammation, gut health, environmental toxins, and cellular health may influence a child's nervous system and overall regulation. Dr. Knight shares his four-phase approach to cellular healing, designed to help support detox pathways, improve mitochondrial function, and restore gut health. The conversation also highlights how addressing these internal systems may help children better engage in therapies, school, and daily life. This episode is not about quick fixes. It's about gaining a deeper understanding of how the body works and how families can explore additional tools to support their child's development and regulation. Topics Covered • How inflammation may influence behavior and regulation • The connection between gut health and neurological function • Dr. Knight's four-phase cellular healing approach • The role toxins and environmental exposures may play in health • Supporting detox pathways safely and thoughtfully • Why mitochondrial health matters for energy and regulation • Real stories of changes families have experienced • Simple lifestyle adjustments families can start today About the Guest Dr. Jeffrey Knight is a chiropractor and founder of the Autism Wellness Center in Utah. His work focuses on a whole-body approach to health, supporting neurological function, detoxification pathways, cellular healing, and gut health. Through his four-phase wellness program, Dr. Knight works with families across the country to help support children's overall health and regulation. Learn more: https://healthempoweredfamilies.com Resources Mentioned Health Empowered Families https://healthempoweredfamilies.com About the Host Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona. Through the Autism Family Resource Podcast, Brian shares practical strategies, expert conversations, and supportive insights to help parents navigate autism and neurodiversity with confidence. Learn more: https://pureheartstherapy.com Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from the conversation. You can find more resources and support at: https://pureheartstherapy.com Follow Pure Hearts Therapy on social media for more tools, strategies, and conversations supporting neurodivergent families.  

Many parents of neurodivergent children share a common feeling: isolation. Even when surrounded by people, it can feel like no one truly understands the unique challenges your family is navigating. In this episode of the Autism Family Resource Podcast, Brian Keene sits down with autism advocate Mandy Pinckley to talk about the power of community and connection. Mandy shares her personal journey of discovering supportive spaces where she could be authentic about being autistic, and how finding the right community helped her build confidence and self-acceptance. Together, they explore why so many parents feel alone, how community support can transform the experience of raising a neurodivergent child, and practical ways families can begin building their own support networks. From online communities to local support groups, Mandy highlights how even one meaningful connection can help families move from isolation to hope. If you've ever wondered whether other families truly understand what you're going through, this conversation is a reminder that you are not alone—and your community may be closer than you think. Topics Covered • Why many parents of neurodivergent children feel isolated • Mandy Pinkley's journey embracing her autistic identity • The power of finding community with people who understand your experience • How support groups can reduce isolation and build confidence • Online communities vs. in-person support networks • How parents can help their children find supportive social environments • Why advocacy and authenticity matter in the autism community • How families can start building their own support networks About the Guest Mandy Pinckley is an autism advocate who speaks openly about identity, community, and the importance of creating spaces where neurodivergent individuals feel accepted and understood. Through advocacy and community engagement, Mandy works to promote inclusion, awareness, and authentic representation of autistic experiences. About the Host Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona. Through the Autism Family Resource Podcast, Brian shares practical insights, expert conversations, and supportive strategies to help parents navigate the journey of raising neurodivergent children. Learn more at: https://pureheartstherapy.com Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. You can find more resources and support at: https://pureheartstherapy.com Follow Pure Hearts Therapy on social media for more conversations, guidance, and resources supporting neurodivergent families. Recommended Resources Mentioned CARD – Center for Autism & Related Disabilities Family Inclusion Networks (e.g., "FIN") Local autism organizations Facebook and online support groups Community events and family-friendly meetups    

Many parents know the feeling. Your child comes home and says, "Nobody plays with me," or you watch them standing alone on the playground while other kids easily connect. Every parent wants their child to feel included and accepted, but sometimes it feels like the world doesn't quite know how to make room for differences. In this episode of the Autism Family Resource Podcast, Brian Keene sits down again with autism advocate Mandy Pinckley to talk about what real inclusion looks like for autistic children. Together they explore how friendships form, how peers can become allies, and what parents and educators can do to create environments where neurodivergent kids feel genuinely welcomed. Mandy shares personal insights from her advocacy work and her own experiences as an autistic adult. The conversation also explores practical ways parents can advocate for their children, teach healthy boundaries, and help kids build confidence and connection with others. This episode is a reminder that inclusion isn't just about allowing someone to participate — it's about creating spaces where every child truly belongs. Topics Covered • What true inclusion means for autistic children • Why some neurodivergent kids struggle with friendships • How peer mentorship programs create inclusive environments • The importance of listening to a child's lived experience • Teaching healthy boundaries and self-advocacy skills • How parents can advocate effectively in school settings • Ways peers can become allies for neurodivergent classmates Memorable Quote "Inclusion isn't just letting someone sit at the table — it's wanting them there." — Mandy Pinckley About the Guest Mandy Pinckley is an autism advocate dedicated to promoting understanding, inclusion, and empowerment for neurodivergent individuals. Through advocacy, community engagement, and educational conversations, she helps families and schools create environments where autistic individuals feel accepted and supported. Resources Mentioned • Penguin Project (inclusive theatre program for children with disabilities) • CARD — Center for Autism and Related Disabilities About the Host Brian Keene is a pediatric occupational therapist and the founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona. Through the Autism Family Resource Podcast, Brian shares practical tools, meaningful conversations, and expert perspectives to help parents support the development and wellbeing of their neurodivergent children. Learn more at: https://pureheartstherapy.com Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. You can explore more resources and support at: https://pureheartstherapy.com Follow Pure Hearts Therapy on social media for more conversations, strategies, and encouragement for families navigating autism and neurodiversity.  

What is it really like to grow up autistic? And what do autistic youth wish the adults in their lives understood better? In this episode of the Autism Family Resource Podcast, Brian Keene sits down with autism advocate Mandy Pinckley to talk about her lived experience growing up autistic and the journey that led her into advocacy work today. Mandy shares what it was like navigating childhood, friendships, bullying, and the search for belonging while growing up undiagnosed. Together they explore how early understanding, supportive relationships, and open communication can make a meaningful difference for autistic youth. Mandy also shares insights on digital safety, emotional experiences, identity development, and why it's so important for parents to meet their children where they are. This conversation is the beginning of a multi-episode series with Mandy, where Brian and Mandy will explore topics like digital safety, inclusion, peer advocacy, and building supportive communities for neurodivergent youth. If you've ever wondered how to better understand your child's perspective or create a stronger connection with them, this episode offers thoughtful insights and encouragement. Topics Covered • Mandy's experience growing up autistic and being diagnosed later • Why many autistic girls go undiagnosed longer than boys • The emotional experiences many autistic youth navigate • Bullying, isolation, and searching for belonging • The role of digital environments and online safety • How open communication helps protect and support kids • Supporting identity development and self-expression • Helping neurodivergent youth find community Memorable Quote "Meet them where they're at — not where you want them to be." — Mandy Pinkley About the Guest Mandy Pinckley is an autism advocate focused on promoting digital safety, inclusion, and support for neurodivergent youth. Through speaking, advocacy work, and community engagement, she helps families and educators better understand the experiences of autistic individuals and create safer, more supportive environments. Resources Mentioned • CARD — Center for Autism and Related Disabilities About the Host Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona. Through the Autism Family Resource Podcast, Brian shares expert conversations, practical strategies, and supportive insights to help parents navigate the journey of raising neurodivergent children. Learn more at: https://pureheartstherapy.com Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

What if parents could feel less afraid, less confused, and more connected to their autistic children? In this episode of the Autism Family Resource Podcast, Brian Keene sits down with Megan Ashley: an autistic Black woman, licensed therapist, parent advocate, speaker, and author. Megan shares her own late autism diagnosis, what helped her recognize autism in herself, and how her lived experience now shapes the work she does with families. Together, they talk about sensory differences, masking, culture, behavior, and why so many autistic children are misunderstood when adults only look at the surface of what they do. Megan offers a compassionate, practical framework for parents who want to better understand their child instead of reacting from fear or frustration. This conversation is a powerful reminder that many behaviors make more sense when we slow down, stay curious, and learn to listen differently. If you've ever wanted to better understand what your child is trying to communicate, this episode is a meaningful place to start. Topics Covered • Megan Ashley's late autism diagnosis and lived experience • Why sensory differences are often one of the clearest signs of autism • How culture shapes the way autism is understood and supported • What masking is and why it can be so exhausting • Why autistic girls are often diagnosed later than boys • How environment influences whether autistic traits are supported or stressed • Redefining what "okay" can mean for your child • How parents can listen beyond behavior and better understand communication Timestamps 00:00 Introduction and Megan Ashley's advocacy mission 01:20 Megan's late autism diagnosis and personal journey 03:00 Understanding autistic thinking and communication differences 04:30 Autism culture and why context matters 08:45 Sensory differences and real-life sensory examples 10:20 Masking explained and why it can be exhausting 13:40 Why autistic girls are often diagnosed later 17:20 Recognizing sensory differences in children 20:40 Autism traits, strengths, and supportive environments 25:30 Redefining what "okay" means for autistic children 28:30 How parents can listen better and remove bias Memorable Quote "Meet them where they're at — not where you want them to be." — Megan Ashley About the Guest Megan Ashley is a licensed therapist, speaker, author, parent advocate, and autism advocate. As an autistic Black woman, her work focuses on helping parents better understand and connect with their autistic children through empathy, behavioral understanding, and practical support. She is the author of Blueprints of Behavior: Understanding Autism in Your Family Through Behavior. Resources Mentioned • Perfect Consulting • Blueprints of Behavior: Understanding Autism in Your Family Through Behavior by Megan Ashley • Megan Ashley on Instagram About the Host Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona. Through the Autism Family Resource Podcast, Brian shares practical tools, expert conversations, and supportive insights to help parents navigate the journey of raising neurodivergent children. Learn more at: https://pureheartstherapy.com Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

If your child's meltdowns leave you feeling frustrated, stuck, or unsure what to do next, this episode is for you. In this episode of the Autism Family Resource Podcast, Brian Keene sits down with Lisa Chan, parent coach, behavior specialist, and former pediatric occupational therapist, to talk about what's really going on during hard moments at home. Lisa explains why emotional regulation is a learned skill, how executive functioning plays a role in everyday struggles, and why parents have more influence than they often realize. Together, they unpack co-regulation, loving boundaries, secure attachment, and social skill development. Lisa also shares practical examples parents can use right away, including how to respond during meltdowns without escalating them and why role-playing can help children build social confidence. This conversation is a reminder that progress often starts with small shifts at home. When parents feel more supported and confident, it becomes easier to help children build the skills they need to thrive. Topics Covered • Why school-age meltdowns are often rooted in emotional regulation challenges • How executive functioning affects behavior, homework, and daily tasks • What co-regulation really looks like in the moment • Why validation and firm boundaries can work together • How secure attachment is built through consistency • Why some kids need direct support with social skills • How role-playing can help children practice real-life interactions • Why parents need support too Timestamps 00:00 Introduction and why this episode matters for overwhelmed parents 00:44 Meet Lisa Chan and how she shifted from OT to parent coaching 04:10 Emotional regulation, meltdowns, and executive functioning explained 12:20 What co-regulation looks like during a public meltdown 20:05 Secure attachment, consistency, and healthy boundaries 22:20 Social skills, self-esteem, and using role-play at home Memorable Quote "The biggest takeaway is really going to be the realization that you have more power in helping your child and helping yourself than you realize." — Lisa Chan About the Guest Lisa Chan is a parent coach, child behavior specialist, and former pediatric occupational therapist with over a decade of experience supporting families. Her work focuses on emotional regulation, behavior patterns, social skills, and helping parents create healthier, more connected family dynamics. Resources Mentioned • Lisa Parent Coach website • Lisa's emotional regulation course About the Host Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona. Through the Autism Family Resource Podcast, Brian shares practical tools, expert conversations, and supportive insights to help parents navigate the journey of raising neurodivergent children. Learn more at: https://pureheartstherapy.com Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Navigating autism can feel especially isolating when families are also carrying the weight of cultural barriers, medical mistrust, or systems that were not built with them in mind. In this episode of the Autism Family Resource Podcast, Brian Keene sits down with Dr. Martine LaVenture, a licensed social worker, school social worker, therapist, and proud mom of a teen on the autism spectrum. Dr. LaVenture shares how her personal and professional journey shaped her passion for supporting autistic children and their families, especially within historically marginalized communities. Together, they talk about what to do after a diagnosis, how to build a care team and village around your child, how to educate family members in relatable ways, and why culturally responsive care matters so much. This conversation is warm, practical, and deeply encouraging. If you have ever felt like you were carrying too much on your own, this episode is a reminder that you do not have to navigate autism by yourself. There is support, there is community, and there are ways to advocate with more clarity and confidence. Topics Covered • What to do after an autism diagnosis • How to build a strong care team and support village • Helping family members understand autism in relatable ways • Teaching autistic children to advocate for their own needs • Therapy burnout and why breaks can be healthy • Cultural barriers and disparities in autism care • Why communication between families and providers matters • Encouragement for parents carrying a heavy load Timestamps 00:00 Introduction and why this conversation matters 01:14 Dr. Martine LaVenture's background and autism advocacy journey 05:03 What to do after an autism diagnosis 10:13 Building a village and treatment team around your child 12:41 Therapy burnout, breaks, and discharge conversations 15:32 Cultural disparities, advocacy, and communicating with providers Memorable Quote "You don't have to do this by yourself. There is a village, there is a community out there." — Dr. Martine LaVenture About the Guest Dr. Martine LaVenture is a licensed social worker, school social worker, therapist, and autism advocate. She is also a proud mom of an 18-year-old on the autism spectrum and brings both lived and professional experience to her work supporting children, families, and culturally responsive care systems. Resources Mentioned • Dr. Martine LaVenture's website: leventraconsultant.com • Instagram: @laventurecslc • Upcoming children's book about autism About the Host Brian Keene is a pediatric occupational therapist and founder of Pure Hearts Therapy, a neurodiversity-affirming therapy practice providing in-home pediatric therapy services for families in Arizona. Through the Autism Family Resource Podcast, Brian shares practical tools, expert conversations, and supportive insights to help parents navigate the journey of raising neurodivergent children. Learn more at: https://pureheartstherapy.com Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Many autistic children chew on shirts, toys, or even their own hands. For parents, these behaviors can feel confusing or concerning. But often, mouthing and chewing behaviors are a child's way of meeting an important sensory need. In this episode of the Common Chaos Sensory Series, host Brian Keene is joined by occupational therapist Dipali Devani to explore why these behaviors happen and how families can support their children in safe and supportive ways. Dipali explains how oral sensory needs, regulation challenges, anxiety, and sensory seeking can all play a role in mouthing behaviors. She also shares practical strategies parents can use at home—from sensory replacements and calming routines to creating safe spaces that help children regulate. This conversation helps parents understand what's developmentally typical, when to seek support, and how occupational therapy can help children meet their sensory needs in ways that support their well-being. If your child frequently chews on clothing, toys, or their hands, this episode will give you helpful insight and practical tools you can start using right away. Topics Covered • Why autistic children may chew or mouth objects • How oral sensory needs relate to regulation • When mouthing behaviors are developmentally typical • Signs parents should look for after age 3–5 • Health, social, and eating challenges that may arise • Sensory tools and safe alternatives for chewing • Practical strategies families can use at home • The role of occupational therapy in supporting sensory needs Memorable Quote "Children often chew or mouth objects because their body is trying to regulate itself—they're simply trying to get the sensory input they need." About the Guest Dipali Devani is a pediatric occupational therapist who works with children and families to support sensory processing, regulation, and development. Her experience spans outpatient therapy, home health, and pediatric care settings. In addition to her clinical work, Dipali has studied Ayurveda, a holistic healing system focused on natural wellness and balance. She integrates both traditional occupational therapy strategies and holistic perspectives to support children and families. About the Host Brian Keene, OTD, OTR/L is an occupational therapist and the founder of Pure Hearts Therapy. He created the Autism Family Resource Podcast to help parents better understand autism and gain practical strategies that support regulation, connection, and advocacy for neurodivergent children. Through Pure Hearts Therapy, Brian works with families to provide education, therapeutic services, and resources that empower children to thrive. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Parenting a neurodivergent child can bring many unexpected challenges—emotionally, logistically, and financially. In this episode, Brian sits down with autism advocate and father Michael Pereira, founder of My Autism Voyage, to talk about the real-life journey that led him to support other families navigating autism. Michael shares the story of recognizing early signs in his son, moving through denial, seeking professional guidance, and ultimately leaving corporate life to build a mission-driven platform for autism families. Through his blog and newsletter, My Autism Voyage helps parents think about daily living strategies, long-term planning, and entrepreneurship opportunities that can create more flexibility for families raising neurodivergent children. Together, Brian and Michael explore topics that many families don't always have time to think about—like life insurance planning, long-term care considerations, and financial protection strategies that support children well into adulthood. This conversation also highlights the importance of community, collaboration with professionals, and empowering parents with practical tools to move forward with clarity and confidence. If you've ever felt overwhelmed by the responsibilities of parenting, planning, and advocating for your child, this episode offers encouragement, perspective, and actionable ideas to support your family's journey. Topics Covered • Michael's journey as a father navigating an autism diagnosis • Moving from corporate life to mission-driven entrepreneurship • Practical daily living resources for autism families • Why long-term financial planning matters for families with neurodivergent children • Understanding life insurance, disability protection, and future care planning • Creating income flexibility through entrepreneurship • The importance of community and collaboration among parents and professionals • Common mistakes parents make when seeking advice Timestamps 00:00 Introduction 02:08 Michael's parenting journey and early signs of autism 09:18 The mission behind My Autism Voyage 13:00 Financial and life planning considerations for families 18:00 Entrepreneurship and creating flexibility for parents 25:05 Why professional guidance and collaboration matter Memorable Quote "Movement brings clarity. When you keep moving toward your goals, you start to see what works and what doesn't." About the Guest Michael Pereira is the founder of My Autism Voyage, a platform created by a parent for parents navigating autism. Through blog content, newsletters, and educational resources, Michael shares practical insights on daily living strategies, long-term financial planning, and entrepreneurship opportunities for families raising neurodivergent children. He is also an insurance professional who helps families think strategically about protecting their child's long-term future. About the Host Brian Keene, OTD, OTR/L is a pediatric occupational therapist and the founder of Pure Hearts Therapy. Through the Autism Family Resource Podcast, Brian shares practical strategies, expert insights, and parent perspectives to help families support regulation, connection, safety, and independence for neurodivergent children. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit. Listen and subscribe: https://pod.link/1591840956 More resources for families: https://pureheartstherapy.com

