All Episodes

Episode 094 - The Power of AI in Drug Repurposing in RDD and Beyond w/ Dr. Luke Chen

Episode 093 - Meet the Team: Staff Highlight Series w/ Kristen, Our Chief Program and Development Officer

Episode 092 - You Are Not Alone: Mental Health and Peer Support in Rare Disease

Episode 091 - Artificial Intelligence & Rare Disease: How AI Could Change Diagnosis, Treatment & Advocacy w/ Dr. Richard Godby

Episode 090 - A Monkey, A Mission and a Legacy: Creating Grins One Monkey at a Time w/ Kristin Aaron

Episode 089 – Supporting the Next Generation – The Histiocytosis Association’s Student Scholarship Program

Episode 088 - From Patient to Advocate – A Youth Voice for Rare Disease Week 2026

Episode 087 - Cyclin D1 Overexpression in Erdheim-Chester Disease

Episode 086 - The 2025 Hopecast!

Episode 085 - A Season for Gratitude

Episode 084 - Meet the New Histiocyte Society President, Dr. Vasanta Nanduri

Episode 083 - Staff Highlight Series - Meet Our New Executive Director, Jen Silvers

Episode 082 - Continuing Medical Education and the Patient Voice

Episode 081 - Meet the Team: Behind the Scenes with Kathy, the Histiocyte Society Secretariat and More!

Episode 080 - Histio Patient and Family Summit - Your Guide to this Exciting Event

Episode 079 - From Endocrinopathy to Diagnosis of a Histiocytic Disorder

Episode 078 - From Misdiagnosis to Mission – One Patient’s Journey with Rare Disease

Episode 077 - MEK Inhibitors in ECD

Episode 076 - Meet the Team: Behind the Scenes with Erica, Our Database Guru

Episode 075 - 2024 HopeCast Part 3 - Research

Episode 074 - 2024 HopeCast Part 2 - Support

Episode 073 - 2024 HopeCast Part 1 - Awareness

Episode 072 - Highlights from the 40th Annual Meeting of the Histiocyte Society

Episode 071 - Meet the Team: Behind the Scenes with Danielle, Our Financial Officer Extraordinaire

Episode 070 - Navigating Social Security & Disability Benefits for Children: Compassionate Allowance Expansion for Histiocytosis

Episode 069 - Navigating Social Security & Disability Benefits for Adults: Compassionate Allowance Expansion for Histiocytosis

Episode 068 – Meet the Team: Behind the Scenes with Peter, Our Strategic Communications Maestro

Episode 067 - Fostering the Next Generation: Young Investigator Initiatives Within the Histiocyte Society

Episode 066 - Working Through Grief - Together

Episode 065 - AVP-Deficiency Explained: Understanding and Managing a Rare Condition

Episode 064 - Voices of Dedication: Honoring Our Histio Volunteers

Episode 063 - Heartbeats of Hope: The Histio Caregiver

Episode 062 - From Adversity to Opportunity

Episode 061 - The Fruits of Our Labor – Joining Together to Fund Research

Episode 060 – Navigating Histiocytosis from a Neuropsychological Perspective

Episode 059 - Hopecast 2023

Episode 058 - Global Genes Conference: Showing Up and Making an Impact

Episode 057 - The Changing Seasons

Episode 056 - Standing Up to ECD with Courage and Hope

Episode 055 - Advocacy and Awareness - 2 Pillars of Finding a Cure

Episode 054 - 3-Minute Thursday - Motivation vs Determination

Episode 053 - Surviving to Thriving - Going Truly Beyond the Diagnosis w/ Dr. Gaurav Goyal

Episode 052 - 3-Minute Thursday - The Gift of Being Present

Episode 051 - 3-Minute Thursday - Friendship in Difficult Times

Episode 050 - 3-Minute Thursday - Share Your Story

Episode 049 - 3-Minute Thursday - The Healing Power of Music

Episode 048 - Cultivating the Seeds of Research: Understanding the Scoring Process

Episode 047 - 3-Minute Thursday - Pushing Through Tough Times

Episode 046 - 3-Minute Thursday - Control

Episode 045 - 3-Minute Thursday - Don't Give Up!

Episode 044 - 3-Minute Thursday - Say Something Nice

Episode 043 - 3-Minute Thursday - Pets as Therapy

Episode 042 - Mother Knows Best: An LCH Parent’s Journey w/ Mia Graviano

Episode 041 - 3-Minute Thursday - Confidence in Patient Autonomy

Episode 040 - 3-Minute Thursday - National Nurses Week!

Episode 039 - 3-Minute Thursday - Your Knowledge is Your Force

Episode 038 - 3-Minute Thursday - Self-Empathy

Episode 037 - Findings from a Rare Cancer Caregiver Study

Episode 036 - 3-Minute Thursday - Pharmacogenetics

Episode 035 - 3-Minute Thursday - Choices!

Episode 034 - 3-Minute Thursday - Positive Thinking

Episode 033 - 3-Minute Thursday - Self-Care is NOT Selfish

Episode 032 - 3-Minute Thursday - Laughter as Medicine

Episode 031 - The Best of Beyond the Diagnosis - 2nd Anniversary Countdown Special

Episode 030 - 3-Minute Thursday - Gratitude

Episode 029 - 3-Minute Thursday - Ethnicity and Matching

Episode 028 - 3-Minute Thursday - Introduction to 3-Minute Thursdays

Episode 027 - Part 1 of 3 - Seeds of Funding - The Foundation of the Research Grants Program w/ Allie McFadden

Episode 026 - Education in the Histiocyte Society: What, Why and How w/ Dr. Michael Henry

Episode 025 - The 2022 HopeCast and Year End Update

Episode 024 - Family Group Collaborations - Working Together At Home and Abroad

Episode 023 - Focus on the Future w/ New Histiocyte Society President, Kim Nichols

Episode 022 - Exciting Updates from Our 2021 Grant Recipients

Episode 021 - Rolling and Running Into September

Episode 020 - Work Beyond the Diagnosis: A Conversation with Cancer and Careers

Episode 019 - BONUS: A 2022 Mid-Year Update from the Histiocytosis Association

Episode 018 - Beauty From Ashes - Channeling Grief to Make a Difference w/ Histio Spouse Michelle Phay

Episode 017 - History Firsthand - An Account of the Origins of the Histiocytosis Association w/ Jeff Toughill

Episode 016 - Introducing the Histiocytosis Association's Ambassador Program

Episode 015 - Erdheim-Chester Disease – Information, Resources and Hope from the Experts

Episode 014 - The Histiocytosis Association Scholarship Program

Episode 013 - Hiking Our Way to a Cure

Episode 012 - Rare Disease Day 2022

Episode 011 - A Look into the North American Consortium for Histiocytosis

Episode 010 - A Year End Update from the Histiocytosis Association

Episode 009 - Emotional Wellness Month and the Benefits of Yoga

Episode 008 - The Ins and Outs of Clinical Trials and Our Research Grant Program

Episode 007 - Why Raising Awareness is Critical and the Impact it Can Have

Episode 006 - LCH to Bullying, How One Patient is Using Her Experiences to Make a Difference

Episode 005 - Managing Stress in Difficult Times

Episode 004 - EveryLife Foundation, the STAT Act and Rare Disease Week

Episode 003 - The Histiocyte Society – Hope for the Future

Episode 002 - A Glimpse Into the Histiocytosis Association

Episode 001 - Introduction to Beyond the Diagnosis

Beyond the Diagnosis (Trailer)