Divorce is never easy, and when a child has additional support needs, the process can feel even more overwhelming. In this episode, Brian Keene sits down with family law attorney Anna Kay to talk through some of the biggest questions parents may face when navigating divorce while caring for a neurodivergent child or a child with disabilities. Anna shares practical insight on different divorce process options, including litigation, mediation, and collaborative divorce, and explains why being intentional early can make such a meaningful difference for families. The conversation also explores how parents can reduce conflict, communicate with children in age-appropriate ways, think through therapy schedules and medical decisions, and plan ahead for long-term financial and legal considerations. This episode is designed to offer guidance, encouragement, and a starting point for parents who may be trying to make thoughtful decisions during a difficult season. Whether you are currently navigating divorce or simply want to better understand what support can look like, this conversation offers helpful perspective and practical next steps. Topics Covered The difference between litigation, mediation, and collaborative divorce Why process choice matters for families of children with disabilities How to reduce conflict and protect children emotionally during divorce Why children should not be used as messengers between parents Planning for therapy schedules, medical decisions, and day-to-day logistics How special needs planning and trusts may protect long-term benefits Why working with the right professionals in your state matters The importance of self-care while navigating major family transitions Timestamps 00:00 Introduction and episode overview 01:46 What parents can take away from this conversation 02:45 Divorce process options: litigation, mediation, and collaboration 10:27 Reducing conflict and protecting children emotionally 13:42 Therapy, medical decisions, and long-term planning 23:37 Helpful resources and final encouragement Memorable Quote "Please protect your children and shelter them during your divorces as much as you can." About the Guest Anna Krolikowska is a family law attorney who helps families navigate divorce with intention, clarity, and long-term planning in mind. Her work includes supporting parents of children with disabilities as they think through co-parenting, legal agreements, and future planning in a way that protects their children and helps families move forward. Resources Mentioned Anna Kay Law State bar associations Collaborative divorce associations American Academy of Matrimonial Lawyers Special needs trust planning attorneys About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Some children seem overwhelmed by everyday smells, while others seek out strong scents or react in ways that can leave parents feeling confused and unsure how to help. In this episode of the Autism Family Resource Podcast, Brian Keene is joined by occupational therapist Dipali Devani to talk about smell sensitivity, sensory processing, and practical ways families can support children who are highly affected by scents in their environment. Dipali explains how the olfactory system connects with regulation, behavior, taste, and memory, and why certain smells can trigger distress, avoidance, nausea, or big emotional reactions. She also shares simple, actionable strategies parents can try, including journaling triggers, introducing smells slowly and safely, and using calming or alerting scents in supportive ways. This episode is a helpful starting point for parents who want to better understand what their child may be experiencing and how occupational therapy can help. It is warm, practical, and full of simple ideas families can begin using right away. Topics Covered What sensory sensitivity means, especially with smell How smell can affect regulation, behavior, and emotional responses Why some children are especially sensitive to certain scents How smell and taste work closely together Why journaling triggers can help parents spot patterns Gentle ways to desensitize children to difficult smells How calming and alerting scents can support regulation Why occupational therapy can be helpful early on Timestamps 00:00 Introduction and episode overview 01:30 What smell sensitivity means in sensory processing 04:39 Why journaling triggers is a helpful first step 10:27 How to slowly reintroduce difficult smells 13:44 Real-life OT example using mashed potatoes 18:15 Using calming and alerting scents to support regulation Memorable Quote "You don't know what else is involved. You might not know what else the child needs as a support." About the Guest Dipali Devani is an occupational therapist at Pure Hearts Therapy who specializes in sensory integration and supporting children through practical, family-centered strategies. She is also an Ayurvedic practitioner and brings an integrative, client-centered perspective to her work with children and families. Resources Mentioned The Out-of-Sync Child Occupational therapy Sensory diets About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice supporting children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Friendship, belonging, and inclusion matter deeply for neurodivergent children, but many families still struggle to find environments where their child feels truly welcomed and supported. In this episode of the Autism Family Resource Podcast, Brian Keene talks with Gail Ewell, Executive Director of Hope Technology School, about what it takes to build inclusive spaces at school, at home, and in the community. Gail shares how her own parenting journey led her to create a fully inclusive school for students with diverse support needs. She discusses why friendship is such an important protective factor, how inclusive activities can help reduce bullying, and why communication, advocacy, and community partnerships matter so much for children with higher support needs. This conversation is full of encouragement for parents, educators, and therapists who want to create more connection and opportunity for neurodivergent learners. Gail also offers practical ideas families can use right away, from buddy systems and social groups to community programs and inclusive play opportunities. If you've ever wondered how to help your child build friendships and feel more included, this is a meaningful episode to listen to. Topics Covered Why friendship is essential for neurodivergent children How inclusion can reduce bullying and social isolation Gail's journey as a parent and founder of Hope Technology School What makes a fully inclusive school environment different Practical ways families can encourage connection in everyday life How therapists and community organizations can support inclusion Why communication support matters for children with higher support needs The importance of advocacy, hope, and not giving up on your child's potential Timestamps 00:00 Introduction and episode overview 01:10 What families can expect from this conversation 04:17 What makes Hope Technology School different 05:52 Building inclusive environments and circles of friends 10:33 How parents can encourage inclusion at home and in the community 19:39 Communication, advocacy, and not giving up Memorable Quote "Don't give up hope." About the Guest Gail Ewell is the Executive Director of Hope Technology School, a nonprofit inclusive K–12 school in California. She is also a mother of three adult children with diverse support needs and has spent decades building programs, schools, and inclusive opportunities that support neurodivergent children and their families. Resources Mentioned Hope Technology School Inclusive sports programs Buddy systems and mentorship programs Social skills groups AAC and communication supports About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

What happens when someone grows up autistic without knowing why the world feels different? In this episode of the Autism Family Resource Podcast, Brian Keene talks with New York Times bestselling author J.D. Barker about his experience growing up autistic without a diagnosis, how that shaped his childhood and work life, and what changed when he was finally diagnosed at age 22. J.D. shares openly about social challenges, anxiety, masking, and the pressure to fit neurotypical expectations. He also reflects on how understanding his autism helped him recognize his strengths, including pattern recognition, structure, and creativity, which now support his work as a successful author. The conversation also explores partnership, parenting, and what it has been like to support his own autistic daughter with a much earlier diagnosis and a stronger support system. This episode offers encouragement for parents, autistic adults, and anyone who wants a deeper understanding of how autism can show up across the lifespan. It is an honest, thoughtful conversation about challenges, self-awareness, support, and the importance of focusing on strengths. Topics Covered Growing up autistic without an early diagnosis How a diagnosis at age 22 changed J.D.'s life Social anxiety, masking, and navigating neurotypical expectations Why some environments are more draining than others How autism can shape creativity, structure, and problem-solving The role of partnership and support in personal growth Parenting an autistic child with more early support Why it helps to focus on a child's strengths and interests Timestamps 00:00 Introduction and episode overview 01:15 Growing up autistic without a diagnosis 06:04 Social situations, masking, and recharging 11:35 J.D.'s writing career and current projects 15:18 Parenting, partnership, and supporting his daughter 21:36 Final takeaway on finding a child's strengths Memorable Quote "Find the one thing that they actually do like and encourage that." About the Guest J.D. Barker is a New York Times bestselling author known for thrillers, horror, and suspense novels. He has written numerous bestselling books, collaborated with major authors including James Patterson, and speaks openly about his personal experience as an autistic adult. Resources Mentioned J.D. Barker Master of Suspense Forsaken The Fourth Monkey Dracul Behind a Closed Door The Writer About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Receiving an autism or ADHD diagnosis for your child can bring a wave of emotions, questions, and uncertainty. In this episode of the Autism Family Resource Podcast, Brian Keene sits down with author, speaker, podcaster, and Arizona mom Kari Baker to talk about her journey parenting her son with autism and ADHD. Kari shares honestly about the early years of confusion, the pressure she felt to keep everything together, and the long road toward acceptance and healing. She also talks about the inspiration behind her book, Finding Kind, and how her family moved from secrecy and shame into a more strengths-based, hopeful way of supporting their son. This conversation is full of encouragement for parents who may be in the thick of diagnosis, therapies, school challenges, or simply learning how to let go of the "perfect parenting" picture they once imagined. If you are looking for a reminder that you are not alone, that your child has gifts worth nurturing, and that there can be joy in a different path than the one you expected, this episode is a meaningful one to hear. Topics Covered Kari's journey from financial planning into advocacy and encouragement for families What it was like to parent through an autism and ADHD diagnosis The emotional impact of secrecy, shame, and learning to make peace with a different path Why early diagnosis and early intervention matter How autism and ADHD can show up differently at school and socially Kari's book Finding Kind and why she wrote the story she wished she had found The power of community and finding other parents who understand Why focusing on a child's strengths can change everything Timestamps 00:00 Introduction and episode overview 04:17 Kari's biggest takeaway for families 06:48 The story behind Finding Kind 10:48 Discovering her son's autism diagnosis 17:23 Autism, ADHD, and school challenges 20:35 Kari's podcast and what she's learning from other families Memorable Quote "Your child was born on purpose for a purpose." About the Guest Kari Baker is an author, speaker, podcaster, and Arizona mom of a son with autism and ADHD. She is the founder of Kind Families and the author of Finding Kind, a book that shares her personal parenting journey and offers encouragement to families navigating diagnosis, therapies, and the beauty of raising neurodivergent children. Resources Mentioned Finding Kind Kind Families Kari A. Baker Gentry Pediatric Behavioral Services Southwest Autism Research & Resource Center Think Asperger's ASD Mamas by Your Side About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com  

What does autism therapy look like when it is truly play-based, family-centered, and grounded in a child's individual strengths? In this episode of the Autism Family Resource Podcast, Brian Keene talks with Will Martin from SOAR Autism Center about the Early Start Denver Model, often called ESDM, and how it offers a different approach from more traditional forms of ABA therapy. Will shares how he entered the autism field, what drew him to early intervention, and why ESDM stood out as a developmentally informed, relationship-based model for supporting young autistic children. The conversation explores how SOAR approaches communication, play, challenging behavior, family collaboration, and neurodiversity-affirming care. Brian and Will also talk openly about some of the concerns families have around ABA and how providers can take a more respectful, individualized approach. This episode is especially helpful for families who are trying to understand different therapy options, ask better questions when choosing a provider, and find care that aligns with their values. Topics Covered What the Early Start Denver Model is and how it differs from traditional ABA Will's journey into autism care and early intervention How play-based therapy can support communication and learning What discrete trial training is and why some families seek alternatives Common signs a child may benefit from autism therapy or assessment How SOAR structures assessment, scheduling, and interdisciplinary care What neurodiversity-affirming autism care can look like in practice Why families should ask hard questions when choosing a provider Timestamps 00:00 Introduction and episode overview 01:21 What families may take away from the episode 04:23 ESDM compared to traditional discrete trial training 10:34 How SOAR assesses children and builds treatment plans 15:04 Signs a child may benefit from autism therapy 25:29 Neurodiversity-affirming care and concerns around ABA Memorable Quote "Feel empowered to ask tough questions about what type of therapy and what type of approach you might experience at different providers." About the Guest Will Martin is a behavior analyst and Head of Early Start Denver Model Implementation at SOAR Autism Center. He has worked across home, school, clinic, and research settings and is passionate about providing developmentally informed, individualized care for autistic children and their families. Resources Mentioned SOAR Autism Center Early Start Denver Model ESDM curriculum checklist About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Divorce is never easy, and when a child has autism, disabilities, or other support needs, the process can feel even more overwhelming. In this episode of the Autism Family Resource Podcast, Brian Keene talks with certified divorce coach, mediator, and special needs parent Mary Ann Hughes about how families can navigate separation while keeping their child's well-being at the center. Mary Ann shares her personal experience parenting two children on opposite ends of the autism spectrum while going through divorce, and explains why special needs divorce planning often requires a different level of care, foresight, and support. She offers practical guidance on talking with children about divorce, avoiding rushed decisions, protecting government benefits, planning for therapies and future services, and creating a more child-centered approach to co-parenting. This episode is especially helpful for parents who are currently going through separation, considering divorce, or simply want to understand what to think about if life takes an unexpected turn. It is honest, grounded, and full of helpful perspective for families facing a difficult season. Topics Covered Why divorce planning looks different when a child has special needs How to talk with children about divorce in a supportive way Using social stories to help children understand change Why it is important not to rush major legal and financial decisions How to keep the child's needs at the center of the divorce process Why future planning matters for therapies, programs, and adult services Protecting government benefits and financial eligibility How divorce coaching, mediation, and parenting coordination can help families Timestamps 00:00 Introduction and episode overview 01:12 Mary Ann's story and why she does this work 04:28 Talking with children about divorce and using social stories 07:29 Planning ahead for therapies, services, and the future 12:33 Protecting benefits and understanding legal considerations 15:56 How parents can work with Mary Ann and get support Memorable Quote "This is not the end. It's the start of something new and something different." About the Guest Mary Ann Hughes is a certified divorce coach, mediator, and parenting coordinator who specializes in supporting families with children with special needs. She is also a mother of two autistic young adults and brings both personal and professional insight to helping families navigate divorce in a more thoughtful, child-centered way. Resources Mentioned Special Family Transitions Social stories for divorce conversations Special needs trusts Parenting coordination Mediation for families with children with disabilities About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Mental health is an important part of supporting neurodivergent children, yet it is often overlooked in the larger autism conversation. In this episode of the Autism Family Resource Podcast, Brian Keene talks with social worker and certified autism specialist Mitch Leppicello about the emotional lives of autistic children and why families need practical tools to support regulation, communication, and connection. Mitch brings more than 30 years of experience working with autistic individuals and their families. He shares how the field has changed over time, why anxiety and other mental health challenges often overlap with autism, and how parents can better understand what their child is trying to communicate during emotionally intense moments. He also introduces his Calm Compass framework, which helps families focus on connection, communication, encouragement, and movement as ways to support children through stress and dysregulation. This episode is especially helpful for parents, caregivers, therapists, and educators who want a more compassionate and practical understanding of how mental health and autism can intersect in everyday family life. Topics Covered How Mitch found his way into autism and neurodiversity work Why mental health challenges often overlap with autism Common emotional struggles autistic children may experience Why communication breakdowns can fuel emotional dysregulation Mitch's Calm Compass framework: Connect, Articulate, Lift, and Move How parents can help children better express what they are feeling Why connection and co-regulation matter during hard moments The value of collaboration between families and therapists Timestamps 00:00 Introduction and episode overview 01:27 Mitch's path into autism and mental health work 07:17 How autism and mental health challenges overlap 11:31 What the Calm Compass is 13:53 Using "Articulate" to help children express feelings 20:46 Why connection and regulation strategies matter most Memorable Quote "Autism is not an excuse. It's an explanation." About the Guest Mitch Lepicello is a social worker, certified autism specialist, and mental health professional with more than 30 years of experience working with autistic children, teens, adults, and families. He created the Calm Compass framework to help families strengthen connection, communication, and emotional regulation. Resources Mentioned The Calm Compass ASD Parenting Journey Mitch Lepicello's social media resources Stress management tools and visual supports for autistic children About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

The lockdown may feel far behind us, but for many children, its impact is still showing up in everyday life, especially in social communication and emotional regulation. In this episode of the Autism Family Resource Podcast, Brian Keene welcomes back Lenora Edwards to talk about how the pandemic and isolation affected children's language development, social skills, and confidence in communication. Lenora shares how reduced in-person interaction, masking, and fewer natural opportunities for conversation created real developmental gaps for many children, especially those who were very young during lockdown. She explains why skills like reading facial expressions, understanding tone, problem-solving in social situations, and simply knowing what to say in everyday interactions have become harder for many kids. She also offers practical, encouraging strategies parents can start using right away, including modeling, creating safe opportunities for communication, and helping children build confidence through practice. This episode is especially helpful for parents, caregivers, educators, and therapists who want to better understand what was lost during lockdown and how to gently rebuild those social and communication skills moving forward. Topics Covered How lockdown affected language development in young children Why masks and isolation changed social learning The impact on tone, body language, and facial expression reading Why some children now feel stuck in social situations How texting and screens can reduce real-life communication practice Why modeling communication matters so much Practical ways parents can create safe social opportunities When to trust your instincts and seek professional support Timestamps 00:00 Introduction and episode overview 01:56 What families can expect to learn from this conversation 04:10 How lockdown changed language exposure and development 10:14 Why children may not know what to say socially 17:51 Practical strategies parents can use at home 22:06 When to seek help and trust your instincts Memorable Quote "It's our responsibility as the community, as people of this world, to help them communicate." About the Guest Lenora Edwards is a TEDx speaker and Chief Knowledge Officer with Better Speech. She is a speech-language pathologist with extensive experience supporting children and adults with communication needs across a wide range of settings, including hospitals, schools, outpatient clinics, and online therapy. Resources Mentioned Better Speech BetterSpeech.com Speech therapy for social communication Online speech therapy consultations About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com  

What happens when a child who is labeled as "slow" or "lazy" is actually a bright, creative learner who simply needs the right support? In this episode of the Autism Family Resource Podcast, Brian Keene talks with Lynn and Jonathan Greenberg about their family's journey with dyslexia, the challenges Jonathan faced growing up, and the powerful book they created together, Robbie the Dyslexic Taxi. Jonathan shares what it was like to struggle with reading and writing in traditional school settings, how those early labels affected him, and the difference it made when he was finally understood and supported in the right environment. Lynn offers a parent's perspective on trusting her instincts, advocating for her child, and making difficult decisions to get him the help he needed. Together, they talk about how creativity, support, and perseverance helped transform challenges into strengths. This episode is a meaningful listen for parents, educators, and anyone who wants a better understanding of dyslexia, learning differences, and the importance of seeing the child beyond the label. Topics Covered What dyslexia looked like in Jonathan's early school experience How negative labels affected confidence and self-image Lynn's journey of recognizing that something was different Finding the right school and support for a child with dyslexia How dyslexia can affect reading, writing, and visual processing Why support from family can make such a powerful difference The story behind Robbie the Dyslexic Taxi Why learning differences can also come with unique strengths Timestamps 00:00 Introduction and episode overview 03:56 Jonathan's experience growing up with dyslexia 07:03 Lynn's perspective and finding the right support 10:49 How the book Robbie the Dyslexic Taxi came to life 16:21 Final encouragement for parents and children 20:07 Where to find the book and connect with Lynn and Jonathan Memorable Quote "You may be different, but that's not a bad thing." About the Guest Lynn Greenberg is Jonathan's mother and co-author of Robbie the Dyslexic Taxi. Jonathan Greenberg is a college student, artist, and writer who was diagnosed with dyslexia as a child. Together, they created their book to help children and families better understand dyslexia and to encourage confidence, creativity, and conversation. Resources Mentioned Robbie the Dyslexic Taxi Creative Cab Company CreativeCabCompany.com Amazon book listing About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Diaper digging is one of those topics many families experience but few people openly talk about. In this episode of the Autism Family Resource Podcast, Brian Keene talks with Cindy Seifert, founder of Prevent-A-Wear and mother to an autistic daughter with high support needs, about a behavior that can be exhausting, isolating, and hard to manage without the right support. Cindy shares her personal experience raising her daughter Kyla, how diaper digging and disrobing became major challenges in daily life, and how those struggles led her to create clothing solutions designed to help families dealing with incontinence, fecal smearing, and clothing removal. She talks honestly about the emotional toll of these behaviors, the practical realities caregivers face, and the importance of finding tools that help preserve dignity, safety, and peace of mind. This conversation is especially helpful for parents and caregivers who feel alone in these challenges and are looking for practical support without shame or judgment. It is candid, compassionate, and full of real-world insight from a parent who has lived it. Topics Covered Cindy's journey parenting her daughter with autism and epilepsy How diaper digging began and how it affected daily life The emotional and practical challenges of fecal smearing and disrobing Why families often feel alone or unable to talk about these behaviors How Prevent-A-Wear was created out of real caregiver need How specialized clothing can help prevent diaper digging and stripping Why sensory needs may play a role in these behaviors Additional products Cindy created for incontinence and caregiver support Timestamps 00:00 Introduction and episode overview 01:04 Cindy's background and her daughter's story 04:11 How diaper digging began and why it was so difficult 08:27 Creating the first clothing solution at home 11:57 Sensory questions around diaper digging 14:09 What Prevent-A-Wear offers for families Memorable Quote "I really do hope that I reach people and they're going to listen to this and they're going to be like, wow, there's help out there." About the Guest Cindy Seifert is the founder of Prevent-A-Wear and the mother of a 25-year-old autistic daughter with epilepsy and high support needs. She created her product line after years of managing diaper digging, fecal smearing, incontinence, and clothing removal at home. Resources Mentioned Prevent-A-Wear PreventAware.com Prevent-A-Wear Facebook page Specialized clothing for incontinence and stripping prevention Waterproof wheelchair pads, bibs, couch covers, and sheets About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

What if your child's current school setting just is not working? For many families, that question brings frustration, worry, and a lot of uncertainty about what to do next. In this episode of the Autism Family Resource Podcast, Brian Keene talks with teacher, tech entrepreneur, and Teach Your Kids host Manisha Snoyer about homeschooling, school choice, and what it can look like to create a more personalized education for your child. Manisha shares her background as an educator and explains why so many families, including families with neurodivergent children, are exploring homeschooling and other customized learning options. She talks about how education can be adapted around a child's needs, interests, and learning style, and why homeschooling does not have to look like one parent sitting at a table teaching all day. The conversation also touches on tutoring, curriculum matching, flexible schedules, and Arizona's Empowerment Scholarship Accounts. This episode is especially helpful for parents who feel stuck, discouraged, or curious about alternatives to the traditional school system and want to know what options may actually be possible for their family. Topics Covered Why many families are feeling frustrated with traditional school systems How Manisha's teaching experience led her into supporting homeschooling families What homeschooling can look like in real life Why personalized curriculum matters for neurodivergent learners How tutoring and flexible education can support unique needs Why homeschooling can work for many different family structures How Arizona's Empowerment Scholarship Accounts can help families Where parents can go to get support, curriculum help, and community Timestamps 00:00 Introduction and episode overview 01:10 Manisha's background and why she does this work 04:18 How personalized curriculum can fit different learners 05:55 What homeschooling can actually look like 08:28 How tutors and curriculum matching work 08:56 Arizona ESA support and school choice 10:25 First steps for families interested in homeschooling Memorable Quote "You do know what your children need." About the Guest Manisha Snoyer is a teacher, tech entrepreneur, and the host of Teach Your Kids, a podcast and online community for homeschooling families. She has spent years building tools, resources, and support systems to help families create personalized education paths for their children. Resources Mentioned Teach Your Kids TeachYourKidsPod.com Cottage Class Arizona Empowerment Scholarship Accounts (ESA) About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

What would happen if your child got lost in the community and could not communicate who they are or how to get home? For many parents of non-speaking or high-support-needs children, that question can keep them up at night. In this episode of the Autism Family Resource Podcast, Brian Keene talks with Justin Behnke, a father who created ScanMeHome after realizing his own son needed an added layer of safety. Justin shares how raising his non-speaking autistic son led him to think differently about community safety, wandering, and what families really need in those frightening "what if" moments. He explains how ScanMeHome works, why QR-based safety tools can be so helpful now that people are used to scanning codes in daily life, and how the product can support children, adults with dementia, and others who may need a quicker path back to safety. This episode is especially valuable for parents and caregivers who want more peace of mind when it comes to wandering, field trips, travel, or everyday community outings. Topics Covered Justin's story as a father of a non-speaking autistic son Why wandering and community safety became such a big concern How ScanMeHome was created in just a few days after years of need Why QR code safety tools can work well for non-speaking children What kinds of information families can include in a profile How the product can help in field trips, travel, and community outings Why education and awareness in the community still matter Other uses for the product, including dementia and seizure support Timestamps 00:00 Introduction and episode overview 01:15 Justin's background and his family story 02:36 What led him to create ScanMeHome 06:06 How the product works 09:46 Other safety strategies for families 13:20 Discount code and final thoughts Memorable Quote "My purpose was my son. God forbid he gets out, I need to get him home." About the Guest Justin Behnke is a father, technology professional, and creator of ScanMeHome. He designed the product after recognizing that his non-speaking autistic son needed a practical, accessible safety solution that could help others reconnect him with family if he ever got lost. Resources Mentioned ScanMeHome ScanMeHome.com ScanMeHome Instagram QR safety tags for clothing, backpacks, wristbands, and more About the Host Brian Keene is the host of the Autism Family Resource Podcast and the founder of Pure Hearts Therapy, a neurodiversity-affirming pediatric therapy practice that supports children and families through compassionate, practical care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Parents and caregivers often feel excited when their child finally receives an AAC device. But what happens when the device arrives and your child shows little interest in using it? In this episode of the Autism Family Resource Podcast, Brian Keene is joined by speech-language pathologists Lydia McKay and Staci Dover to discuss the final part of a three-episode series on augmentative and alternative communication (AAC). This conversation focuses on the practical side of implementation — how families can help children begin using their AAC device in meaningful ways at home. Lydia and Staci share practical strategies that help families move beyond simply having the device to actually building communication with it. They explain why routines matter, why modeling is so powerful, and why play and joy are essential for helping children develop confidence with AAC. Parents will learn how to introduce AAC in ways that feel natural rather than forced, how to reduce pressure for their child, and how to support language development through everyday interactions. If your child has an AAC device but isn't using it yet, this episode will help you understand what steps to take next. Topics Covered • Why some children don't immediately use their AAC device • The importance of routines when teaching AAC • How modeling helps children learn communication • Why play and preferred activities help build language • Understanding the "hide and show" feature for teaching vocabulary • Why AAC never prevents speech development • How parents can support AAC in everyday life • Why patience and consistency are key for communication growth Memorable Takeaway "Communication happens all day long. It doesn't happen once a week for 30 minutes with the speech therapist." About the Guests Lydia McKay and Staci Dover are Phoenix-area speech-language pathologists who specialize in augmentative and alternative communication (AAC). They work through Northern Arizona University's AAC Evaluation and Training Program, helping families and individuals access communication systems that support language development and independence. About the Host Brian Keene, OTD, OTR/L is the founder of Pure Hearts Therapy and host of the Autism Family Resource Podcast. His work focuses on helping neurodivergent children and families build skills, confidence, and connection through practical strategies and compassionate care.

If your child is non-speaking or experiencing speech delays, you may have heard about AAC (Augmentative and Alternative Communication) but wondered how families actually obtain a communication device. In part two of this three-part AAC series, host Brian Keene is joined by Phoenix-area speech-language pathologists Lydia McKay and Stacey Dover to walk parents through the real-world process of getting an AAC device. They explain how families can begin the evaluation process, what steps are involved, and how a team determines the best communication system for each individual. From navigating insurance and Arizona's Department of Developmental Disabilities (DDD) services to understanding the role of therapists and medical providers, this episode offers practical guidance for parents who want to explore AAC for their child. The conversation also highlights the importance of matching a device to a child's unique needs, including motor abilities, access methods, and family preferences. Parents are active partners throughout the process, helping ensure the selected system truly supports meaningful communication in everyday life. If AAC is something you've been curious about for your child, this episode helps demystify the evaluation process and explains what families can expect along the way. Topics Covered • What AAC is and why it can support communication at any age • Common myths about AAC and speech development • How families begin the AAC evaluation process • Navigating Arizona DDD services and insurance pathways • Why AAC evaluations involve both communication and motor specialists • How the "feature matching" process helps identify the best device • What happens after the evaluation and how devices are approved Timestamps 00:00 Introduction to the AAC series and episode overview 02:45 Understanding AAC and common myths 05:00 How families begin the AAC device process 11:40 The AAC evaluation team and their roles 13:20 The "feature matching" process explained 20:30 Paperwork, prescriptions, and insurance approval 22:30 Loaner devices and training for families Memorable Quote "AAC makes sure that anyone, anywhere, at any time can say anything." About the Guest Lydia McKay and Staci Dover are Arizona-based speech-language pathologists who specialize in Augmentative and Alternative Communication (AAC). They work with individuals and families across home and school environments and are involved with Northern Arizona University's AAC Evaluation and Training Program. Their work focuses on helping individuals access meaningful communication through evidence-based AAC systems and family-centered support. Resources Mentioned • Northern Arizona University AAC Evaluation & Training Program • Arizona Speech-Language Hearing Association (ArSHA) • Arizona Department of Developmental Disabilities (DDD) About the Host Brian Keene, OTD, OTR/L, is the host of the Autism Family Resource Podcast and founder of Pure Hearts Therapy in Phoenix, Arizona. Pure Hearts Therapy provides neurodiversity-affirming pediatric therapy services that support children and families through compassionate, individualized care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

If your child is non-speaking or experiencing speech delays, you may be wondering what communication options are available to support them. In this first episode of a three-part AAC series, host Brian Keene sits down with Phoenix-based speech-language pathologists Lydia McKay and Staci Dover to explore the foundations of communication and language development. Together they unpack what communication really means, beyond just spoken words. Communication includes gestures, facial expressions, writing, texting, and visual supports like AAC devices. Understanding this broader view of communication can help parents better support children who communicate differently. Lydia and Staci also explain how language develops in early childhood, why interaction between caregivers and children is essential for language learning, and how tools like AAC can support communication without replacing speech. One of the most important takeaways from this episode is that AAC is not a last resort. There are no prerequisites for using communication supports, and children can benefit from them at any stage of development. This episode provides parents with a clear, encouraging introduction to AAC and practical ways to support language development at home. Topics Covered • What communication really means beyond verbal speech • The difference between receptive and expressive communication • How language develops during early childhood • Why interaction between parents and children supports language learning • Common myths about AAC and speech development • Why AAC can support communication at any stage • How AAC can help children express their thoughts, needs, and ideas Memorable Quote "If you're breathing, you're ready for AAC." About the Guest Lydia McKay and Staci Dover are speech-language pathologists in the Phoenix area who specialize in Augmentative and Alternative Communication (AAC). They work with individuals across home and school settings and provide AAC evaluations and training through Northern Arizona University's AAC Evaluation and Training Program. Their work focuses on helping individuals access communication systems that support meaningful participation in everyday life. Resources Mentioned • Northern Arizona University AAC Evaluation & Training Program • Arizona Speech-Language Hearing Association About the Host Brian Keene, OTD, OTR/L, is the host of the Autism Family Resource Podcast and founder of Pure Hearts Therapy in Phoenix, Arizona. Pure Hearts Therapy provides neurodiversity-affirming pediatric therapy services that support children and families through compassionate, individualized care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com

Many parents want to understand why their child may be experiencing certain symptoms rather than simply being told which therapies to pursue. In this episode of the Autism Family Resource Podcast, host Brian Keene speaks with Karen Thomas, founder of Naturally Recovering Autism and author who shares her personal journey supporting her son after his autism diagnosis. Karen explains how she began researching environmental health, nutrition, detoxification, and inflammation after noticing her son struggled with aggression, sleep issues, sensory overload, and anxiety. Through years of trial, research, and experimentation, she developed a structured approach focused on improving gut health, reducing toxic exposure, and supporting the body's natural healing systems. During the conversation, Karen outlines a four-stage framework she believes can support families exploring holistic approaches to autism-related symptoms. She also emphasizes the importance of moving slowly, making gradual dietary changes, and supporting both parents and children during the process. Brian also reflects on the importance of exploring multiple perspectives in care and taking a thoughtful, individualized approach to supporting each child's needs. Topics Covered Karen's personal journey supporting her son after an autism diagnosis The connection between gut health, brain health, and behavior Common dietary triggers that may increase inflammation The role of detoxification and environmental health Co-infections such as mold exposure and Lyme disease Why small, gradual changes can help families feel less overwhelmed Taking a holistic approach to supporting neurodivergent children Memorable Quote "Autism recovery is not a sprint, it's a marathon." About the Guest Karen Thomas is the founder of Naturally Recovering Autism and the creator of programs designed to help parents explore holistic health approaches related to autism symptoms. She began researching environmental health, nutrition, and detoxification strategies after her son was diagnosed with autism. Today she shares educational resources, programs, and support for families exploring these topics. Resources Mentioned Naturally Recovering Autism Karen Thomas Food Guide Naturally Recovering Autism Podcast About the Host Brian Keene, OTD, OTR/L, is the host of the Autism Family Resource Podcast and founder of Pure Hearts Therapy in Phoenix, Arizona. Pure Hearts Therapy provides neurodiversity-affirming pediatric therapy services that support children and families through compassionate, individualized care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com Connect with Karen NaturallyRecoveringAutism.com NaturallyRecoveringAutism.com/7foods Facebook.com/NaturallyRecoveringAutism Instagram.com/recoveringautism (@recoveringautism)

What do you do when your questions keep getting redirected and you still feel like something important is being missed? In this episode of the Autism Family Resource Podcast, host Brian Keene sits down with Debbie Kimberg and her son, Sammy, to share their family's experience searching for answers beyond the explanations they were initially given. Debbie discusses how years of persistent advocacy led their family to explore infections such as Bartonella and Lyme disease and how treatment changed Sammy's day-to-day functioning, learning, mood, and overall well-being. Sammy also shares his own perspective on school, medication, and what it felt like when things began to improve. Together, they talk about the long road to finding the right doctors, the impact of finally getting support that helped, and why families sometimes need to keep asking questions when something does not feel right. This conversation is a personal story, not a one-size-fits-all roadmap, but it offers an important reminder for families: your observations matter, persistence matters, and advocacy can make a powerful difference. Topics Covered Debbie and Sammy's journey searching for answers beyond initial diagnoses Lyme disease, Bartonella, and related infections as part of their family's story How symptoms showed up in school, behavior, mood, and eating The challenge of finding knowledgeable providers Why some treatments helped and others made things worse Sammy's experience with learning, special education, and improvement over time The importance of family advocacy and trusting your instincts Memorable Quote "It's okay to say no when something doesn't feel right." About the Guest Debbie Kimberg is a parent advocate and writer who shares her family's story to help other caregivers ask questions, explore options, and feel less alone. Her son Sammy is a high school student who enjoys singing, weightlifting, frisbee golf, and video games. Together they speak openly about their family's long search for answers and support. Resources Mentioned DebbieKimberg.com @hijackedbrain on Instagram @hijackedbrain on TikTok State and local Lyme support groups ProjectLyme.org About the Host Brian Keene, OTD, OTR/L, is the host of the Autism Family Resource Podcast and founder of Pure Hearts Therapy in Phoenix, Arizona. Pure Hearts Therapy provides neurodiversity-affirming pediatric therapy services that support children and families through compassionate, individualized care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com If you have a child or family with this condition and you are finding it difficult to access a good doctor, visit www.projectline.org to get a doctor's directory. Connect with Debbie Debbie's website: www.debbiekimberg.com Instagram and Tiktok: @hijacked brains

Mealtimes can feel exhausting when your child only accepts a small handful of foods and every attempt to introduce something new turns into stress. In this episode of the Autism Family Resource Podcast, host Brian Keene talks with registered dietitian Brittyn Coleman about picky eating, nutrition, gut health, and practical ways to support autistic children with limited food choices. Brittyn shares how her personal experience growing up with a brother on the spectrum shaped her work and why she now helps families expand safe foods in a way that respects sensory needs and builds confidence over time. The conversation covers where to start when a child only eats a few preferred foods, how to create a food sensory profile, why food exposure matters, and how small changes can make a big difference. Brittyn also explains how nutritional deficiencies can affect appetite, constipation, and food preferences, along with why supplements may help fill gaps while families work on food expansion. This episode offers realistic, parent-friendly guidance for families who want support without pressure, shame, or one-size-fits-all advice. Topics Covered Where to start when a child only eats a few foods How to create a food sensory profile Food chaining and small changes that feel safer Why exposure to foods matters, even without pressure to eat Supplements and when they can help fill nutrition gaps Constipation, hydration, fiber, and gut health support Food jagging and how to reduce burnout on favorite foods Cups, drinks, oral motor concerns, and sensory preferences How nutrient deficiencies can affect appetite and food behavior Memorable Quote "Small changes make a difference." About the Guest Brittyn Coleman is a registered dietitian, autism nutrition expert, and creator of the Autism Nutrition Library. Through her practice, Autism Dietitian, she helps families support picky eaters, improve nutrition, and better understand the sensory and medical factors that can influence feeding. She also offers programs, courses, and educational resources for both families and practitioners. Resources Mentioned AutismDietitian.com Autism Nutrition Library Healthy Poops Academy Nourishing Autism podcast Brittyn Coleman on Instagram Brittyn Coleman on Facebook About the Host Brian Keene, OTD, OTR/L, is the host of the Autism Family Resource Podcast and founder of Pure Hearts Therapy in Phoenix, Arizona. Pure Hearts Therapy provides neurodiversity-affirming pediatric therapy services that support children and families through compassionate, individualized care. Subscribe & Connect If this episode resonated with you, please consider sharing it with another parent who might benefit from this conversation. Listen and subscribe to the Autism Family Resource Podcast: https://pod.link/1591840956 Explore more resources for families at: https://pureheartstherapy.com Resources: Instagram: instagram.com/autismdietitian Podcast: autismdietitian.com/podcast

Guest:  Rach Wilson is a relationship coach for couples of neurodiverse children. Background/Importance Rach Wilson is not only a coach for couples with neurodiverse children, but she herself has two neurodiverse children. She has a wide range of expertise and experience to help a variety of couples through the challenges they face raising neurodiverse children. Rach is devoted to helping couples work through hard times, rekindle what's been lost, and thrive in their relationships to strengthen their bond and gain the skills to get through any conflicts that come their way. Statistics Raising a neurodiverse child is one the hardest jobs in the world, and it plays a significant role in a couple's relationships. At times it can cause a large amount of stress. Stress is the highest factor leading to divorce.  What is the main struggle you see among your clients? Some of the consequences that arise from stress are sleep deprivation and unintentionally forgetting to prioritize the relationship. This leads to distance, less intimacy, conflict, and ultimately destruction because the children come first. When walking into conflicts people often become defensive and begin to project while forgetting to take accountability for their role in the problem. People will play the blame game instead of trying to understand their partner. When communication becomes defensive reactions, problems will escalate drawing them closer to destruction. Oftentimes defensive behavior is stemmed from past trauma, whether it be from childhood trauma or from a past relationship. Every person comes into a relationship with baggage that causes unconscious behaviors to arise during conflicts.  What are the first steps in resolving issues and stress in relationships? When couples fall into a state of extreme stress they are unable to take on any new information or rationally deal with anything other than what they must do. The first step is to get out of "Death Valley". Once you are past that state of extreme stress, then it's a good time to reflect on what's been going on and work through problems. The best way to work through issues is to learn and implement better teamwork and communication skills. In order to build a stronger relationship with your partner you need to know yourself as well as your partner. Race mentions the Peace Process. During the peace process, you build skills to better learn about the triggers and baggage you both bring to the table and how to work through upsets as your best self. When you gain emotional awareness you can respond to each other in more real and honest ways.  How does someone get out of "Death Valley" when they're stuck? To get out of "Death Valley" the first thing to do is identify the problems going on with your child(ren) that are causing stress and meltdowns, then find a solution. Take the time to act on the small things like checking in with how your partner is doing. Give each other permission to openly vent and talk about issues going on to release built-up tension. Rach uses the traffic light system as an example. The traffic light system is made of three colors: green, orange, and red. There are three levels to orange. Green means everything is good, and red means you're at low capacity and need space to yourself handle burnout and the inability to communicate properly. The first stage of orange is when you're moving out of green, the second stage is where you try to identify what you need to help get better, and the last stage is red's around the corner. Sometimes it's a quick move from orange to red, and there's little time to counter the back to green.  Talk Therapy vs Coaching  Therapy is a good outlet to talk through things going on, but it doesn't teach you the skills to shift and change situations or learn skills to heal better emotionally. Rach has studied a lot of different areas of coaching that help give couples a "power tool set" for healing and transformation. Talking about issues can be an important first step in progress toward growth. Then when you learn your baggage and trigger you to understand each better you can learn the skills it takes to resolve problems as they arise. Over time upsets become builders to make couples stronger to thrive down the road.  What are some key takeaways for the listeners? Firstly, we all come into relationships with baggage and past trauma. Secondly, during heated moments we often project on one another because we are in defense mode like when our neurodiverse child(ren) is having a meltdown. Lastly, reach out to any professionals you may need to learn and work on the skills you need to build better teamwork and communication.  How do they get a hold of you? Website - Link down below  Action Plan: (some applicable things parents can implement at home) The traffic light system was a good example of how to identify better what's going on with yourself and your partner. Recap: It's impossible not to bring "baggage" to a relationship. Most of our ideas of how to be in a relationship come from what we have seen in prior relationships or caregivers Being in a healthy relationship requires skill building, and it can help to reach out to a professional like a relationship coach to understand how you show up and build communication skills to be more successful in your relationship. Resources: Website (Relationship Survival Guide is on the website) https://divinerelating.com/ Facebook (Private message Rach telling her you heard her on the podcast if sending a friend request) https://facebook.com/rachwilson Instagram http://instagram.com/divinerelating Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Resource Instagram: Purehearts_Therapy

Guest:  Crestina Yaiva is a stay-at-home mom of twins aged 9. She has a business of her own, making handmade jewelry using textiles. Her son Franco is on the autism spectrum as well as non-speaking, while Vincent is neurotypical. Overview: Crestina had noticed that her son Vincent is always so kind and loving to others, but when it came to his brother, he seemed to be a bit distant. Franco has always had a tendency to be somewhat isolated and play by himself. The boys would have decent interactions, but they seemed brief, and Vincent seemed to be a little more distant from his brother. Eventually, Crestina came across an article that really helped her bring her boys closer together. The article was centered around "not blaming the baby." This entails taking accounting for your time or how you are feeling and making an effort not to blame the sibling with more needs for being tired or not having time. Crestina began to rephrase the way she communicated with Vincent, and she began to notice that Vincent began to bond more with his brother and have less resentment towards him. Crestina still continues to be intentional about how she communicates about her capacity and needs and takes a neutral stance instead of "blaming the baby". Recap:  "Don't blame the baby" Avoid using one child as an excuse not to have attention or energy for the other child. Look for support groups like SARRC and Sibships for siblings of neurodiverse children. Resources: Sibshops SARRC https://autismcenter.org/sibling-support Autism United: https://azaunited.org/services/sibshops Crestina's Business Page Website https://cocochenzo.com/ Instagram https://www.instagram.com/coco_chenzo/ Episode 14: How to manage the emotions of the sibling of an autistic child https://www.pureheartstherapy.com/autismfamilyresource/how-to-manage-the-emotions-of-the-siblings-of-an-autistic-child Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Resource Instagram: Purehearts_Therapy  

Guest:  Rebecca "Becca" Stoddard is a pediatric occupational therapist and owner of Breakthrough Therapy based in Phoenix, AZ. Becca is enthusiastic about working with children and their families to help them achieve their gross motor milestones. Becca has completed 2 courses on Dynamic Movement Intervention (DMI). She plans to complete a 3rd course at the beginning of the year. With experience in visor therapy settings, Becca uses both intensive DMI therapy and ongoing weekly DMI therapy at her practice. She also offers a free gross motor skills screening that can be done virtually, in person, and at home.  Interview: What is Dynamic Movement Intervention (DMI)? DMI is a specialized, hands-on technique focusing on head control, trunk control, and achieving gross motor milestones. Some of those milestones are rolling, sitting, balancing, crawling, standing, and walking. DMI exercises look different from the traditional therapy approach. Some exercises use gravity and a lot of sensory input to get automatic responses from the child to help them reach milestones. There is also a unique box set that is used as the child gets older and progresses. One of the main parts of DMI is an emphasis on neuroplasticity. That's a fancy term for creating new connections in the brain. The key factor in achieving this is repetition to create those new pathways.  How do I know if my child would be a good fit for DMI therapy? When a child exhibits gross motor delays, it can be things like the inability to hold their head up, not being able to roll, and the inability to maintain balance while sitting up. In a study, gross motor delays can occur in up to 68% of children with autism. Children with autism are more at risk of delayed gross motor skills.  What are some red flag diagnoses that might be indicated for gross motor delay?  There is a wide range of diagnoses that can include gross motor delay. Some of the main ones are cerebral palsy, spinal cord injuries, traumatic brain injury, gross motor delays, and development delays. Every child is different and can be a possible candidate that can benefit from DMI therapy.  What is an example of what DMI therapy may look like for a child?  One example could be putting a child in an inverted upside-down position to work on core strength. The brain will automatically want to be upright when in an inverted position. Putting a baby in that position will force the body to create the desired response to be upright. Another example would be an exercise focusing on walking and stepping up on a surface. The thigh would be supported as the child tries to step up onto a box. DMI support goes from proximal to distal. As the therapy progresses, the support will go from the hips to the thigh to the ankles.  What can a parent do at home to help their child strengthen and build gross motor skills?  Parents can take their children to the playground and practice going up steps without holding onto the railing. With a baby sitting on the lap, lean him/her backward, and give the baby a chance to try and sit up to build belly muscles that work out core strength. When laying down, aid the baby with holding him/herself up with his/her arms and exercises on the knees. A website Becca refers her clients to is pathways.org as a reference to what to expect maybe their child to be doing at certain ages.  Recap:  - Work on core strength - Encourage play in various positions - Physical play with toddlers and slightly older children    Resources: www.DMItherapy.com Pathways.org | Tools to maximize child development www.breakthrough-therapy.com Instagram: @breakthrough_therapy_dmi Article Reference Research reference: Hedgecock, J. B., Dannemiller, L. A., Shui, A. M., Rapport, M. J., & Katz, T. (2018). Associations of Gross Motor Delay, Behavior, and Quality of Life in Young Children With Autism Spectrum Disorder. Physical therapy, 98(4), 251–259. https://doi.org/10.1093/ptj/pzy006   Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Resource Instagram: Purehearts_Therapy

Guest: Jodi Thomas is a language pathologist and owner of Growing Voices Speech and Language Therapy based in East Valley Phoenix, AZ. Jodi Thomas has training in autism and gestalt language processing and opened her private practice to give children the 1 on 1 attention they deserve.  Interview: There are two ways children develop language: analytical and gestalt. Children with autism often develop language using gestalt, and that requires using a different framework for evaluations and treatment to adequately meet their needs. Gestalt means whole. One key factor that is focused on with gestalt is echolalia. Echolalia is the repetition of another person's spoken word.  Different Types of Echolalia There are three types of echolalia. The first type is immediate echolalia. With immediate echolalia the child will simply follow another person's speech. The second type is delayed echolalia. This type of echolalia tends to happen at a later time and can be produced with no communicative intent. This manner in a way a child communicates is called scripting. This means that the child is repeating words or phrases they're heard from a parent or tv show. The last type is mitigated echolalia. This is where the child will make a change in wording or intonation made by the person that is speaking to him or her. These different types of echolalia are important to appropriately use gestalt language processing to treat a child.  Different Stages of Gestalt Language Processing  Children who develop a gestalt way of language development learn communication phrases in chunks. In stage 1, a child will start by simply mimicking phrases they hear. During this stage, they will repetitively use the phrases they have acquired and will even attempt to copy the tone of voice the original speaker has. In stage 2, a child will start to break down the chunks of phrases they've stored. A child will begin pairing those phrases together and even start to pair them with new words. Oftentimes they will also start to mix and match different echolalia with their phrases. When a child reaches stage 3, they will use two-word combinations with singular words. This can appear like a backslide in their language because the utterances of phrases can become shorter. During stages 4, 5, and 6, a child can self-generate sentences, learn grammar, and begin to answer questions. During all the stages, it's important to validate your child's communication and help them model new phrases to build their gestalt up. During all stages, try not to ask too many questions as it may overwhelm and frustrate your child.  Ways to Model New Gestalt Phrases  A child first needs to learn new phrases that can be broken down when he/she reaches stage 2. Some common mitigated phrases that can help a child do this begin with the words let's, it's, and I'm. Judy Thomas has noticed that many speech therapists try to use phrases that begin with "I want," and this phrase can cause a child to get stuck in their development. The goal is for a child to create spontaneous utterances and not just memorize phrases. The best time to help a child model new phrases is during natural child child-led play.  Recap: Don't ignore your child's echolalia. This is an important part of how your child communicates by learning the meaning behind your child's use of phrases will help move development along.  Model back-and-forth phrases through natural play to make learning fun for your child. Remember not to ask too many questions that may frustrate your child and cause him/her to shut down. Walk through the steps of the gestalt learning process appropriately with the help of a speech therapist.  Resources: https://www.growingvoicestherapy.com https://www.facebook.com/growingvoicestherapy  https://www.instagram.com/growingvoices.speech/  https://www.meaningfulspeechregistry.com https://www.meaningfulspeech.com/blog/twotypesoflanguagedevelopment   Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Resource Instagram: Purehearts_Therapy

Guest: Lenora Edwards is a Speech Language Pathologist for BetterSpeech.com. Along with over 150 other licensed therapists with an average of 10 years of experience, BetterSpeech.com is a nationwide online platform. They offer a free consultation on how they might help you or your loved one with appointments that include evenings and weekends. With varying prices to suit your needs, they even offer itemized bills to submit for reimbursement for those with qualifying insurance. Interview: In today's episode, we're going to learn some of the red flags that your child might be exhibiting when it comes to speech and communication delays, and when to consult a speech therapist. What are some red flags to look out for, and when is it appropriate to get a speech evaluation? During the early developmental stages children first experience receptive language, such as when you tell your child you're going to pick him/her up. During this time children are learning the tones in our voice, and begin to learn what things mean. Children begin to understand language before they gain the ability to express it. Some things to look out for are how your child responds to the information you are giving. When you call your child's name does he/she respond? Does he/she look at your face? Does your child follow the directions you are giving? Does the response you're getting show that your child understands what you are saying? If you have any cause for concern in delays of speech and communication it is in your best interest to consult a speech therapist. Would you say that if there is a lack of receptive communication that would be a good time to get a consultation? Absolutely!! Some red flags to notice are lack of eye contact, not working to engage attention, or not following simple directions like come here. When you model what you're asking your child can he/she model after you? Remember to keep talking to your child, and give your child the opportunity to communicate with you. Take your time, be patient, repeat what you want your child to do, and allow time for your child to process what you're asking. What are some of the signs of concern when it comes to expressive language? For children in the younger stages babbling is a form of communication, as they grow older children then string together a series of consonants and vowels. If your child is only speaking in vowels or using a repetitive word that may be a red flag and need for a consultation. When you speak to your child make sure he/she can see your face to model after you, but if your child isn't making eye contact or engaging with you when you are speaking that could be a sign of concern. What are some strategies parents can do at home? Offer opportunities for your child to communicate with you Playing developmental games Recap: When it comes to speech and communication development children learn to express themselves by learning from us. Keep talking to your child, and make sure what you're saying is digestible and not too much all at once. When in doubt, reach out BetterSpeech Resources: Website: https://www.betterspeech.com/ Facebook: https://www.facebook.com/yourbetterspeech/ TikTok: N/A Instagram: https://www.instagram.com/betterspeech/ Linked In: https://www.linkedin.com/company/better-speech/mycompany/ YouTube: https://www.youtube.com/c/BetterSpeechVideo   Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Resource Instagram: Purehearts_Therapy

Guest:Janis Leinfuss, Amanda Newchok, and Erin O'Hara are the creators/authors of the Ready to Learn and Play framework. All are practicing pediatric occupational therapists each with over 20 years of experience. Interview:Ready to Learn and Play (RtLP) is teaching the "why" behind sensory regulation. TheRtLP framework solidifies sensory regulation-learned concepts through the meaningful understanding of WHY child-specific sensory-based interventions are beneficial, and HOW to choose effective sensory strategies based on exhibited sensory clues. Why was the program created and how was it developed?While doing group treatment sessions with students who had been receiving sensory based interventions for years, there was a realization that the students had no ownership of their treatment or have the ability to help create effective therapy plans. It took years of planning, creating, and gathering evidence to support the RtLP framework. As part of Janis' doctoral research, a pilot study was conducted. A second follow up study was conducted with a larger sample size, as well as a third study that was done completely virtual due to the pandemic. This allowed the framework to be proven that it can be conducted in person as well as virtual to suit individuals needs. While conducting the three studies there was a large improvement in occupational performance. A scope was done for pre and post testing analysis to show occupational performance improvements in day to day activities involving components that were motor based, social and emotional. What are the 4 phases of the framework? Phase I is Sensory Experience:For the first phase students are exposed to various sensory strategies and techniques that teach them the multiple ways we can get sensory input. The students get to learn about the different sensory systems and how it affects them. The students categorize different sensory activities by pairing flash cards and visual supports. This is a neuro-educational step that involves an organizational memory strategy that improves memory recall. Phase II is Sensory Choices:In this phase the students learn about the combination of sensory strategies that can be used to best suit processing needs. The main focus of this phase is to teach the student about sensory regulation, such as when you might need to stimulate or repress different sensory systems. Some sensory behaviors are referred to as scattered actions, so in this phase the students are taught that these behaviors are clues to identifying sensory needs. The students are coached on how to connect the scattered action and the sensory category. This phase is all about empowering ownership of self regulating by allowing the students to customize and create sensory strategies that will work best for them as an individual. A unique aspect of this framework is that you get to reshape the negative context of sensory dysfunction and behaviors, and turn it into a positive tool that helps individuals become better informed when making decisions about their sensory needs. Students get to learn more about themselves to better understand and assign the reasons behind their sensory behaviors. This turns a complex concept into a simple understanding. Phase III is Generalization:This is the phase where students begin to practice the skills they've learned in various environments, and with various people. Throughout this phase students gain a better understanding that not at all strategies, techniques and supports can be used for all contexts. The practice of generalizing the knowledge they've learned about regulation supports from the previous phases helps the students to further maintain and recall sensory regulatory concepts long term. The main focus of phase III is to reflect on what they've learned so far about their options to support their regulation needs whether they are in the classroom, with their family or out in the community. Phase IV is Application:The final phase of the RtLP framework is to apply everything they've learned ongoing in every aspect of their daily lives. Supports are individualized to each student's needs. The goal of this phase is to create a sensory lifestyle to maximize participation and performance. Throughout this framework a student and their educator gain an understanding of personal sensory needs to create unique strategies that are impactful to regulation. Sensory processing disorders can get in the way of fully engaging in one's environment, so caregiver coaching is a very big element. While trying to achieve the right level of internal balance, this long standing phase may increase the students' readiness to learn and ability to more effectively access their educational programs in order to improve occupational performance. Example of how someone may implement this plan: In Phase I a child is learning about their sensory experiences and strategies to manage their needs. In Phase II a child might be exhibiting sensory clues by squinting his or her eyes as well as tensing their muscles. With coaching the child and caregiver can connect the scattered action to the system of eyes and pressure. Reflecting on the categories of eyes and pressures, a strategy or support can be chosen. That could mean wearing sunglasses and squeezing a stress ball. An example of Phase III would be looking at pressure-based options across environments. A big, bear hug might be acceptable with a trusted family member, but not so much as a young adult in a work environment. Phase IV is about maintaining a sensory lifestyle How can the guest be contacted about starting the RtLP framework? If your child is seeing an OT, talk to your child's occupational therapist about seeking outmore information in regards to the Ready to Learn and Play framework. Parents can also contact us directly to compliment what they or their therapists are already doing. Ready to Lean and Play offers professional training as well as parent and school based training. Recap:The ready to learn and play sensory regulation Framework was created by Janis Leinfuss, Amanda Newchok, and Erin O'Hara. It was created to empower caregivers and kids to better understand sensory processing needs and be able to develop strategies to help kids self-regulate in various contexts. The framework has 4 phases. Sensory experience, sensory choices, generalization, and application. Phase I: Sensory Experience involves exploring various sensory inputs and learning to categorize those sensory experiences and learning sensory regulation strategies. Phase II: Sensory choices involve using behaviors (scattered actions) as clues to understand what sensory needs there may be and empower the child to use the learned strategies to be able to self-regulate. Phase III: Generalization involves applying sensory regulation strategies to various contexts and environments. Phase IV: Application involves providing ongoing supports to create a "sensory lifestyle" Resources: Ready to Learn and Play contact info: Facebook @Ready to learn and play   Website: www.readytolearnandplay.com  Email: [email protected] Phone: 201-563-2773 Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Guest: Michele Thorne Interview Parents and caregivers of children with autism often feel overwhelmed. They can feel uncertain on where or how to learn about ways of taking care of their own needs, as well as absorbing all the knowledge they can obtain to create strong, healthy, and empowered lifestyles for their families.  Michelle Thorne is a mother of two children. She is the Founder and Executive Director of Care 4 the Caregivers that is based out of Arizona. Michelle was living a planned life that was taken off course when her children were diagnosed with autism. She fell into a deep depression that led to the question of why there was no organization dedicated to the needs of supporting parents and caregivers in her new community. In her opinion, the disability community as a whole is sorely overlooked, so she set out to create an organization that provides support and access to resources available to the public.  What sort of resources does Care 4 the Caregivers offer?  Educational webinars of various topics  21 day fitness programs that can be done at home Guided meditation Roadmaps that are step by step guides to navigate systems of care Parent Empowerment course: Stepping Stones Triple P How does a family access the Stepping Stones Triple P program?  Through grants the program is taught all online through the Care 4 the Caregivers website. Families from other states may access the program as well. They are currently offering free life coaching for caregivers. Partnered with the Arizona Caregiver Coalition, there are also free health and wellness coaches for the caregiving community.  Are all the services free to parents?  Yes!!! The goal is to provide completely free services and resources to the community.  There are also some free events for the caregiver to attend and enjoy.  Visual supports for families On the Care 4 the Caregivers website you can go to the resource by topic section to find visual supports without having to jump through hoops. Through the work of an Arizonan illustrator you can find free visual support on techniques like getting dressed or hand washing.  Take away message from guest  The beginning years are difficult, but you're not alone. There is a community of men and women that can be huge levers of support. Find your Tribe!!!  Recap Michelle faced struggles understanding the system, and how to raise her children with limited resources Michelle created Care 4 the Caregivers for those who are going through similar struggles Care 4 the Caregivers provides a variety of free resources Michelle encourages finding a support system that can become your tribe Resources: Care4thecaregivers.org Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Guest Speaker Crestina Yaiva is a mother of twins. She and her husband have one child who has been diagnosed with autism, and struggles with communication. She shares her story, and how she learned to overcome obstacles of communicating with her non-speaking child.  What were Crestina's first thoughts and feelings when she learned her son was autistic?  Around three years old Crestina noticed that Franco had some speech delays, and wouldn't talk as much as his brother Vincent. When he was officially diagnosed around the age of four, Crestina felt somewhat relieved to have a place to start understanding her child better. However, she was also very overwhelmed by all the information and such that was being given to her. The first thing she did was join every Facebook group she could find from local to national. Her focus/goal was to learn how to better handle her son's diagnosis.  After some research, what did Crestina do to solidify her next moves?  Once Franco completed testing, he was set up with a developmental pediatrician. Crestina was given a research book to help guide her on this new journey with her child. Crestina jumped into action setting Franco up with speech therapy, occupational therapy, and any other type of therapy that would aid in her son's development. From there, she searched the internet for any reading material to further her knowledge. There were a couple books that proved to be very resourceful to her and her husband. Crestina found the book The Reason I Jump by Naoki Higashida to be her favorite. It truly helped her understand some of her son's behavior, such as the random breakdowns and sensory overloads her son went through without her knowing the cause. She realized in her son's mind time is not linear, and that changed her perspective for the better. As for her husband, the book Not My Boy by Kelly Simmons caused him to find a way to better cope with his son's diagnosis and build a stronger relationship with him.  What are some learning points that helped Crestina to connect more with her child from a non-speaking perspective?  As a mother Crestina has the natural ability to anticipate her children's wants and needs before they could even try to tell her. Crestina had to learn to take a step back, and create more opportunities for her son's to find ways to express themselves without her doing it for them. This would help them to expand their communication skills.  What are some examples of how Crestina created opportunities for her children to learn to communicate on their own? Crestina did her best to keep everything in sight, but out of reach. This included anything from toys to snacks. Her husband even built shelves to help as well. Through trial and error they began to find ways for their children to use different methods of body language and such to communicate their needs. What is the advice Crestina would give to other parents with non-speaking children?  The biggest thing is to have patience. Children will not always communicate the way we may expect them too. Remaining open, receptive, and  acknowledging of your child's style of communication you can provide a sense of comfort and reassurance they will need.  Recap: Seek the guidance and aid of a developmental pediatrician.  Understand your child's perspective, and find ways to connect Anticipate behaviors and communication, but find ways to create learning opportunities for your child to communicate. Resources: Recommended articles related to non-verbal communication https://www.thefca.co.uk/fostering-autistic-children/communicating-with-a-nonverbal-child/ https://www.friendshipcircle.org/blog/2013/04/16/23-ways-to-communicate-with-a-non-verbal-child/ https://www.appliedbehavioranalysisedu.org/6-strategies-for-encouraging-a-non-verbal-child-to-communicate/ Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Guest Intro:  Dawn M. Barclay is an award-winning author with over 30 years of experience in her career of learning and sharing the different aspects of travel. After graduating from Tufts University with degrees in psychology and marketing, she began working as an agent at her parents' firms, Barclay Travel Ltd and Barclay International Group Short-Term Apartment Rentals. From there she moved on to the business of travel trade reporting. She held the titles of senior or contributing author for Travel Agent Magazine, Travel Life, Travel market report, and most recently Insider Travel Report. Dawn is a mother of two residing in Hudson Valley, NY. She writes fiction under the alias of D.M. Barr while maintaining leadership roles in several writer organizations. Her new book Traveling Different is available now to preorder in hardcover form or as an audiobook. Interview: As far as travel is concerned, what is the biggest concern among families? Families with special needs are often nervous about the sensory issues they will encounter, the meltdowns that may occur as a result, and how those around them might perceive the situation. In a study by the IBCCES (International Board of Credentialing and Continuing Education Standards), out of 1,000 parents with special needs children interviewed 87 percent of them choose not to travel. From that group 93 percent would travel if they knew where to go or what to do.  What inspired Dawn to write her book Traveling Different? In the early 2000s Dawn looked for a book that could help guide her, but was unsuccessful. In 2008 she started interviewing for the book she has now written. She spoke with autism and ADHD professionals until she hit a wall. When she discovered the IBCCES group a program they created helped navigate her way to writing her book. Due to the covid pandemic she utilized her time to conduct research and a series of interviews for which the book is based on.  Recap: 1- Preparation: Children with sensory issues need a sense of predictability. Give your child a start to finish preview from the trip. This can be done in a few different ways.  Think through from beginning to end Preview it for predictability Social stories, videos, experiences (house or friend) 2- Make the trip "child-centric'': Plan a trip around their needs and interests.  Plan the trip around their needs Pace activities during the trip Cater to their special interests 3- You have resources: There are several hotels, airlines, and travel sites that have labeled themselves as autistic friendly or certified autism centers that have devoted their time in training individuals to handle those who have special needs.  Her book lists phone numbers and URL's for many places Museums, parks may have special travel related events and activities that's Autism friendly. Her website is constantly being updated Resources: www.travelingdifferent.com www.dawnbarclayink.com Autistic Family Travel Resources in Arizona https://www.visitmesa.com/autism-travel/ https://arcarizona.org/what-we-do/wings-for-autism/ https://www.azcentral.com/story/entertainment/events/2020/04/09/autism-friendly-places-phoenix-pal-experiences-diamondbacks-suns-mercury-restaurants-museums/5006120002/ https://www.belikebuddy.com/arizona Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Guest Introduction: Catie Sondrol is an occupational therapist and co-owner of Milemarkes therapy who has served many families throughout the Mohave Valley county in Arizona for the past 18 years. They provide occupational therapy, speech therapy, physical therapy, music therapy, habilitation, and adult day programs and work service programs.  She has completed mentorship training with the STARS Institute and Avanti Therapeutic Projects. Interview from the dialogue: How would you in your own words describe sensory difficulties for the client's you have seen in your past? Confusion, disorganization, or chaos of inputs to the body.  When the brain is connecting the dots, the 8 senses afford a clear understanding of what's happening both inside and outside of the body.  But when the mangled messages become impairing or overwhelming it can lead to a variety of defensive behaviors. Do only children on the spectrum experience sensory issues? No, sensory doesn't discriminate.  Oftentimes there is a comorbidity.  Sometimes there isn't.    What may sensory processing difficulties look like? Avoiding or shutting down, fleeing or escaping, or anger and fighting.  When the body becomes overwhelmed by an input or is confused by how to process the input these external "behaviors" are what we often see.  Routine and structure become input in the person's life so that they can structure their environment to minimize the likelihood of experiencing the noxious sensory event. What are the various sensory (senses) that individuals may have trouble with? We all learn about our 5 senses in school.  So of course those are senses we can have trouble with.  But in OT school we learn about 3 other senses.  Interoceptive, vestibular, and proprioceptive. Is my child hyposensitive or hypersensitive? We need to be careful with over all classifications or generalizations.  Individuals are often a mixed back of this and it is specific to the sensory system.  Example I might be hypersensitive to vestibular input meaning I don't like to swing and feel like I am going to throw up, but I might be hyposensitive to touch which means I seek a lot of touch and deep pressure.   We are talking about implementation of a sensory diet. You like to call it a sensory lifestyle. Can you elaborate more on that? A diet is a planned and scheduled activity program designed to meet a child's individual sensory needs.  A diet is something you discontinue.  A lifestyle is something you maintain over a lifespan.  Our sensory systems evolve and change as we grow, mature, have different environmental demands, etc.  so it is only natural that your sensory supports need to grow and change too. Sensations are like "food" for our nervous system.  Without a good supply and wide range of sensations the nervous system cannot develop to it's maximum potential.  Look at your own sensory lifestyle: when you are stressed do you chew gum, smoke, go for a run, punch a punching bag….. How do you implement a sensory lifestyle? Remember it is individualized!  Sensory experiences should be part of everyone's day, every day.  Play is an essential part of a child's development and is enriched with lots of sensory experiences.  You need to consider the "why" or what the person is trying to get from the current sensory inputs in their day. Need to consider the frequency….how often should they get input Consider the duration….when they get it for how long do they need it Consider the intensity….how much of it should they get…what is the impact…the bang for your buck! *Remember if there is a sensory "behavior" you are trying to eliminate you can't take away because it has a purpose (example chewing on a shirt)….you have to know the "why" and then find a socially appropriate replacement that will meet or exceed the threshold the body is receiving from it. ***It should leave a child feeling organized, good, and grounded. Doesn't always have to purchased equipment….get creative with play.---making a fort, ninja warrior Sensory "smart" home: quiet spaces, reducing visual clutter Pressure garments Fidget toys Weighted blankets or vests Chewable "jewelry" Colored lenses Noise reducing headphones Music Bouncy or moving chairs Swing Dream pad Lycra bed sheets Recap: Sensory processing is: How we take in, understand and organize the sensory input we receive in our world.  Sensory processing difficulties happen when a person is not effectively processing the sensory input they are receiving. This can present as behaviors in an attempt to manage the input. The 8 senses that can be impacted by sensory processing difficulties are: Touch Smell Taste Vision hearing Vestibular inner ear where we are at and orientated Interoception internal environment sleepy hungry Proprioception pressure joints movements When implementing a sensory lifestyle remember:  Your child may need a lot of input from one sense and little or less input from another sensation.  Consider frequency, intensity, and duration of the sensory activity Continue to make adjustments as our sensory needs may change day to day and overtime. Resources: To learn more about Milemarker's therapy in Arizona or to reach out to Catie directly for more resources visit: https://www.milemarkers.us/ Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

As an occupational therapist, I'm often dealing with or having interactions with the siblings of the clients I work with during therapy especially if they are younger in age. I regularly see how excited siblings get when it's time for therapy and their desire to want to participate as well. Unfortunately, the siblings of the children I work with aren't always able to participate and this can lead to confusion, frustration, and feeling left out. And this isn't just limited to just my therapy sessions. These misunderstandings can carry over into doctor appointments, school, and community settings. I'm going to address some commonly reported emotions that siblings of special needs children have and provide you strategies for you to address these feelings. 3 commonly, reported emotions expressed by siblings of special needs children are feeling left out, having to do too much, and inability to express their feelings. Feeling isolated or left out: Siblings of special needs children want to participate and be included in all the fun happenings for the family. Don't we all? This desire to be included is multiplied when their sibling has "fun" therapists who bring fun activities for their sister and brother each week. It's not just therapies at home. If your child has any specialty appointments outside of the home it can feel like they are missing out on a lot of fun from the outside looking in. Action Plan: Schedule 1 on 1 time with each child Find a time during the week with 1 on 1 time with your child providing undivided attention Allow your child to express themselves Allow your child to lead the conversation Make it about them and not the other sibling This time could be as short as 10 minutes the important thing is the intention and taking the time to create this space. Communicate with your child Communicate with your child about an perceived disparities Explain at an age appropriate level what therapies are for Begin to explain Autism and how their sibling may need some extra support as we all need various levels supports throughout different phases of our lives. Find ways to make sure all your children feel loved Explore family activities where everyone can be involved. Have each child be able to participate at a level that is appropriate for them. Feeling like they are asked to do too much/burnout Siblings often take on caretaker or protector roles of their siblings especially if they are older. Some of these role may be requested by you and others the sibling may feel like its their duty. Once common example is if both children go to school together. Your neurotypical child may see their sibling struggling at school physically, emotionally, or socially and they may feel like they got to protect them from other students or from getting hurt. At home, it's common for parent's to feel overwhelmed and ask their child for help. This is not wrong and expected in certain cultures. This can cause frustration and burnout though if these extra tasks become expected or if your neurotypical child has begun to take on a caretaking role for their sibling. This could easily feel unfair and unjust and lead to your child feeling like they can be a kid. Action Plan: Clarify responsibilities If you notice your child is doing more than what is required make sure to clarify what is a child's responsibility and what is the parent's responsibility. Express appreciation Make sure to provide verbal appreciation for the way your kids contribute around the house Self-Check Check-in to see if what you are asking of them is fair Every families values and customs are different Does all your children have the opportunity to explore, learn, and be a kid? Maybe consider ways of possibly expanding your support group if you are feeling overwhelmed. Feeling like they can't express their feelings along with confusion, guilt, or embarrassment. As siblings continue to get older and begin to notice more differences in their siblings behaviors compared to their peers they may feel confused, embarrassed, and that they don't have space to express themselves. When there isn't communication and discussion related to the differences between your neurodiverse child and neurotypical child then your neurodiverse child's behaviors or diagnosis could be perceived as a secret. With this in mind they may also feel like their needs are lesser and that they may not have the right to be "needy". Also if there is a lack of communication they may not feel like they have the space to express themselves and their frustrations in a healthy manner.  Action Plan: Communicate Teach them about autism at an age appropriate level Stemming Social skills Revisit top from time to time. Allow space to express their honest feelings without judgment and encourage honest communication Consider a counselor and/or support groups If any of your children are showing any distress or struggling consider consulting a mental health counselor. They can help your child express and understand their emotions that can feeling confusing and frustrating. Look for support groups: In Arizona, there is a support group for siblings of children with special needs called Sibshop and it is hosted by Arizona Autism United. These are 1 hour meetings where children ages 7-14 can connect, relate, and talk about their emotions. Currently these meetings are virtual but should return to in-person sessions eventually.   Recap: Siblings of special needs children may feel a variety of emotions due to the complex family landscape. Common emotions/feelings include: 1. Feeling left out, Asked to do too much, and inability to express themselves. Feeling Isolated or left out Schedule 1 on 1 time Child led About them Communicate with child Talk about Autism Let them know why there are differences at home Find ways to make sure all your children feel loved Family group activities Asked to do too much  Clarify what's their responsibility and what's parents.  Words of appreciation go a long way when your children are contributing and helping out. Check in with self to see if what you are asking is fair Unable to express self, confusion, guilt embarrassment Communicate, Communicate, Communicate Teach the siblings about Autism Provide spaces for open communication Consider counseling or support groups like sibshop Resources: Sibshops https://azaunited.org/services/sibshops Arizona Autism United hosts Sibshops which is held on the first Saturday of each month for neurotypical siblings of children with any type of special need.  Siblings must be between the ages of 7 to 14 to participate. Registration is required and your first session is free! Right now sibshop free and is 1 hour and via zoom until they return back to in-person. Washington Post Article: 8 things siblings of children with special needs struggle with https://www.washingtonpost.com/news/parenting/wp/2016/12/20/8-things-siblings-of-children-with-special-needs-struggle-with/ Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Guest: Christina Broderick Christina's Story: Christina Broderick is a mother of 2 special needs children with Autism. Her oldest son has a rare disorder called Phenylketonuria (PKU). Phenylketonuria is a rare disorder where individuals cannot break down the amino acid that make up proteins in our food. As a result, the amino acid Phenylalanine builds up in their blood or brain and can lead to brain damage if accommodations aren't made. Her son was the first PKU diagnosis in over 30 years in her town of Lake Havasu City, Arizona. As a result, resources were limited. In 2010, Christina as a 19-year-old mother struggled to find a formula that was safe to feed her son. The formula she eventually found was very expensive! Christina also didn't have a PKU specialist in her town, so she had to travel frequently typically 3.5-hour drives to Phoenix, AZ to see a specialist and get resources suitable for her son to include testing kits. For awhile all her son could eat was Rice Cereal. Christina was contacted by a representative of NORD (National Organization or Rare Disorders). NORD is a nonprofit 501(c)(3) provides assistance programs to help patients obtain lifesaving or life sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists. NORD helped Christina with resources a variety of resources to include food, gas reimbursement, medications, and funding. NORD also introduced her the company CAMBROOKE, which provides nutrition for those with serious medical disorders like PKU. When Christina's son turned 6. NORD also introduced Christina to a new medication from Biomarin that was initially introduced for diabetic persons. The manufactures believed that this drug would be effective for individuals with PKU and began a study which included Christina's son. The medication Kuvan made by BIOMARIN ended up being effective for her son. NORD's pay for all her son's PKU medications. Christina reports that NORD will provide support for undiagnosed individuals as well. Recap: If you have a child with a rare disorder like PKU, reach out to NORD. NORD provides education support programs, funding, and resources for individuals with rare disorders. Cambrooke provides low protein foods for individuals with PKU BIOMARIN provides medication for individuals with PKU. Regardless of your child's diagnosis, you can become your child's number 1 advocate by reaching out to see what resources may be available out there that will help your family through tough times. Christina works at RISE Services, Inc. Rise Services Inc. provides services that support children, adults, and families throughout Arizona, Utah, Oregon, Texas, and Idaho. https://riseservicesincaz.org NORD https://rarediseases.org/for-patients-and-families/help-access-medications/patient-assistance-programs-2/ NORD Mission Statement: NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. CAMBROOKE https://www.cambrooke.com/ Ajinomoto Cambrooke (formerly Cambrooke Therapeutics an expansion of Cambrooke Foods) was founded in 2000 by Lynn and David Paolella, the parents of two children diagnosed with a rare disease called phenylketonuria (PKU). PKU is one of the few genetic diseases, which is managed almost entirely with nutritional intervention. The Paolellas' goal in forming Cambrooke was simple - to develop improved nutritional therapeutic options for those with serious medical disorders. BIOMARIN https://www.biomarin.com/our-treatments/products/kuvan/ Kuvan® (sapropterin dihydrochloride) Tablets and Powder for Oral Solution is the first FDA-approved medication for phenylketonuria (PKU). Kuvan is a form of BH4, the cofactor of the PAH enzyme, which helps the enzyme break down Phe. Kuvan is to be used in conjunction with a Phe-restricted diet. Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Guest: Abigail Wool-Biringer.  Abigail is an occupational therapist and specialist in executive functioning skills as they relate to ASD, ADHD and more.  Background: Even with structure and support your child still may be exhibiting behaviors that may be tied to executive functioning development.  What is executive Functioning? Executive functioning skills are a set of cognitive skills that basically function as the boss of the rest of the brain. They help plan, organize and delegate. They inhibit impulsivity and emotional responses. They keep track of time and problem solve when things are not going well. They allow us to learn from past mistakes and adjust behavior for the future.  What might executive functioning difficulties look like?  They show up in so many ways. Difficulty starting a task that is boring, repetitive or too challenging - so like homework, chores, getting off of something super fun like electronics and into a bedtime routine. They also might show up in ways like difficulty engaging at school, being flexible with the unexpected changes in routine, staying regulated when upset or frustrated, and so many more ways.  If I'm a parent what would be some signs? The signs are all behavioral. Your child is DOING something that is causing difficulties at home, school, or the community. You can look to executive functioning to see if that could be a potential cause.  If a parent suspects their child is having executive functioning difficulties what should they do?  The first change should be to change your mindset. Dr. Ross Greene calls this a lens change. When you view your child as struggling with the EF skills, you can soften your approach. You can understand that these are skill deficits and not something that they are willfully doing in order to make parents or school staff life hard. So the first step is recognition. The next step is to problem solve and figure out what is hard for them and how can you help support them while they build those skills. What is a tool or activity/s that can promote executive functioning skills? Allowing your child to TRY when it comes to things like impulse control, flexibility, time management, organization, planning and more. Give them opportunities to problem solve and figure out what works for them while at the same time not allowing them to get so frustrated and overwhelmed that they never want to do it again if they experience failure. These skills take 20+ years to develop! Recap Executive Functioning is: A group of cognitive skills that are not fully developed until after age 20 but include all of the "boss" functions of the brain like planning, organizing, managing time, finishing a task and putting off more preferred activities while maintaining emotional regulation Signs of Executive Functioning difficulties could look like: Difficulty with any daily task or routine Big emotional responses to what may seem to others to be less of a big deal Difficulty shifting perspective or plan when something is not going as expected Academic, Home, or Community struggles that show up in a pattern of "behaviors" If you think your child may have executive functioning difficulties you can: (today's tool) Shift your perspective to understand that they are struggling with a skill set first and not being purposefully bad Seek help and resources to guide your child to strengthen the EF skills that they need help with How can they reach you for more questions? Kids Empowered 4 Life https://kidsempowered4life.com/ Abigail currently has an online program about executive functioning skills.  She also does one on one assessment and coaching/sessions,  group coaching for teens online, parent coaching and is developing a series of workshops for parents. She has created a FB support group - Arizona + ADHD parent support. She is a tireless advocate for problem solving WITH your child and moving away from rewards and punishments b/c those do not build skills. Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Episode 10 discussed the importance of establishing safety and consistency, through the use of schedules and routines. When responding to behaviors, we want to continue to have compassion and stay consistent with how we respond to our child's meltdowns. I want to remind you that all behaviors are a form of communication. Kids learn new behaviors from what they see and what has been modeled. Unfortunately, certain behaviors can be maladaptive and inappropriate so it's on us to teach our children how to more effectively respond and communicate with others.  To address behaviors and meltdowns, you need to: determine the cause of the behavior remain calm teach new behavior responses Determine Cause of Behavior One of the best ways to determine the cause of a behavior, is to ask your child with genuine curiosity. Be aware of your tone and body language Use a tone is calm, slower, and safe. If your kids feel safe they are more likely to open up and communicate.  If you are loud and frantic your child is going to respond more erratically. By having control over our tone we are not only controlling the mood of the conversation and also modeling a positive behavioral response. Even if your child has limited communication skills, it's still important to remain calm when communicating with our children.   You also want to take the opportunity to ask your children about their behaviors because it makes them feel heard and seen,  it also gives them an opportunity to actually reflect on why they responded the way they did. Oftentimes your child may not know but that is ok. Your child is learning to reflect and learn about themselves. If your child is unable to express what led to their actions then you get to use your investigation skills. Investigate your child's regular triggers or any major changes. You know your child the best. This could include things such as: A major routine change Not getting something they wanted or expected An overwhelming sensory experience such as loud noises, getting scared, or falling.  Or even things that are happening inside the body such as hunger, a headache, a stomach ache, or getting hurt. It is believed that Autisitic children are more prone to having enteroception difficulties, which is difficulties understanding what is going on inside of their bodies. Often, If you do a little bit of investigating you are able to determine what led to the meltdown. Once you have determined the cause you can respond accordingly.  Remain Calm Your initial response plan is to continue to remain as calm as possible especially if it isn't an emergency and make sure your child still feels safe and heard. You  want to minimize your words if our child  having a meltdown  as your child is likely unreceptive to your words at the moment. *Think about times when you are angry and how willing you are to listen to others who are telling you what you should do. Once, your child is in a calm state and receptive to your words. You now have the opportunity to model or teach a more appropriate response. Teach An Appropriate Behavioral Response When teaching an alternate response the focus is to try to reduce shaming by finding a suitable redirection, explanation, and/or providing options or alternatives. It also helps to respond with intrigue, curiosity, and compassion. Here are some examples: Your child is throwing a toy in the house (its possible that your child doesn't know or understand why we don't throw balls in the house) Wow! You are really good at throwing. What do you think about throwing a ball outside so we dont hurt anyone inside? U know what, how about we play catch or basketball? Your child is hitting the dog Are you ok? It looks like you may be trying to pet the dog. The dog prefers soft, nice hands. Like this.  Your child  ran outside in the street overwhelmed by the fire alarm that went off. That fire alarm sure was loud huh?  You know what I do when I hear loud alarming sounds. I grab my headphones and go into the backyard. The front yard has cars and cars are dangerous Your child is mad because they can't get on tablet compassion I understand. I want to use the tablet as well. There are so many fun games there! Right now, it is time to eat lunch.  How about this: we can do 30 minutes of the tablet after lunch or 30 minutes after the park.  Which one do you want to do? Providing options works well because you can set boundaries and parameters while at the same time giving your child a sense of autonomy and choice.  In the last example you limited the tablet to 30 minutes but gave your child 2 options of when to play the table.  Continue to experiment with options and see how they work for you.  Recap The 3 strategies for reacting to meltdowns are  Determine the cause of the behavior (remember behavior is communication) Ask your child Investigate the typical triggers Any major changes this week, yesterday, or prior to the behavior Remaining Calm Reduce the urge to yell or react suddenly Keep your tone calm and use minimal words Modeling appropriate behavior when your child is receptive. Guide them towards appropriately asking what they want or need Redirect to a behavior or communication that is more appropriate. 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Reflection Exercise Think about your current situation, whether you work, take care of the kids today, or take classes. What structures are currently in place that allow you to do what you need to do everyday. Social supports Policies, Procedures, rules, values Feedback from others Schedules, calendars Now imagine if these things were just completely taken away and you had to just figure it out.  Think about the emotions and feelings you would be having Lost Frustrated Angry  Mad It's likely your body would go somewhat into fight or flight mode to just survive the day and other areas of your life may get neglected in the process.  We all cope in our own ways but maybe you would be less cooperative grumpy Yell Avoidant Background Why do kids have meltdowns? Kids often have meltdowns because they feel overwhelmed , powerless, or unseen. They don't have the coping skills and structures in place to equip them to handle stressful situations when they happen. Even as adults, we are equipped with various tools and we still find ourselves losing our cool. So it's important to remain calm and have compassion.  Think of meltdowns as a sign to evaluate your child's environmental demands or an opportunity to teach them functional coping skills which we will discuss more in the next episode We can reduce meltdowns by making sure our kids feel safe, empowered, and seen.  How do we do this? We do this by being consistent and intentional with our parenting and using:  Routines Visual schedules, calendars and checklist Visual timers or countdown. Action Plan The tools you will be using are routines, visual countdown, timers, checklist, schedules & calendars Routines Routines help preserve mental energy so we don't have to plan and strategize what we need to do next and how we are going to do it.  Examples Morning routines Bedtime routines Meal times & meal time expectations At the table Chores Bedtime routine example Take a shower Brush your teeth Go to bed Read a bedtime story It's safe and predictable. The next thing for you to implement Calendars/Schedules/Checklist Calendars help kids plan for events that deter from the typical routine. It's best to use a visual calendar for younger kids as it makes it easier to conceptualize what is expected. Birthday parties Grocery stores Dr appointments Family trips restaurants Collaborating and discussing things prior to the event it allows your child to mentally and emotionally prepare for the change.  It may be beneficial to use  social stories so your child has an idea of what to expect. Depending on your child's needs it may be beneficial to discuss Socially demands (how busy it is) Sensory environment (noise, lighting, particular smells) Time of day Length of visit Calendars also provide an opportunity for your child to negotiate and have a say day or week.  Remember: Make the calendar collaborative and give options when feasible Such as willingness to change Time of day Where they are going How long you may be there Date of event Example:  Jonny, we are going to eat at the Diner on Friday.  Mom, dad, and your cousins will be there and we will be seated inside. It may be noisy and the lighting should be dim. Make sure you bring your headphones in case it gets loud and we need to do our best to remain seated during dinner Countdowns & Timers Countdowns and Timers help make transitions less abrupt and go smoother.  Use your parenting instincts to determine a frequency that your child will best respond to. Remember kid time and adult time often feel a lot different.  Here is an example. Before playing the tablet, Let them know they can play on the tablet for 30 minutes.  Show them the timer and have them watch you set the timer.  As the time is going give reminders at 15 minutes 5 minutes and 1 minutes.  If they responded well, find a way to respond positively to the cooperation.  It's important to give more of our energy to the behaviors we want to see modeled, because our Thanks for following the rules, you did a great, you will get 30 minutes again after the park.   Let's recap Routines Create routines to help preserve mental energy so we don't have to plan and strategize what we need to do next and how we are going to do it.  Schedules and Calendars Collaborate with your child to utilize a visual calendar to document upcoming activities out of the regular routines so your child has the opportunity to have a say and mentally and emotionally prepare for the event. Countdowns & Timer Use countdown and timers to make transitions less abrupt. Episode 11 will discuss strategies on how to react to these behaviors when they do happen.  Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

The guest for the show is Rhonda Schnabl. Rhonda is a physical therapist who works in Lake Havasu City, AZ at Milemarkers Therapy. She has been a PT for 23 years and the human body continues to amaze her even after all this time of being a physical therapist. What is Physical Therapy?  Physical therapists work with individuals across the lifespan who experience illness, injury or conditions that limit their ability to move or participate in their daily life. You can think of them as movement experts. What skills do PT's address? Every practice is a little different depending on the clientele.  In my practice, I typically see:  Babies who have torticollis (or a preference to look to one side) and flat head syndrome.  Kids who have a preference for toe walking Kids who have difficulties with coordination Kids who have a weak core (which affect so much) Kids who have limited endurance Kids who need bracing options to help them walk Kids who have trouble catching a ball (ball skills) Kids who are delayed in achieving gross motor milestones such as skipping, galloping and jumping.  Kids who want to learn to ride a bike without training wheels How is it different from OT? OT address skills that impact a persons major occupations (work, play, leisure, sleep, ADL's, IADL's, education). PT's address anything related to movement and getting around to include positioning.  Both disciplines may find themselves doing similar activities (play) at times but addressing different overarching goals. What things should parents be communicating with their PT?  Pain Falls Medication Change When should a parent seek out PT services? When your child seems to be "lazy" Your child isn't sitting by 9 months old.  If you child is unable to keep up with their peer physically, a PT assessment is recommended. therapy.  If your child is still toe walking after age? Let's recap Physical Therapist address: Aerobic conditioning (endurance) Play Core strength,  Bilateral Coordination Sitting and standing balance Locomotion Object control Motor control/motor learning Posture Strength  Stretching The skills they work on or how they work on these skills Ball skills Running, galloping, skipping, riding a bike Sit ups, push ups, planks, body weight activities Balance activities Assessment of bracing needs Stretching and strengthening programs How it's different from OT OT's focus on Occupations (sleep, play, work, leisure, education, social participation, ADL's & IADL's) and implement therapeutic activities that address any of these target areas.  PT's focus on movement and positioning Things to communicate with your PT Falls Medication Changes Pain Resources: TNolaro24 Toe Walking Orthotic  www.nolaro24.com PureHeartsTherapy Blog and Service descriptions https://www.pureheartstherapy.com/services Milemarkers service descriptions and Physical Development Parent Checklist https://www.milemarkers.us/physical-therapy Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Occupational Therapists help people participate in meaningful everyday activities. We refer to these meaningful daily life activities as Occupations. Occupations are central to an individual's identity and provide meaning and value. Occupational therapist have 8 major occupations or activities that guide the Framework of their practice: Primary Occupations Sleep actual sleep duration and quality sleep hygiene rest Play appropriate play Provides enjoyment or  entertainment leisure enjoyed activities done in free time ADL's (self care) bathing toileting dressing feeding IADL's chores meal preparation shopping Education Formal education Informal education  social participation community saftey work employment self-employment volunteering Evaluation and Activity Planning OT's help children on the spectrum gain autonomy and independence by evaluating a child's participation in these occupations and investigating what factors are limiting performance.   Starts with an assessment Formal evaluation Questionnaires Interviews Medical review Therapist then work on the skills that are limiting your child's ability to complete the desired occupation. Typical Skills that OT's address are: Social/emotional Skills Negotiation skills Perspective taking Interoception (how my body feels when I'm mad or sad or happy) Conflict resolution Communication yes/no pointing self-expression Sensory processing skills Ability to navigate and understand the sensory world We all use senses to process the world but when there are sensory processing or modulation difficulties we may be taking in too much input, not enough input and it may be difficult to process and understand or even just overwhelming. Cognitive and executive functioning skills planning focus sequencing memory Physical motor skills, and coordination Oral-motor skills Hand-eye coordination Bilateral movements Environmental Adaptations School supports Home programs Community advocacy Habits, routines,  small habit changes lead to foundational lifestyle changes. How to Maximize Therapy Outcomes Ask questions and be curious If the therapist doesn't know, it gives them an opportunity to learn or find resources to help you answer any questions.  Write the questions down somewhere What does this activity help with How can we work on...? Therapist love to learn Follow -thru with home programing Our time with your child is limited so we can maximize outcomes with home programs or applying strategies throughout the week.  Try executing home program 1x a week Try to engage and be a participant during therapy sessions to include providing any relevant updates or ideas: Health changes New hobbies/habits Triggers Meltdowns  Let's recap The major occupations that OT's address for children on the spectrum include: Sleep Play Leisure activities Activities of Daily living (self-care) Instrumental Activities of daily living (chores) Education Social participation work OT's help children on the spectrum gain autonomy with these occupations by evaluating and addressing: social/emotional Skills Sensory processing skills Cognitive and executive functioning skills Physical motor skills, and coordination Environmental demands and adaptations Habits and routines Maximize OT services by Asking questions Follow -thru with home programing Collaborating and updating therapist on changes or concerns Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

The New Year is a great opportunity for you to reflect on your goals and priorities.  Being a parent is hard and juggling so many responsibilities can sometimes take us a little off track.  I believe at the end of the day you want to love your child the best you can and provide them the best opportunities to grow and thrive in this world. I want to support your parenting journey by providing you 3 practical tips to allow you to better show up and support your child this new year with the introduction of the 3 "C's" The 3 C's are Connection Consistency Compassion Action Plan Connection Find more ways to connect with your child with common interest or simply engaging in your child's high interest activities. Especially important if your child has communication difficulties This could look like Taking turns playing video games Watching a favorite movie or YouTube show together Engaging in sensory activities together Get on the playground together This not only helps connect but also gives you an opportunity to get a better perspective of your child's day to day engagements and what they look like. Consistency Our children thrive when they have schedules and routines to rely on. Routines and Schedules can help prevent future meltdowns Routines help preserve our mental energy Create a morning and evening routine Morning example Wake up at 7am Shower Get dressed Eat breakfast Brush Teeth Leave for school at 8am Evening example Eat dinner Brush teeth Bath/Shower In bed at 8:30 Read bed time story Schedules help us prepare mentally and physically for future events like New school year Novel trip to the grocery store Camping trip To prepare use Social scrips Role play scenarios Pictures Verbal explanations Compassion Have patience and compassion for your child We all learn and develop at our own pace Try not to compare your child to others Provide positive feedback Work as a team Use your child's strengths to maximize their potential Examples Competitive child Try timers Try making the activity a game Artistic Child Find opportunities for creativity Practice Self-Compassion We are all doing the best with the tools that we are given Most of how we learned how to parent comes from what was passed down to us from our caregivers (the good and bad) Seek out help when needed (It takes a village to raise a child) Support Groups Parenting courses Family members Youtube channels Podcasts Recap: Connection Explore your child's interests and find creative ways to emerge yourself into those activities and engage with them. Consistency Create consistency by creating routines and schedules that are safe and predictable for your child to preserve mental space and reduce future meltdowns. Compassion Have compassion for your child by providing positive feedback and allowing them to grow and develop at their own pace and have compassion for yourself for all the work you do and don't be afraid to ask for help or resources. Resources: Books & Parenting Courses Positive Parenting Solutions: Online parenting Course https://www.positiveparentingsolutions.com/ Positive Parenting for Autism: ABA based parenting strategies book https://www.amazon.com/Positive-Parenting-Autism-Strategies-Challenges-ebook/dp/B07KMHNN2Q Teach Through Love: Youtube channel  and courses by Lori Petro Communication, social emotional tools to connect with your child  Support group (Local Arizona) Autism Society of Greater Phoenix https://phxautism.org/ Support group meetings Monthly Autism classes Advocacy training for services Social Activities Facebook groups Autism Parents support Groups Autism Parents of Arizona Autism Dads of support Group Autism Dads of Arizona Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Would you like to hear how to improve your child's behaviors, attention, learning, mental and physical health? Do you also find that your child has difficulties with sleeping regularly throughout the night to include waking up tired and irritable. In this episode we discuss sleep, how it impacts our children's development, and give you a valuable tool for you to use to increase your child's overall sleep quality.  Sleep is one of the most important things we do everyday and has the ability to impact every aspect of our lives. Sleep is especially important for the overall physical and mental development of our children.  Sleep affects Attention and alertness Learning and memory Mood Resiliency Ability to learn and acquire language Overall Growth and motor skills If your child is not getting enough sleep I want you to know that you are not alone. Various reports estimate that up to 50% or kids don't get enough sleep.   On top of that, studies have shown a positive correlation indicating that children on the spectrum who have sensory modulation disorders may also have innate difficulties with sleep. This is typically related  Overresponsitivity High arousal Higher cortisol (stress) levels throughout the day So how much sleep is enough sleep? This is going to vary but it's typically more than the recommended 8 hours we need as adults.  According to the CDC Ages 6-12 Need 9 hours of sleep Middle school kids 6-10 hours of sleep Generally the younger you are the more sleep you need.  We know sleep is important so what do we do now? Action plan: If your child is having regular sleep disturbances. The first thing I want you to do is have a medical evaluation to determine if your child has any sleep disorders or underlying conditions that are affecting his or her sleep quality.  Typically a physician may look for: Pain Anxiety Sleep apnea Typical Prescriptions include: Melatonin or a sedative Medication may not always be necessary. Ultimately you and your doctor will work together to determine if there is a diagnosis and what route you want to take.   After you have ruled out any underlying conditions. The next step will be to address sleep hygiene:   What is sleep hygiene? Sleep hygiene is the activities we do during the day and before bed to promote healthy sleep patterns. Sleep hygiene habits: Consistent sleep patterns Going to sleep and waking up at approximately the same time each day Including weekends Keeping Bed area or bedroom dedicated for sleep Keep a cool house temperature Try Essential oilst Lavender Peppermint  Cedarwood Diffuser/humidifier White noise machine or aps while sleeping Meditation apps  Moshi Calm Headspace Sleep apps SnoreClock Track sleep and noise  Number of awakening Sleep efficiency Keep a consistent bedtime routine  Shower Pajamas Brush teeth Bedtime story Lights off  Nutrition (Eliminating stimulating food in the evening) Spicy foods Caffeine Sugary foods (candy, soda, juice, soft drinks. High fat foods Cured meats Alternatives Popcorn Nuts  Dried tart cherries Complex carbs Reducing screen time in the evening Studies show screen time affect or circadian rhythm by making us more alert  Blue light affects sleep Mobile device are les preferable They are often placed right in front of the face making it worse Can be taken to bedroom More light = less melatonin release Emits alerts Try placing parental controls on devices keep a sleep journal Try using a written journal or Sleep better app to track Bed times Awake times Noise Movements Light Activity during the day Walk Park Types of food (spicy, strong foods) Stressors (meltdowns, routines changes, school difficulties) Routines before bed Weighted blanket Massage Stuffed animals Oils music Tools that help your child calm and soothe at night Recap   If there are major sleep disturbance, please have your child evaluated by a physician to rule out underlying sleep conditions such as  Anxiety, sleep apnea, pain Promote healthy sleep hygiene routines Consistent bedtimes, bedtime routines, and bedroom environment To remind the mind and body it's time to sleep Avoiding sugary, high fat, or caffeinated food and drinks Reducing screen time in the evening Keeping a sleep journal Use a mobile app or written journal Bed times Physical activity Stressors Stimulants around bedtime Routine changes Tools that help you child sleep Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy

Have you been wondering what gifts your child will love this holiday season that is also going to promote their development? I have placed my top gift recommendations into 4 categories: Sensory tools and toys STEM projects tablet/cell phone applications Fun activities to do at home. Recommendations Sensory Tools and Toys  Weighted Blanket (should be about 10% of child's body weight) Provides deep pressure stimulation helps with sleep, calming, and self-regulation. https://www.diynetwork.com/how-to/make-and-decorate/crafts/how-to-make-a-weighted-blanket Water Beads https://www.amazon.com/Kinetic-Sand-Sandtastic-Playset-Tools/dp/B07M5TPM8Q/ref=sr_1_5?crid=2ZWOYFSRYRHUP&keywords=kinetic%2Bsand&qid=1637875314&qsid=146-1346417-0430338&s=toys-and-games&sprefix=kinet%2Ctoys-and-games%2C237&sr=1-5&sres=B084BNW2PW%2CB07M5TPM8Q%2CB07GTB3H8T%2CB08S75BPRY%2CB08S7LDZ84%2CB08FCR35QB%2CB084BTPVFQ%2CB07PGTLGK1%2CB08T6DVTZ6%2CB084BNRGCZ%2CB08LZN7LFR%2CB084PTWQ91%2CB0886RL2F7%2CB075Y9G5JV%2CB081VVNWKN%2CB08S71687H%2CB08LZJGHDV%2CB08S75JPFB%2CB01K16G83A%2CB07R9N35FR&srpt=ART_CRAFT_KIT&th=1 Kinetic sandhttps://www.amazon.com/Kinetic-Sand-Sandtastic-Playset-Tools/dp/B07M5TPM8Q/ref=sr_1_10?keywords=kinetic+sand&qid=1638604650&sr=8-10 Fidget/sensory toys https://autismcommunitystore.com/collections/sensory-toys Pop its Fidget spinners STEM (science, technology, engineering, and math) projects STEM toys make for a great gift idea because they promote so many functional life and developmental skills. STEM TOYS (learning/creativity) Amazon Coding starter kit Woodworking kits Science projects https://stemgeek.com/diy-stem-activities-kids/ Rubber band fan powered car Catapult Make slime or playdough Raft Paper paper airplanes. Tablet/Cell phone applications AAC/language/communication apps Proloquo2go  (iphone) For nonverbal children https://apps.apple.com/us/app/proloquo2go-symbol-based-aac/id308368164 OTSIMO https://apps.apple.com/us/app/otsimo-special-education-aba/id1084723774 https://play.google.com/store/apps/details?id=com.otsimo.app MITA (Mental Imagery Therapy for Autism) helps supports language development Available in various language Researched Routines  & Schedules I create- social stories social learning tool that supports the safe and meaningful exchange of information https://apps.apple.com/us/app/i-create-social-skills/id513666306 add images, record voice and organize a schedule Cause and effect learning First then visual Schedule https://apps.apple.com/us/app/first-then-visual-schedule/id355527801 https://play.google.com/store/apps/details?id=ru.ausoft.firstthen&hl=en_US 3. Sensory light box Cause and effect sensory light box (android) https://play.google.com/store/apps/details?id=air.com.cognable.lightbox https://apps.apple.com/us/app/sensory-light-box/id533976433 Experience/memory together your kids want to bond with you Cooking /baking Decorative/holiday Cookies Cake Play around with colors and dye House themes Lights Make shirts Holiday Decorating Get Outdoors Make snowman if its snowing Play catch Run around and play tag Go to the playground Recap:  Sensory based Water beads Weighted blanket Fidget toys STEM Activities Crafts Science projects Woodworking kits Slime Coding Cellphone/Tablet applications Proloque2go MITA I create First then schedule Sensory light box Experiences/Memories Cooking/baking Decorating Outdoors Subscribe Now & Leave a Review Apple Podcasts, Spotify,  Google Podcast, &  Stitcher Visit our Website www.pureheartstherapy.com Follow Us: Facebook: Pure Hearts Therapy Facebook Group: Autism Family Toolkit Instagram: Purehearts_Therapy